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Currently, about 1.9 million people are living with limb loss in the United States. People lose their limbs for many reasons. Of the 1.9 million, 54 percent lost their limb(s) due to complications related to vascular disease (including diabetes and peripheral arterial disease), 45 percent lost their limb(s) due to a traumatic accident, and less than 2 percent had an amputation due to cancer. Non-whites make up about 42 percent of the limb loss population in the United States. The number of people living with limb loss in the country is expected to double by 2050 due to growing rates of diabetes and vascular disease. (1)
Each year, an estimated 185,000 amputations are performed in the United States. (2) The leading causes of amputation in adults are vascular disease (including complications related to diabetes and peripheral arterial disease), trauma and cancer. According to the Centers for Disease Control and Prevention, in 2009 there were 68,000 amputations due to complications from diabetes (3).
A total of 5,249 amputations were performed in Illinois hospitals in 2012. This fact sheet discusses the trends and most current incidence of amputation in Illinois.
1. AMPUTATION TRENDS (2009 – 2012)
According to national hospital discharge data, the number of amputations performed in Illinois increased by 2.9 percent from 2009 to 2011, before dropping 2.3 percent in 2012 (see Graph 1.1) .During this time period, the number of amputations performed in the United States increased by 11.2 percent.
A total of 21,167 amputation procedures were performed in Illinois from 2009 to 2012. This represents 3.7 percent of the 570,508 amputations performed in the U.S. during this time period.
From 2009 to 2012, a total of 1,194 upper-limb amputation procedures were performed in the state of Illinois (see Graph 1.2). This represents 5.6 percent of all amputations performed in the state during this time period.
From 2009 to 2012, 40,763 upper-limb amputations were performed in the United States. The number of upper-limb amputations performed in the state of Illinois represents 2.9 percent of this national total.
The incidence of upper-limb amputations in Illinois dropped 8.1 percent in these years. The leading causes of upper-limb loss are trauma, cancer, and congenital anomaly (1, 4, 5).
From 2009 to 2011, the number of lower-limb amputations in Illinois increased by 3.4 percent, and then decreased by 2.4 percent in 2012. A total of 19,864 lower-limb amputation procedures were performed in the state of Illinois from 2009 to 2012 (see Graph 1.3).
This represents 93.8 percent of all amputations performed in the state from 2009 to 2012.In these years, 529,743 lower-limb amputations were performed in the United States. The number of lower-limb amputation procedures performed in Illinois represents 3.7 percent of this national total.
The leading causes of lower-limb amputation are complications resulting from dysvascular diseases such as diabetes, and the number of people who lose a limb due to diabetes is expected to almost triple by the year 2050 (1, 4).
2. INCIDENCE OF AMPUTATION (2012)
A total of 5,249 amputation procedures were performed in the state of Illinois in 2012, including 284 upper-limb amputations (6 percent) and 4,932 lower-limb amputations (94 percent).
Most upper-limb amputations involved the fingers (84.2 percent). Below-elbow amputations accounted for only 4.9 percent of the upper-limb amputation procedures performed in the state of Illinois in 2012 (see Graph 2.1).
A total of 4,932 lower-limb amputation procedureswere performed in 2012. Most involved the toes (46.4percent). Below- and above-knee amputations combined accounted for 38.2 percent of the lower-limb amputation procedures performed in the state that year (see Graph 2.2).
3. WHO LOSES A LIMB? (2012)
In 2012, most amputations in Illinois were performed on individuals aged 45-64 years old (43.8 percent), followed by the age group of 65-84 year olds (37.2 percent) (see Graph 3.1). These trends largely reflect the aging population and causes of amputations resulting from dysvascular conditions, especially diabetes, which are more common in older individuals (1)
There were a little over 2 times more amputationsperformed on male patients in Illinois than on female patients (see Graph 3.2).
In 2012 most of the amputations in the state of Illinoiswere performed on patients who were White (56 percent), African American (27 percent), or Hispanic (11.3 percent) (see Graph 3.3).
Many studies have published research that shows evidence for inequalities in terms of amputation incidence among minorities when compared to the proportion of amputations in the White population. A few studies offer suggestions for why this happens, such as certain ethnic populations being genetically more likelythan others to experience diseases such as diabetes that can lead to amputation. Various socioeconomic factors and a population’s access to healthcare can also affect these numbers. (4, 6, 7)
4. AMPUTATION COSTS
Paying for an amputation can place a large burden on the patient. For people with a unilateral lower-limb amputation, the two-year healthcare costs, including initial hospitalization, inpatient rehabilitation, outpatient physical therapy, and purchase and maintenance of a prosthetic device, is estimated to be $91,106. The lifetime healthcare cost for people with a unilateral lower-limb amputation is estimated to be more than $500,000. (8)
Many factors contribute to the variation in healthcare costs for people with limb loss. Having a higher amputation level and multiple amputations can lead to increased costs for prosthetic devices. For example, the two-year healthcare costs for a person with an above-knee amputation are estimated to be $110,039, compared to $86,244 for a person with a below-knee amputation (8).
For 2012, the burden of costs associated with limb loss are largely experienced by Medicare, which paid for over half of the amputation procedures performed in the State of Illinois (see Graph 4.1).
1. Ziegler-Graham K, MacKenzie EJ, Ephraim PL, Travison TG, Brookmeyer R. Estimating the prevalence of limb loss in the United States: 2005 to 2050. Archives of Physical Medicine and Rehabilitation2008;89(3):422-9.
2. Owings MF. Ambulatory Procedures in the US 1996. National Center for Health Statistics Vital Health Stat1998;13(139).
3. NCfHS CfDCaP. Number (in Thousands) of Hospital Discharges for Nontraumatic Lower Extremity Amputation with Diabetes as a Listed Diagnosis, United States, 1988–2009. 2012.
4. Dillingham TR. Limb amputation and limb deficiency: Epidemiology and recent trends in the United States. Southern Medical Journal2002;95(8):875-83.
5. Parker SE, Mai CT, Canfield MA, Rickard R, Wang Y, Meyer RE, Anderson P, Mason CA, Collins JS, Kirby RS, Correa A. Updated national birth prevalence estimates for selected birth defects in the United States, 2004-2006. Birth Defects Research Part A: Clinical and Molecular Teratology2010;88(12):1008-16.
6. Fisher ES. Disparities in health and health care among medicare beneficiaries. Dartmouth Atlas Project Report Commissioned for the Aligning Forces for Quality Program2008.
7. Lefebvre K. Disparities in amputations in minorities. Clinical Orthopaedics and Related Research2011;469(7):1941-50.
8. MacKenzie EJ. Health-Care Costs Associated with Amputation or Reconstruction of a Limb-Threatening Injury. The Journal of Bone and Joint Surgery (American)2007;89(8):1685.
It is not the intention of the Amputee Coalition to provide specific medical or legal advice but rather to provide consumers with information to better understand their health and healthcare issues. The Amputee Coalition does not endorse any specific treatment, technology, company, service or device. Consumers are urged to consult with their healthcare providers for specific medical advice or before making any purchasing decisions involving their care.
National Limb Loss Resource Center, a program of the Amputee Coalition, located at 900 East Hill Ave., Suite 390, Knoxville, TN 37915 | 888/267-5669
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