The Power of You. Amputee Coalition 2020 National Conference

2020 National Conference Program

All times listed are Eastern Standard Time (EST).

12 – 1 p.m.
Exhibit Hall Time


1 – 1:45 p.m.
General Session
Pain Management and Innovations
Linda L. Porter, Ph.D. , Director, Office of Pain Policy, National Institute of Health
Marc M. Boutin, JD, Chief Executive Officer, National Health Council
Leslie Tive, Pfizer
Dan Igaszewski, Chief Policy and Programs Officer. Amputee Coalition
Hear from experts on innovations in pain management, the research that impacts bringing treatments forward, and the work being done in the public and private sector to improve pain management techniques and treatments.


1:45 – 2:15 p.m.
Break


2:15 – 3 p.m.
Improving Well-Being Program and Resources
Health and Wellness
Mahesh Mansukhani, CEO WillowWood
Caitlyn Hurley, Manager, National Limb Loss Resource Center
Andrew Call, Specialist, National Limb Loss Resource Center
For years, the Coalition has invested in mental health and well-being — not only important in the limb loss recovery and rehabilitation process, but also in our day-to-day lives. Join this session to hear about a wide variety of resources from the Amputee Coalition and the National Limb Loss Resource Center® that support mental well-being.

From our peer support programs to Community Connections to the Improving Well-Being Program, this session will feature the help and support available to people with limb loss, family members, and patient care providers. Join us to share how you’re doing and what you need. Learn more about how we can help each other, and get great information from a former board member (and current innovator company CEO) and as well as the NLLRC staff.


2:15 – 3 p.m.
Let’s do it!!! …be active and stay active after an amputation.
Health and Wellness
Alba Seda-Morales, PT, DPT, Doctor of Physical Therapy, Moss Rehab Amputation and Prosthetics Program
This presentation will focus on how to stay active at all stages after an amputation. We will have a workshop for goal setting, provide examples and options for all activity levels and practice techniques that will set you up for success.


2:15 – 3 p.m.
Community Living
How to Tell Your Story
Carol Blymire, MS, Strategic Communications Consultant & Professor, Georgetown University
Kelsea Wilkerson, MPS, Communications Strategist, Amputee Coalition
Knowing how to tell your personal story will help you better connect with others in the limb loss and limb difference community. In this session, you will learn how to tell your story in a concise, compelling way that has impact and makes you memorable. We’ll focus part of the session on telling your story to policymakers and elected officials so they can learn more about your experience and how they can be supportive of people living with limb loss and limb difference.


2:15 – 3 p.m.
Community Living
Science Can’t Move Forward Without You: The Benefits of Participating in Research Studies
Sheila Clemens, PT, MPT, PhD, Research Health Specialist, Miami VA
Ingacio Gaunaurd PT, PhD, MSPT
This session will provide attendees with information on the benefits of participating in research in the field of prosthetics and rehabilitation of people with amputations. Presenters are current researchers who have performed studies at Amputee Coalition conferences, and they will discuss the impact participants have on science affecting the entire limb loss population.


2:15 – 3 p.m.
Health and Wellness
Upper-Limb Amputation:  New Research Findings from the Department of Veterans Affairs
Joseph B. Webster, MD, Associate Professor, Virginia Commonwealth University
Linda Resnik, PT, PhD, FAPTA, Professor, Brown University’s School of Public Health
This session will cover the performance effectiveness of prosthetic components that are available to individuals with upper-limb loss. Attendees will learn about new prosthetic technology including the LUKE arm, and hear about new research findings that examine the advantages, disadvantages, and performance of this newer technology.


2:15 – 3 p.m.
Health and Wellness
Newest Treatments for Neuroma and Phantom Pain
Brian Monroe, CPO, Clinical Specialist
Residual limb pain affects people with limb loss with phantom limb pain rates as high as 85%. This affects both prosthetic wear and quality of life. The goal of this session is to present the various treatments available for pain management including targeted muscle reinnervation, therapy modalities, and pharmacology.


2:15 – 3 p.m.
Youth and Family
Tips and Tricks for Children who Wear Upper- and Lower-Limb Prostheses
Rebecca Hernandez, CPO, Certified Prosthetist Orthotist, Children’s Healthcare of Atlanta
Richard Welling, CPO
An open discussion with a panel of experts to share tips for young prosthetic users and their families.


2:15 – 3 p.m.
Health and Wellness
Skin Wounds: Between the Trauma and Getting to the Doctor – Strategies for Self-Managing Skin Problems
Edward Nathan, PhD, CPV, Adjunct Faculty, Ithaca College
Kara Couch, CRNP, MS, NP, Wound Healing and Limb Preservation Center at George Washington University Hospital
In this session, we will discuss strategies for preventing and getting ahead of skin problems. We’ll look at factors that contribute to skin irritation which can develop into lesions, and look at several over-the-counter and prescription products to self-manage a variety of skin problems.


2:15 – 3 p.m.
Health and Wellness
Prepared, Proactive, and (almost) Pushy; Learning to Build and Communicate with Your Healthcare Team to Reach Your Potential
Victoria Powell, RN, CCM, LNCC, CNLCP, CLCP MSCC, CBIS, CEASII
Denise Hoffmann, RN, Member, Amputee Coalition’s Scientific and Medical Advisory
In this session, we’ll talk about self-advocacy, communicating with providers, and obtaining appropriate resources to get the best out of life, as well as the importance of a multi-disciplinary approach to care. As part of the Amputee Coalition’s First Step Workforce group, Victoria and Denise have created templates to assist in communicating with providers. They will showcase the forms as well as share tips on how to build a care team.


2:15 – 3 p.m.
Health and Wellness
What Can We do about Prosthetic Odor?
Christopher Born, Md, FACS, FAAOS, Intrepid Heroes Professor of Orthopaedic Surgery, Brown Univeristy
This talk will explore some of the sources of odor associated with prostheses and different strategies for odor reduction and prosthetic hygiene.


3 – 3:15 p.m.
Break


3:15 – 4 p.m.
Health and Wellness
An Update of Early Clinical Results from Agonist-Antagonist Myoneural Interface (AMI) Amputations
Matthew J. Carty, MD, Plastic Surgeon, Brigham & Young Women’s Hospital
The early results of procedures involving AMI construction will be reviewed, including clinical, functional and psychosocial outcomes. This will include progress to date on patients who have undergone BKA AMI (Ewing) procedures, AKA AMI procedures and eOPRA/AMI procedures.


3:15 – 4 p.m.
Community Living
Dating and Intimacy
Lisa Strube, Couples, Relationship, and Sexuality Therapist
The loss of a limb does not mean the loss of your need for intimacy or your need to connect with others.  This session will discuss the various elements key to healthy intimate connections.


3:15 – 4 p.m.
Health and Wellness
Get Fit and Find Your Tribe
Melissa DeChellis, Research Coordinator, Spaulding Rehabilitation Hospital
Trevor Bunch, NASM Certified Personal Trainer
This session is for community members post-rehabilitation.  We’ll discuss the physical and psychosocial benefits of group adaptive functional fitness and wellness programs. We’ll review data from Adaptive Functional Fitness, a six-week fitness and wellness program for those with physical disabilities.


3:15 – 4 p.m.
Career
Physical Differences, Employment, and the Law
Gregory J. Smith, Administrative Judge, U.S. Merit Systems Protection Board
This is a concise summary of federal laws governing the intersection of employers and people with disabilities. This presentation includes a practical discussion of how to apply, compete, interview, accept and retain employment. Learn the secret top 10 dos and don’ts for employers and employees when working with people with disabilities.


3:15 – 4 p.m.
Health and Wellness
Excessive Sweating: Can We Tackle This Problem?
Colby Hansen, MD, Associate Professor of Physical Medicine and Rehabilitation, University of Utah
Residual limb sweating is a common skin problem facing amputees. It contributes to secondary skin problems such as rashes and may cause problems with prosthetic fit and function. This session will highlight these issues and address what is known about treatment guidelines and options. Learn what treatments you can talk to your doctor about.


3:15 – 4 p.m.
Health and Wellness
Knowing your K Level and Why It Matters!
Emma Beisheim, PT, DPT, PT & Researcher, University of Delaware
All adults with lower-limb loss are assigned a K level, which is based on the ability to stand, walk, and move with a prosthesis. As K levels influence decisions related to prosthesis prescription, it is important to understand the key components that go into K level assignment, and how they may change over time. This presentation will educate attendees on the five K levels, describe the type of prostheses covered for each K level, and outline the abilities and activities required for each K level assignment.


3:15 – 4 p.m.
Community Living
Setting Up Your Home for Success – Now and Later
Inger Brueckner, PT, Specialty in Amputee Rehabilitation
Victoria Powell, RN, CCM, LNCC, CNLCP, CLCP MSCC, CBIS, CEASII
While there is no single “right” answer to how to set up your home, this session will cover several options. Attendees will learn simple to more complex home modifications required initially to improve safety and prevent injury and, later, to minimize secondary conditions. They will learn the Universal Design concept and understand how to find cost-effective smart home technologies to improve independence. The session will review successful modifications from many different people with multiple levels of limb loss. Safety, durability, cost, and feasibility all are important. Sometimes, it only takes that one good idea to make life easier.


3:15 – 4 p.m.
Health and Wellness
My Prosthesis is Working Great. What About My Other Leg?
Chris A. Toelle, CO, LO, East Zone Specialist, Hanger Clinic
Many people with limb-loss are experiencing increasing challenges with their sound-side leg compared to their amputated leg. This course will discuss various treatment options for pain, overuse/stress, diabetes, foot drop, trauma and overall leg weakness on the non-prosthetic side.


3:15 – 4 p.m.
Youth and Family
Bullying and Discrimination
Catherine Garcia-Brake, MSSW/MDiv, LCSW, Social Worker, Gwinnett County Public Schools
Mary Julia Garcia-Brake, Volunteer, Dream Quest Therapeutic Riding

In this session, experts will talk about bullying and discrimination.


3:15 – 4:30 p.m.
Health and Wellness
Bilateral Above-Knee Workshop (BAKA)
Kevin Carroll, CPO
Nancy Snyder, CPO
Yvonne Llanes (bilateral limb loss)
Cameron Clapp (trilateral limb loss)
Pedro Pimenta (quadrilateral limb loss)
Join Kevin Carroll (Dolphin Tale prosthetist) and several patients to see what’s possible with above-knee bilateral amputations.  Kevin and a team of patients will discuss how to improve your mobility while providing real-life examples for your inspiration and guidance.


4 – 4:30 p.m.
Quick Fire Question Rounds
These sessions will be an opportunity to ask questions you may not have had a chance to ask earlier in the week. Join our panels, and ask anything on that topic!

  • Assistive Technology
  • Mental and Physical Health
  • Lifespan
  • Pain Management
  • Self-Advocacy

4:30 – 5 p.m.
Closing Ceremony
Mary Richards, President & CEO, Amputee Coalition
Dan Ignaszewski, Chief Policy and Programs Officer, Amputee Coalition


5 – 6 p.m.
Closing Event
Join us for some fun and one more round of networking, as we wrap up the first-ever virtual National Conference!


ANY-TIME SESSIONS

Get Fit with Yoga: A Body, Mind and Spirit Workout
Marsha Danzig, MEd, RYT 500
Enjoy yoga any time during the conference with one of the three recorded yoga sessions by Marsha Danzig.  Find the follow along session that is right for you and move your body in flow to the music. This is yoga for all bodies! Danzig is a certified instructor who will demonstrate sequences with node modifications to accommodate skill level and level of limb loss. Bring your breath and smile.

Exhibit Hall
You will be able to access the exhibit hall at any time during the conference.  However, to ensure you don’t have to choose between a session and chatting with exhibitors, we have established unobstructed exhibit hall hours.  Make sure to visit exhibitors during those times to chat with the team at the booth and ask questions about products and services. You will also be able to set up appointments with exhibitors and incorporate those appointments in your daily schedule!