Published biennially by
Amputee Coalition of America
900 E. Hill Ave., Suite 205
Knoxville, TN 37915-2566
Phone: 865/524-8772
1-888/AMP-KNOW (267-5669)
FAX: 865/525-7917
E-mail: editor@amputee-coalition.org
Web site: www.amputee-coalition.org
President & CEO
Paddy Rossbach, RN
Executive Editor
Nancy M. Carroll
Associate Editor
Rick Bowers
Graphic Design
Karen Jenkins
ACA Board of Directors
Executive Board:
Chair
Paul Ising
Vice Chair
Tamar Luchow
Secretary
Hon. John J. Farley, III
Treasurer
Maynard Carkhuff
ACA Medical Director
Doug Smith, MD
ACA Legal Counsel
Douglas McCormack, JD
Directors:
Ralph Fowler
Bruce G. Nitsche
Marianne Rankin
Brad Ruhl
Executive Publications Committee:
John Bowker, MD
Missy Wolff-Burke, EdD, PT, ATC
Jan Garrett, JD
Tamar Luchow
Al Pike, CP
Marianne Rankin
Kathleen K. Spozio
Charlie E. Steele
Philip Tamoush
Col. William E. Weber
The ACA educates people with limb loss about resources, opportunities, and options that affect their lives. This may include information concerning products, services, and treatments, a courtesy that is not meant to imply endorsement by the ACA, its members, or the staff of the National Limb Loss Information Center (NLLIC).
This publication is fully supported by Grant/Cooperative Agreement Number U59 DD000347 from the Centers for Disease Control and Prevention (CDC). Its contents are solely the responsibility of the authors and do not necessarily represent the official views of the CDC.
© 2001 ACA; all rights reserved.
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| The 2001 edition of First Step is the essential Guide for all people who are coping with the challenges of limb loss. Published by the National Limb Loss Information Center (NLLIC), First Step offers readers over 100 pages of reliable information on consumer issues that have been raised time and time again by amputees attempting to make educated choices, get better services or decide on available options.
Help the ACA get this important publication into the hands of your patients, clients, and colleagues. Whether you distribute 5 copies or 5,000 copies, First Step is free of charge. For facilities with multiple locations, we ask that you help us save postage by accepting all copies at one location. First Step is also available for your meetings and events. The ACA would appreciate assistance with postage fees for large orders! |
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Call 1-888/AMP-KNOW |
|
 SECTION 1 - FACING AMPUTATION SURGERY
Lower Extremity
Raymond Francis, CP
Upper Extremity
Sean Toren
Questions to Ask Your Surgeon
Things you need to know about your
amputation
John W. Bowker, MD
Small Part for Above-Knee Prosthesis Makes a Big Difference
The importance of push-button rotators
John Rheinstein, CP
Dealing With Grief and Depression
Preserving your physical, emotional, mental, and spiritual health
Omal Bani Saberi, LCSW, CCHT
Finding a Qualified Therapist: What’s in a Name?
What the different types of therapists do and their qualifications
Omal Bani Saberi, LCSW, CCHT
 Pain: What to Expect
A discussion of pain from the preoperative stage through postoperative phantom pain
ACA Staff Writers
The Value of Peer Contact
inMotion Staff Writers
Young Amputee Gives Kennedy Hope After Amputation
The story of Edward "Ted" Kennedy Jr.’s loss of a leg to bone cancer in 1973 and how peer support helped him adjust
inMotion Staff Writers
Youths Reach Out to Help Others
The story of two young amputees who went out of their way to give peer support to new amputees
Rick Bowers
Post-op Prostheses Offer Benefits After Amputation Surgery
John Rheinstein, CP
 Facing Congenital Limb Differences: A Child is More Than an Arm or a Leg
Several families share their inspiring stories of pain and joy
Rick Bowers
Early Fitting is Key to Success
Occupational therapist discusses her belief that every child should have the opportunity to use a prosthesis
Diane Atkins, OTR/L, FISPO
Assistive Devices Give Upper-Extremity Amputees a Helping Hand
Simple, complex products make life easier for prosthetic and nonprosthetic users
Rick Bowers
SECTION 2 - ARE YOU READY FOR A PROSTHESIS?
Preparing for Prosthetic Fitting
Robert S. Gailey, PhD, PT
Choosing a Prosthetist
Questions the amputee should ask when seeking a prosthetist
Wendy Beattie, CPO, FAAOP
A closer look at the ABC and BOC -in their own words
Messages from the two certifying bodies for orthotists and prosthetists
 The Process of Creating a Prosthesis
Bill Copeland, CP, LP
Prosthetics and Aging: Mobility for the Long Run
Kevin Carroll, MS, CP, FAAOP
Prosthetic Knees
An overview of the various types of knees available and their advantages and disadvantages
John W. Michael, MEd, CPO, FAAOP, FISPO
Putting Your Best Foot Forward
An overview of options in prosthetic feet
Scott Sabolich, CP
 A Guide to "Recreational" Prostheses
Arthur D. Graham, CP (USA), CPO (UK)
Prosthetic Socks and Liners
A discussion of the various socks and liners available and their advantages and disadvantages
Jack E. Uellendahl, CPO
A Prosthetic Conversion
Rethinking the distinctions between functional and cosmetic prostheses
Kim Doolan
 Advances in Arm Prosthetics
An overview of new prosthetic devices for the upper-extremity amputee
Harold Sears, PhD
Advanced-Technology Prostheses: Are They For You?
A discussion of the application of technology in prosthetics, its relevance to the consumer, and common myths about advanced technology
John Michael, MEd, CPO, FAAOP, FISPO
Putting Amputees Back in the Driver’s Seat
An overview of the different types of hand controls and their advantages and disadvantages
Lee Perry
SECTION 3 - LIVING WITH LIMB DIFFERENCES
Building Self-Esteem
Getting by with a little help from your friends, family, and other amputees
Gail M. Williamson, PhD
Skin and Socket Care
Basic tips on caring for your skin
Paddy Rossbach, RN
Keep Moving... Exercises for Lower-Extremity Amputees
Melissa Wolff-Burke, EdD, PT, ATC, and Elizabeth Cole, PT
Veterans Health Administration
A brief introduction to VHA services for amputees
David Whatley
 A Man of Honor
The story of Navy master diver Carl Brashear
Rick Bowers
Landmine Survivors Network
A brief introduction to the organization founded by landmine survivors for landmine survivors
Who Cares for Caregivers?
An article on the effects of caring for others and how to handle the stress
Nancy Carroll
Prosthetic Costs
Jon B. Holmes, PT, CP
Financial Assistance for Prostheses and Other Assistive Devices
An overview of various funding options
Compiled by Mary Jo Walker, NLLIC information specialist
Diabetes: Preventing Lower-Extremity Amputations
Frank Vinicor, MD, MPH
PHOTO CREDITS
The ACA is grateful to all of the manufacturers who supplied photographs, line drawings and other images for this publication.
Cover: Upper-extremity prosthesis courtesy Motion Control; Photo of small boy courtesy Endolite North America |
