Insurance Fairness for Amputees
The Amputee Coalition continues to work on the Federal “Insurance Fairness for Amputees Act” (formerly the Prosthetic known as the Parity Act). The Amputee Coalition has worked to raise awareness about the need for appropriate access to prosthetic care with this legislation at the Federal level since 2008. We continue to build relationships with members of Congress, and are approaching past supporters and potential supporters to urge them to introduce the Insurance Fairness for Amputees Act to promote fair insurance access and independence for the limb loss community.
To see the history of this legislation, please see below:
What can you do?
In 2017 we prepared for Hill Days with two training webinars that included logistics as well as how to plan an effective congressional visit.
Medicare Local Coverage Determination (LCD)
Your voices were heard in 2015 and as a direct result of the over 100,000 signatures on the White House petition, the draft Lower Limb Prostheses Local Coverage Determination (LCD) (DL33787) has been put on hold while an interagency workgroup has been established to look at the draft proposal and identify recommendations.
With this in mind, the Amputee Coalition has partnered with the American College of Pathologists, AdvaMed, and over 80 patient advocacy organizations to provide clarity and transparency around the Local Coverage Determination process, by introducing the Local Coverage Determination Clarification Act in 2016. We were able to secure important transparency provisions in the 21st Century Cures Act which was signed into law at the end of 2016, but we continue to work with our partners to reintroduce this important legislation to ensure protections for people with limb loss and others that have been subject to an LCD process that currently lakes transparency.
Americans with Disabilities Act (ADA) Issues
The Americans with Disabilities Act (ADA), was passed in 1990. The ADA is a civil rights law that prohibits discrimination based on disability. The Amputee Coalition works with other partner organizations and coalitions on a broad array of issues that fall under the ADA, and we work to make sure members of the limb loss community are not discriminated against. If you feel you have been discriminated against based on your disability, please contact the Amputee Coalition’s National Limb Loss Information Center and allow us to help.
Funding for Programs and Research Affecting People with Limb Loss
The Amputee Coalition operates many programs and services through a collaborative agreement with the Administration for Community Living (ACL), and works through a grant within the ACL to provide services for the National Limb Loss Resource Center, our Peer Support Network, the Youth Camp, and some of our Publications, and events. No ACL funding is ever used for lobbying purposes. This funding is imperative to providing the resources and services we do to ensure people affected by limb loss are able to live well and live successfully and independently in their communities. In addition, we are also working with members of Congress, the National Institute of Health (NIH), the National Center for Medical Research and Rehabilitation (NCMRR), the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) the Veterans Administration (VA), the Department of Defense (DOD), and other agencies, to encourage investments in funding and research to help support the limb loss community and improve patient outcomes. We are also working with the Medical Research and Materiel Command (MRMC) and Telemedicine and Advanced Technology Research Center (TATRC) to look at bringing technological advancements forward for members of the military and the general population.
You can also help by personally supporting the Amputee Coalition’s efforts through our secure online donation form so that we can continue to provide the programs and services important to the limb loss community.
Would you like to get more involved?
Go to our Grassroots Advocacy Center, and get involved by contacting your legislators and sharing some of the information above. Your voice and your personal experiences can make a significant difference in each of these initiatives. If you’d like to get involved in your state, go to our State Issues page and get resources and see what’s happening in your state!
How to Contact your Legislators
The Amputee Coalition works on a broad range of Federal issues. This page provides information about how to contact your legislators and a background on several issues which are currently being addressed. You can email the Amputee Coalition at firstname.lastname@example.org or contact your legislators and share the issues that are affecting you.
Every person is represented by one member of Congress and two U.S. Senators: