The National Limb Loss Resource Center provides crucial services to Americans of all ages through its accredited call center, over 400 support groups, and more than 1,500 Certified Peer Visitors, as well as a growing list of over 50 hospital partners. Federal investment in these programs and resources help members of the limb loss and limb difference community return to work, have healthier post-amputation outcomes, and more actively participate in society. This allows the Resource Center to serve and support free-of-charge the more than two million Americans living with limb loss or limb difference, as well as the more than 28 million at risk of amputation surgery.
Not only that, this funding will allow the Resource Center to continue to provide award-winning publications, national and regional education events, career and employment services, support for families and caregivers, and youth programs. It also will continue vital partnerships with the Department of Veterans Affairs and the Department of Defense to support our veterans and Wounded Warriors.
Here is what Amputee Coalition President and CEO Mary Richards said upon Congress passing the budget:
“People living with limb loss and limb difference need access to education, information, and support so they can live the life they want. On behalf of the community, we thank Congress for their bipartisan leadership in passing the FY 2021 appropriations, which includes funding the National Limb Loss Resource Center. This funding will allow the Resource Center to serve and support the more than two million Americans living with limb loss or limb difference, as well as the more than 28 million at risk of amputation surgery.”
The Amputee Coalition runs the National Limb Loss Resource Center® through a cooperative agreement with the Administration for Community Living, a division of the U.S. Department of Health and Human Services. Funding for the National Limb Loss Resource Center® is decided every year by Congress.
Our simple, online form makes it easy, and there is plenty of room for you to personalize the text and share your personal story.
We look forward to working with the new Congress and new Administration to continue to invest in these services that provide so much for the limb loss and limb difference community.
To learn more about the role the federal government plays in research, patient support, and access to care issues, please visit the Advocacy section of our website.
Educating Your Lawmakers
There are many reasons to contact your legislator directly to share your perspective. As their constituent, they want to hear from you, and even a handful of letters and calls on the same topic will resonate for them.
In April, people living with limb difference and limb loss visited legislators in Washington, D.C. There are three areas that we discussed and flyers with more details:
- Introducing or sponsoring federal insurance fairness
- Co-sponsoring and supporting a bill to make sure Medicare coverage changes are transparent (LCD)
- Including prosthetist’s notes in your medical record as part of insurer’s requirements for medical necessity documentation.
If you’d like to reach out to your legislator, please let them know that you would like their support in these areas.
If you have questions or any issues, contact us at email@example.com.
Advocacy and the Amputee Coalition
The Amputee Coalition helps bring together and amplify the voice of people affected by limb loss and limb difference.
Making sure our legislators and insurance policymakers are educated about the needs of the community is an important part of our mission. We partner with other organizations to bring you the tools you need to understand and address a broad range of issues listed below. We also build partnerships with the Administration for Community Living (ACL), the Veterans Administration (VA), the Department of Defense (DOD), and other federal agencies, as well as with other disability groups and organizations that serve as allies. These partnerships are often broader, delving into needs around the Americans with Disabilities Act (ADA), Medicare and Medicaid, funding for programs and research, and access to care. The Amputee Coalition works with partners to ensure the limb loss community, the disabled community, and the professionals that support these communities are well-represented.
Everything you do makes a difference and turns up the volume of your voice!
The Amputee Coalition will look to maintain current funding from the Administration for Community Living (ACL) which is part of the United States Department of Health and Human Services. This funding helps us deliver the services and resources the Amputee Coalition provides for the limb loss community. In addition, funding research that better identifies and quantifies how to help people living with limb difference and limb loss thrive is an important funding need. There is some research related to prosthetic care and devices, and very little related to other important areas like long-term physical and emotional impacts, mental health challenges, access to meaningful work, levels of discrimination and more.
Reasonable Travel for Amputees
Assuring that security screening is conducted in a reasonable and appropriate fashion by the Transportation Security Administration (TSA) for people with limb loss remains a priority for the Amputee Coalition. There remain concerns about intrusive and inconsistency in screening policies from the limb loss community. The Amputee Coalition will continue to work with TSA as members of the TSA’s Disability and Multicultural Coalition Task Force to help them to understand these issues so that they can be appropriately addressed to make the traveling experience as reasonable as possible while maintaining the safety for all travelers.
Limb Loss Awareness Month Proclamations
The Amputee Coalition continues to seek proclamations every April in all 50 states to declare April as Limb Loss Awareness Month. A copy of the proclamation language is available along with a spreadsheet providing a link to your state’s proclamation request form and a guide to completing your request is available for those who would like to help raise awareness. A push for recognition and support during Limb loss Awareness Month will help the Amputee Coalition raise awareness about limb loss and provide a mechanism for the whole community to increase their awareness about limb loss.