Amputee Coalition 2019 National Conference

Program

Pre-Conference · Wednesday, July 24, 2019


8am-5pm

Encompass Health Amputation Rehabilitation Continuing Education Course

Allison Fulton Wood, MOT, OTR/L
Anne Street PT/CPO
Conference Room 16

For healthcare providers only.

This course is a full one-day, comprehensive, interactive course, designed for clinicians who work with patients with limb loss. The emphasis of the course will be on rehabilitation and management of patients with lower- and upper-limb loss. Continuing education units are available for physical and occupational therapists and other healthcare providers. Course is included in full professional registration. Fee for course only is $150.


8am-5pm

Peer Visitor Training

Conference Room 11 & Conference Room 13-14

In order to participate in this class, an application for CPV course must have been submitted and approved prior to the start of the Conference.


12pm-5pm

Support Group Leader Summit

Salon E


3pm-6pm

Registration Open

Ballroom Foyer – Third floor


4pm-6pm

Canadian Connection Meet & Greet

Conference Room 7

AmpUnity Canada and the Amputee Coalition of Canada welcome all Canadian attendees for the first-ever Canadian Meet & Greet – an opportunity to connect, network, advocate and work together on further establishing support in our amputee community. We are excited to have some of Canada’s driving forces share this goal and join us. We are stronger together!


6pm-8pm

Osseintegration Meet-Up

Conference Room 7

The Amputee Coalition would like to welcome osseointegration recipients to attend a pre-confrerence Meet & Greet hosted by OI enthusiasts Lee & Nikki. While there are plenty of opportunities during the conference to learn about the specific procedures and ask questions, this is a chance for those who have had the surgery an opportunity to meet, share experiences and add to the already present support network. This meet-up will take place after the Canadian Connection Meet & Greet in the same Conference Room 7 from 6-9pm on July 24th. (visit the event page on Facebook to learn more – https://www.facebook.com/events/421076495111903/)

 

Thursday, July 25, 2019


8am-6:30pm

Registration Open

Ballroom Foyer – Third floor


8am-9am

Get Fit With Yoga: A Body, Mind and Spirit Workout

Marsha Danzig, M.Ed, RYT 500
Conference Room 13-14

Start your day by moving your body in flow to music and yoga for all bodies. Come experience the benefits of engaging in yoga practice. Certified instructors will lead participants thought a yoga sequence and assist with node modification to accommodate skill level and level of limb loss. Bring your breath and smile. Namaste!


Bilateral Life Camp

Randy Richardson, ABC-CPA, RPA
Conference Room 12

Bilateral Life Camp is a peer-driven interactive workshop for bilateral above-knee amputees who want to improve their daily function and mobility. The Bilateral Life Camp will take place throughout the day in various locations around the hotel. Each morning we will meet in the room for participants to set goals and discuss individual mobility challenges and solutions. This session is an all-day workshop with peer-to-peer activities designed to explore the possibilities of being a high-functioning prosthetics user in “real world” situations. Topics include: desensitization techniques, stretching, walking down ramps, hills, stairs, curbs, navigating uneven terrain, activity-specific prosthetic solutions, and managing volume change.


First-Time Attendee Orientation

Salon C-D

If this is your first conference, join us for scheduling guidance, insight and a warm welcome!


9:15am-9:45am

Buddy Meet-Up

Salon C-D

If you requested a conference buddy, this is a chance to meet them in person!


10am-12pm

Opening Ceremony & General Session

Salon E-F

Join us as we kick off the 2019 National Conference with a little San Antonio flair! This is the perfect way to find out what the week has in store for you!


12pm-1pm

Lunch

Ballroom Foyer


1pm-2pm

Ready Player One: Accessibility Strategies to Enable the Single or Bilateral Upper-Limb Amputee to Engage in Gaming: Part 1

Erik S. Johnson, MS, OTR/L; Kaitlyn Jones, MS, OTR/L
Conference Room 1-2

Upper-limb amputees often find that playing video games is one of the things they want to be able to engage in. This session will introduce the endless possibilities to make gaming accessible for everyone and include the process in which custom controllers and rigs are set up to enable amputees to play. It will include case studies that show unique and custom configurations that have successfully reintegrated amputees into the gaming world. This session will also discuss the importance of leisure engagement and how it leads to psychosocial well-being and therapeutic success. After the session, join Erik and the Warfighter Engaged team and put the adaptive controllers to the test!


Living With Your Level of Limb Loss Sessions

Each session in this series is tailored to the unique needs of individuals with particular levels of limb loss or limb difference.  Each session will give an overview of rehabilitation issues and unique considerations for your level of limb loss, followed by ample time for discussion.  Please bring your questions!


1pm-2pm

Above-Knee

Conference Room 17-18


Below-Knee

Ed Nathan; Terri Ross
Salon C-D


Hemipelvectomy/Hip Disarticulation

Conference Room 10


Caring for the Caregiver

Eva Baker
Conference Room 13-14

** Please note: This session is for caregivers only.


2:30pm-3:30pm

Complex Limb Loss

Conference Room 10


Pediatric

Jordan Reeves; Jen Lee Reeves
Conference Room 12


Bilateral Below-Knee

Susan Whalen
Salon B-F


Lower-Limb People Who Don’t Use Prostheses

Bethany Nelson, PT, DPT
Conference Room 9


2pm-4pm

Ready Player One: Part 2 – Game Time!

Erik S. Johnson, MS, OTR/L; Kaitlyn Jones, MS, OTR/L
Conference Room 3-4

You heard about it, now it’s time to put adaptive game controllers to the test with the Warfighter Engaged team!


2:30pm-3:30pm

Back Pain: A Unique Approach to a Complex Problem

Inger Brueckner, PT
Conference Room 1-2

This talk will review the anatomy and physiology of back pain. Despite medical advancements, back pain continues to be a significant problem for a large number of people with limb loss. Understanding back pain can help you communicate with medical providers when seeking treatment. There are many ways to address back pain, and it is helpful to have several to choose from since every person is unique. Participants will be shown exercises and given tools to help address pain. For clinicians, this talk will cover noninvasive interventions developed in a multidisciplinary team that can target the changes and challenges in functional movement created by upper- and lower-limb loss.


The Impact of Amputation on the Family Caregiver

Peter Rosenberger
Conference Room 13-14

A caregiver for over 30 years for his wife, Peter Rosenberger understands the caregiver’s journey, and is on a mission to strengthen the family caregiver. Through his books, music, and weekly radio show heard on more than 200 stations, Peter demonstrates an unswerving commitment to those who put themselves between a vulnerable loved one and even worse disaster. This presentation provides caregivers with insight into their own journey while clearly illuminating a path of safety for them. Once on that path, the caregivers can make healthier choices for themselves, and can better help their loved one in dealing with limb loss.

** Please note: This session is for caregivers only.


2:30pm-5pm

Bilateral Above-Knee Mobility Clinic

Kevin Carroll, MS, CP, FAAOP(D)
Salon E

This is a specialized, interactive clinic for individuals with bilateral above-knee amputations. The primary focus of the session is on identifying the best approach for individuals with bilateral above-knee amputations to be successful, full-time prosthesis users. However, nonprosthesis users will also benefit from this session by learning general information to enhance their mobility and functional ability, and networking with others who have this level of limb loss.


4pm-5pm

Balance for Everyone: What Can Affect Balance, and How to Improve It

Inger Brueckner, PT
Conference Room 1-2

This talk will review all of the pieces that come together to help you balance. It will specifically address the effects of limb loss and limb difference. The inner ear, or vestibular system, can be impacted by aging, medication, diabetes, hypertension, bed rest, altered posture and many medications. Inger Brueckner is a physical therapist who has specialized in vestibular therapy and balance since 1995 and has been working with limb loss and limb difference since 2005. She will share her experience and discuss ways to improve balance, reduce falls, when to seek help and the medical specialties that can help. For clinicians, this talk will also review specific treatment techniques that impact balance in limb loss patients and how to get the most out of your treatment sessions.


Complications and Quality of Life of Osseointegration Prosthesis in Patients With Transfemoral Amputation: A Five-Year Follow-Up Study

Hendrik Van de Meent, MA, NCC, LPCC
Salon B-F

Dr. Henk van de Meent is a rehabilitation physician who is intensively involved in the care of people with upper- and lower-limb loss/difference. He introduced osseointegration as a new surgical technique in the Netherlands in 2008. Together with his rehabilitation team, Dr. Henk van de Meent developed a standardized, multidisciplinary, osseointegration rehabilitation protocol and improved osseointegration implant design and osseointegration prosthetic components. Over the years, the group prospectively followed patients. The aim of this study is to report the five-year follow-up for safety, prosthesis wearing time, and quality of life outcomes of patients with femoral osseointegration implants.


Common Orthopedic Conditions That Can Develop as a Result of Walking With a Prosthetic Leg

Heather Carpenter, MSPT, ATC; Shawn Lessard, PTA, BS
Salon C

As an amputee walking with a prosthetic leg on a daily basis, orthopedic conditions can develop over time. We will present common conditions, including back pain, sacroiliac joint-specific pain, hip pain, and knee pain that can develop on both the amputated and the sound side. In this presentation, we will present common conditions, give guidelines for when to seek treatment and how to identify a knowledgeable physical therapist, and focus on prevention through exercise and wellness, in addition to good prosthetic alignment.


Proprioception: What Is It, and Why Do We Care?

Cosi Belloso, MSPT
Conference Room 12

Cosi Belloso, MSPT, is a physical therapist and amputee specialist with over 15 years experience. She is the owner of an amputee-only private practice and the host of “Cosi Talks.”  “Cosi Talks” is a live Facebook show (Wednesdays at 8:30pm EST) where folks can ask questions about recovery from limb loss. This presentation will cover the importance of proprioception while learning to use a prosthesis, and how it can be improved. There will be a live “Cosi Talks” show afterwards, where the audience is welcome to ask questions regarding recovery from limb loss.


Recreation Therapy: How to Adjust Beyond Chronic Illness and Amputation – Get Active, Get Engaged, Stay Engaged

Anne Wieland, CTRS, MHA
Salon D

This lecture will include examining barriers to chronic illness and limb loss. When “adjusting” to a chronic illness such as an amputation, there is no surrender involved, only growth: the creation of new options through new means. This lecture will empower participants to take charge of treatment and become partners in their self-management of their chronic illness and limb loss. Most importantly, this interactive lecture will identify “outside the box therapies,” adaptive sports and resources that are affordable (free, in some cases) that will help to ensure that individuals get active, get engaged and, most importantly, stay engaged.


Ready, Set, Get Matched! Introducing Self-Matching through Our Mobile App

Alyssa Hulka, Tonya Osborne-Simpson and Tim Winslett
Conference Room 9

The Amputee Coalition’s Support & Outreach Mobile App now enables those living with limb loss/limb difference and caregivers to request resources, connect with the Coalition, and self-match with a peer visitor and request a visit today! Visits can take place remotely via secure text and video and are reported through the app. CPVs and community members can benefit from attending this session.


Stay in the Socket: The Key to Long-Term Prosthetic Use Without Pain

Alicia White, ATC, PT, DPT
Conference Room 13-14

Long-term prosthetic wear has the potential to create chronic pain issues if the device is not used appropriately. With a well-fitting prosthesis and proper education, there is no reason why long-term use would cause chronic pain. During this course, prosthesis users and clinicians will learn methods to decrease chronic pain, improve symmetry and promote long-term prosthetic use. Wear comfortable clothing, as there will be movement-based opportunities to learn.


5:15pm-6:15pm

First Things First: A Guide to a Safer Landing During a Fall

Chris Doerger, PT, CP
Salon E

When someone asks you if you have fallen down since you started wearing a prosthesis, what is your answer?  For most of us, the answer is YES!  Falls are a scary and embarrassing fact of life for individuals with limb loss.  Come to our workshop and learn more about falls. We want to teach you how to minimize or avoid injuries during a fall and how to recover after a fall. This program will provide you the tools to be prepared for these situations and direct others in how to assist you. All levels of ability are welcome! This presentation is brought to you by OPAF.


Taking Control: Understanding K-Levels and How to Improve Your Access to Prosthetic Components

Heather Carpenter, MSPT, ATC; Shawn Lessard, PTA, BS
Salon C

As a person with limb loss/difference, you are assigned a K-level; this level allows you access to prosthetic components that are within this classification. The K-level that you are assigned can change over time, based on your ability to improve. This session will educate the attendee on the four different levels and give a framework for strategies of abilities/activities to improve to work toward the next K-level and therefore provide access to progressed prosthetic components.


Get in the Zone: Biofeedback Use in Recreation Therapy Programs
Heather Carey, RT; Rebecca Lopez, RTA

Salon B-F

Patients often find themselves spending a significant amount of time, attention and money treating residual conditions associated with amputation. Chronic stress can quickly lead to a variety of other health-related issues if left untreated. Stress impacts all aspects of your life, especially the ability to participate in an active leisure lifestyle. In this session, you will learn how biofeedback is used to “Get in the Zone” to increase physical and mental resiliency, to lessen the effects of chronic stress, and to identify indicators of future health problems. This session will also discuss recreational opportunities that promote physical self-regulation and increase the patient’s ability to understand, identify and manipulate the mind-body connection.


How to Pass an Insurance Fairness for Prosthetics Law in Your State

Brenda Novak and Herb Kolodny – Founders of Connecticut Amputee Network (CAN)
Conference Room 3-4

Two Connecticut amputees, Herb Kolodny and Brenda Novak, whose efforts were instrumental in passing the first state insurance fairness law since 2013, offer a practical guide for amputees who are pursuing legislative change in their states. They discuss both strategic and tactical recommendations, and share insights from their personal experience.


Mental Health: Emotional Well Being – Living Life to the Fullest

Carol A. Miller, PT, PhD, GCS
Salon D

The immediate visible effect of limb loss/difference can make it easy to ignore the emotional impact this journey can have on an individual as well as their loved ones.  Learn how to live life to the fullest by taking simple steps toward whole-self wellness.


Help for Caregiver Burnout

Mary Armburst
Salon 13-14

This session will take a look at how caregiver burnout manifests itself and discuss ways caregivers need to learn to take time for themselves, mentally, physically, emotionally healing themselves.

** Please note: This session is for caregivers only


6:30pm-7:30pm

Friends of Bill W. Meet Here

Conference Room 8


6:30pm-8:30pm

Silent Auction & Exhibit Hall Opening Reception

Salon G-M


8:30pm

Limb Loss Cancer Meet-Up

Tracey Stahl & Janet Panoch
Conference Room 17-18

Have you experienced limb loss due to cancer?  Join us for the inaugural Amputee Cancer Meet-Up, organized by conference attendees. This unofficial event will be hosted by osteosarcoma survivor Tracey Stahl and caregiver/parent advocate Janet Panoch.

 

Friday, July 26, 2019


7:15am-8:30am

Breakfast

Ballroom Foyer


8am-6:30pm

Registration Open

Ballroom Foyer – Third floor


8am-9am

Get Fit With Yoga: A Body, Mind And Spirit Workout

Marsha Danzig, M.Ed, RYT 500
Conference Room 13-14

Start your day by moving your body in flow to music and yoga for all bodies. Come experience the benefits of engaging in yoga practice. Certified instructors will lead participants thought a yoga sequence and assist with node modification to accommodate skill level and level of limb loss. Bring your breath and smile. Namaste!


Bilateral Life Camp

Randy Richardson, ABC-CPA, RPA
Conference Room 12

Bilateral Life Camp is a peer-driven interactive workshop for bilateral above-knee amputees who want to improve their daily function and mobility. The Bilateral Life Camp will take place throughout the day in various locations around the hotel. Each morning we will meet in the room for participants to set goals and discuss individual mobility challenges and solutions. This session is an all-day workshop with peer-to-peer activities designed to explore the possibilities of being a high-functioning prosthesis user in “real world” situations. Topics include: desensitization techniques, stretching, walking down ramps, hills, stairs, curbs, navigating uneven terrain, activity-specific prosthetic solutions, and managing volume change.


8am-10am

First Swim

Mabio Costa
Hotel Pool – Fourth floor

First Swim will introduce participants to swimming with their level of limb loss/difference.

Participants will learn skills and activities to help them swim and stay active.


8:30am-11am

Exhibit Hall Open

Salon G-M


8:30am-12pm

Adaptive Sport Interactive Expo

Salon B-F

Interested in adaptive cycling or going back to the shooting range? Have you ever wondered about aerial arts but didn’t know if it was accessible to you? Join us for an opportunity to see a wide range of adaptive recreation activities and talk with people to find out more about ways to get involved in activities you love. In addition, Erin Ball, a bilateral below-knee amputee who was a circus artist both before and after her accident, will do an aerial silks demo just before noon.


9am-4pm

Gait Analysis Clinic and Fall Prevention Workshop

Carol Miller, PT, PhD, GCS; Marleena Reif, PT, DPT; Bethany Nelson, PT, DPT
Salon E

Physical therapists work one-on-one with participants to evaluate their mobility. Receive hands-on education on proper muscle engagement to help improve your balance and walk with a smoother gait. Space is limited; clinic registration is available at the Amputee Coalition information desk.

** Please note: Clinicians do everything they can to see everyone who has an interest in attending.


9:30am-10:30am

Start a Local Amputee Group: Begin, Grow & Maintain

Juanita Mengel, RN, CPV trainer, Amps4Ohio, Inc. amputee group leader & founder
Conference Room 12

In this session, you will gain knowledge on how to start a limb loss support group. If you have a group, you will learn how to grow and maintain your group by proven strategies, fresh ideas and unique tips from an established support group founder and leader. We will discuss social media, events, adaptive recreation, speakers, CPVs and community involvement, followed by an open discussion.


What Are the Real Functional Differences Between the Various Myoelectric Hands and Hooks?

Chris Lake, L/CPO, FAAOP(D); Bambi Lombardi, OTR/L; Amy Todd, MS, OTR/L, CHT
Conference Room 3-4

This course will identify and demonstrate the functional benefits of the different myoelectric and externally powered hands and hooks used by the person with upper-limb amputation/limb difference. This will help the end user determine the best terminal device choice for their functional needs. This course will be taught by a prosthetist, two occupational therapists and several patient advocates, using a variety of terminal devices. The benefits of therapy will also be discussed.


Establishing Inter-Professional Relationships to Enhance Care in the Limb Loss Population

Alicia White, ACT, PT, DPT
Conference Room 1-2

This course will provide a better understanding of clinical roles within the limb loss profession. It will provide methods for improving communication between providers and give individuals with limb loss tips to enhance the teamwork between their clinicians.


Differentiating Pain and Its Impact on People With Amputations

Anne Wieland, CTRS, MHA
Conference Room 13-14

This lecture will examine multiple sources of pain for people with amputations (including phantom pain and phantom sensation).  The attendee will understand the biopsychosocial model of pain. The different interventions available to manage pain will be explored (focus will be on teaching nonpharmaceutical interventions). Participants will be taught guided imaginary, deep breathing, progressive muscle relaxation, and other distraction techniques to help manage their pain level. This lecture will explore the importance of communicating effectively with healthcare providers about pain. This lecture will discuss the effects of chronic pain as it can relate to depression and a person’s overall mental health.


The Secret to Prosthetic Success

James Young, CP, LP, FAAOP
Salon D

The presentation will outline how to prepare for optimal outcomes regarding prosthetic use. We will discuss roles and responsibilities for various rehabilitation team members, accountability, and realistic goal-setting and assessment. I am a transfemoral amputee who has dedicated the last 30 years of my life to becoming a peer-recognized expert in the area of lower-limb prosthetics.


Skin Wounds: Between the Trauma and Getting to the Doctor – Strategies for Self-Managing Skin Problems

Ed Nathan, PhD, CPV
Conference Room 17-18

Between developing a skin problem and seeing a medical professional, there may be a need to self-manage the problem. This workshop offers practical strategies for self-managing minor skin problems (small blisters, irritation, etc.), including special wound dressings and over-the-counter and prescription products to manage the problem.


Intro to Adaptive Fitness

Victoria Powell, RN, CCM, LNCC, CNLCP, CLCP, MSCCm CBIS, CEAS; Kym James, RN
Salon C

This session will focus on adaptations available for amputees to participate in functional fitness training in any common fitness center. Demonstration of common movement and how to adapt them for a particular limitation will be provided.


Roundtables

The following sessions are facilitated discussion groups designed to address issues about intimacy, confidence, self-esteem, dating, body image and other issues, challenges, and experiences that are helpful to living life, accessing support. Please only attend the session that is most appropriate for you.


10:45am-12pm

Men’s Roundtable

Travis Ricks
Salon D


Women’s Roundtable

Mona Patel
Conference Room 17-18


Children and Adolescents Roundtable

Ty Cox
Conference Room 3-4


LGBTQQIA Roundtable

Jennifer Wagner
Conference Room 1-2


Caregiver Roundtable

Carol Lewis
Conference Room 12


11:30am-1pm

Center for the Intrepid Tour

Join us for a private tour of the state-of-the-art CFI. Learn about technologies designed for rehabilitation, research, education and training. Meet with members of the team that work to maximize rehabilitation and reintegration. The CFI is an outpatient facility under the command and control of BAMC and specifically the Department of Orthopaedics and Rehabilitation.

**Due to space limitations and security requirements for this event, on-site registration will NOT be available and only guests who pre-registered prior to the start of the conference will be able to participate.**

Tour begins at 11:30am. Please arrive at 10:45am to check in and board the bus; departure will be at 11am sharp.


12pm-1pm

Lunch

Exhibit Hall Salon G-M


12pm-4:30pm

Exhibit Hall & Silent Auction Open

Salon G-M


1pm-2pm

Upper-Limb Prosthetics 101: Understanding Options and Building Your Care Team

Lisa Smurr, Walters OTR/L, MS, CHT
Conference Room 3-4

Those with upper-limb (UL) amputation benefit from a comprehensive team approach to rehabilitation. This presentation focuses on choosing the best team that promotes collaboration between the prosthetist and therapist in the provision of comprehensive UL prosthetic rehabilitation. This will include an overview of the six different UL prosthetic options, review pros and cons of each, and brief discussion of different terminal devices.


1pm-2:30pm

Pediatric Meet-Up

Hotel Pool – Fourth floor

The conference experience can be pretty intense for younger participants. Give them a little break and meet other families by the pool for this informal gathering.

**Adult Supervision Required**


1pm-4pm

Technology Sessions

Presentations from prosthetic manufacturers about their latest technologies. See pages 23-24 for descriptions and meeting room assignments.


2:30pm-4:30pm

Activities of Daily Living With Upper-Limb Difference

Lynsay Whelan, OT
Conference Room 12

This is an interactive session for individuals with upper-limb difference to learn how to accomplish activities of daily living (ADLs), with or without a prosthesis, and explore adaptive equipment. This session is led by Össur’s clinical team specializing in upper-limb technology. Meet peers and learn from each other in a relaxed, small breakout group environment.


2:45pm-3:45pm

TSA Security Screening

Donald A. Miano, Deputy Assistant Federal Security Director, San Antonio International Airport
Salon D

Planning a trip can be an exciting process as you eagerly await the opportunity to have some much-needed rest and relaxation, but it can also bring some anxiety. One of the obstacles before getting to your destination is navigating airport security. Join us for a presentation about the TSA Cares and Passenger Support Specialist Programs as well as screening requirements for mobility devices, exterior medical appartus’ and service animals and find out how to best prepare for this experience.


3pm-4:30pm

Center for the Intrepid Tour

Join us for a private tour of the state-of-the-art CFI. Learn about technologies designed for rehabilitation, research, education, and training. Meet with members of the team that work to maximize rehabilitation and reintegration. The CFI is an outpatient facility under the command and control of BAMC and specifically the Department of Orthopaedics and Rehabilitation.

**Due to space limitations and security requirements for this event, on-site registration will NOT be available and only guests who pre-registered prior to the start of the conference will be able to participate.**

Tour begins at 3pm. Please arrive at 2:15pm to check in and board the bus; departure will be at 2:30pm sharp.


3:30pm-4:30pm

First Dance

Adrianne Haslet
Salon C

OPAF’s First Dance gives participants a fun activity with a partner for balance, and gets you moving, dancing and socializing.  First Dance provides a great setting to meet others.


4pm-5pm

How to Start a 501(c)3 Nonprofit

Conference Room 8
Juanita Mengel, RN, CPV trainer, Amps4Ohio, Inc. amputee group leader & founder

In this session, you will learn the steps of how to become a registered 501(c)3 nonprofit from an established limb loss support group founder/leader. This presentation will provide easy steps to follow and an opportunity for questions in an open discussion.

Note: This presentation is for your edification only and not for legal use.


The Therapist Who Became a Client

David Welch, MA, NCC, LPCC
Conference Room 17-18

I once believed I was truly a trauma-focused therapist, experienced in providing trauma-focused cognitive behavior therapy, trauma resolution therapy and eye movement desensitization reprocessing (EMDR) therapy.  Academically, I knew what trauma does to the brain and body. However, when I lost my leg two years ago, I found out that the academic side does not always cooperate with the experiential side. Knowing what was happening, and why, did not stop it from happening. I had to become my own trauma therapy client. My pre-accident mental health training was just the tip of the iceberg in understanding the impact of trauma. This presentation will be a combination of lecture and discussion to help enable providers and clients to create a better bridge for those in crisis, especially new members of the amputee family.


Things to Consider When Choosing a Prosthetic Socket – Adjustability Might Be the Answer

Joshua Mullins
Conference Room 13-14

Having the right fit in your socket is critical to maintain optimal function and provide comfort. Traditional sockets do not have any mechanism for adjusting to volume changes other than adding and removing socks. If a limb does not experience uniform volume changes, poor-fitting areas result, which can lead to instability, irritation or skin breakdown. Having an adjustable socket can enhance the interface between socket and limb, eliminating these issues.  This lecture will highlight how adjustable sockets work, and the advantages they can provide for people with limb loss.


Core Stabilization for Individuals With Limb Loss

Daniel Lee, PT, DPT, GCS
Salon D

Living with limb loss is not an easy task. In fact, the stronger you can be, the less likely you will develop unwanted complications like low back pain, arthritis and falls. While exercise is the best medicine, not all exercises are created equal. During this guided session, you will learn how to use biofeedback to maximize your function. Open to caretakers, individuals with limb loss, and practitioners.


How Patients Can Help Doctors Help Patients

Danielle H. Melton, MD; Stephen Wegener, PhD
Conference Room 3-4

Being an active member of your healthcare team may be the single most important thing you can do to improve your health and function. You need to help the doctor help you. This interactive session with health providers will include information and a Q&A session covering topics such as: how to prepare for your healthcare visit, quick tips on talking with your doctor, seeking a second opinion, 10 key questions you can ask your healthcare team to improve your care, and how to clearly communicate your goals and choices.


4pm-6pm

The Giants of Osseointegration

Moderator: Solon Rosenblatt, MD and Jeff Cain, MD
Rickard Branemark, MD, PhD – Integrum
Munjed Al Muderis, MD – Osseointegration Group of Australia
Leigh Anne Lechanski, DPT – Department of Defense
Henk Van de Meent, MD – Osseointegration Group of the Netherlands
Salon B-F

Hear from the giants of osseointegration about changes they foresee in the field, complications with osseointegration, how complications are treated, and how we can make osseointegration safer and more viable for patients.


Prosthetic Factor Impacting Amputee
Gait – Interactive Clinic

Mac McClellan, CPO, LPO, FISPO, FAAOP
Conference Room 1-2

This is an interactive clinic that will allow participants to have their gait analyzed for potential alignment fit or other changes that may improve their ability to ambulate.


5pm-9pm

Alamo Outing, Sponsored by Össur

By invitiation only. See page 26 for details.


5:15pm-6:15pm

The Healing Journey

Herb Kolodny, co-founder, Connecticut Amputee Network
Conference Room 13-14

Using the analogy of Dorothy in the “Wizard of Oz” and her journey along the yellow brick road, the presentation translates this important medical study into more user-friendly language. It explains how we can feel whole again, even though our limb loss is permanent. The presentation will explain how the healing process resembles a journey.


6:30pm-7:30pm

Friends of Bill W. Meet Here

Conference Room 8


6pm-8pm

Exhibit Hall Happy Hour Reception/Silent Auction Closing

Salon G-M

Come enjoy games, food and beverages provided by exhibitors and sponsors. An Exhibit Hall game card drawing will take place, including a chance to win a full conference registration for a future conference! Must be present to win.

*Silent auction closes at 8pm. Please stop by the Silent Auction Area on Saturday to check your bids and pick up your items

 

Saturday, July 27, 2019


7:15am-8:30am

Breakfast

Ballroom Foyer


7:30am-9:30am

Advanced Skills Water Workshop

Alan Voisard and Alison Terry
Hotel Pool – Fourth floor

Join the Challenged Athletes Foundation for advanced swimming instruction to improve your swimming and maximize your performance in the water. This workshop is open to participants who have basic swimming ability but wish to hone their technique to become more efficient.


8am-1pm

Registration Open

Ballroom Foyer – Third floor

Last chance to purchase gala dinner tickets!


8am-9am

Get Fit With Yoga: A Body, Mind and Spirit Workout

Marsha Danzig, M.Ed, RYT 500
Conference Room 13-14

Start your day by moving your body in flow to music and yoga for all bodies. Come experience the benefits of engaging in yoga practice. Certified instructors will lead participants thought a yoga sequence and assist with node modification to accommodate skill level and level of limb loss. Bring your breath and smile. Namaste!


Bilateral Life Camp

Randy Richardson, ABC-CPA, RPA
Conference Room 12

Bilateral Life Camp is a peer-driven interactive workshop for bilateral above-knee amputees who want to improve their daily function and mobility. The Bilateral Life Camp will take place throughout the day in various locations around the hotel. Each morning we will meet in the room for participants to set goals and discuss individual mobility challenges and solutions. This session is an all-day workshop with peer-to-peer activities designed to explore the possibilities of being a high-functioning prosthesis user in “real world” situations. Topics include: desensitization techniques, stretching, walking down ramps, hills, stairs, curbs, navigating uneven terrain, activity-specific prosthetic solutions, and managing volume change.


8am-10am

Krav Maga: Adaptive Self-Defense

Conference Room 1-4

Krav Maga is a military self-defense and fighting system developed for the Israel Defense Forces (IDF) and Israeli security forces. The original concept of Krav Maga was to take the most simple and practical techniques of other fighting styles and to make them rapidly teachable to military conscripts. In this adaptive session, instructors will teach you how to adapt moves and feel more empowered.


9am-1pm

Exhibit Hall Open

Salon G-M


9am-11pm

Junior Mobility Clinic

Colleen Patricia Coulter, PT, DPT, PhD, PCS; Alicia White, ATC, PT, DPT
Conference Room 17-18

This is an opportunity for children with limb loss or limb difference to come together for fun and play. Pediatric rehabilitation specialists will use exercise and games designed to enhance mobility skills and running. Suggested for ages 3-11 years.

**Will be rolled into the larger mobility clinic depending on final session size


9am-9:30am

Registration for Walking and Mobility Enhancement Clinic

Outside Salon E

All participants attending the Walking and Mobility Enhancement Clinic and the Running and High-Level Performance Clinic must check in at the registration table for these events. Participants will need to check in to receive their lunch ticket – lunch is only provided to participants. This is also your last chance to register for the clinic, based on availablity.

**Participants should be able to stand unassisted for prolonged periods of time. If you are unable to meet this requirement, you are welcome to observe the clinic if space is available.**


9:30am-12pm

Ӧssur Walking and Mobility Enhancement Clinic

Bob Gailey, PhD, PT
Grand Ballroom Salon A-E

Join our team of gait training professionals for a fun morning of learning to walk better and improving your general mobility. For 17 years, the Mobility Clinics have offered Amputee Coalition members and physical therapists the opportunity to learn how to improve prosthetic mobility. The session includes a walking assessment, balance training, and gait instruction.

**Participants should be able to stand unassisted for prolonged periods of time.**


9:30am-10:30am

Regaining Control of My Upper Extremities

Jodie O’Connell-Ponkos; Glen Lehman
Conference Room 13-14

This session will offer different users’ perspectives on how Coapt’s pattern recognition enhances the lives of people with upper-limb loss.


Developing an Active and Individualized Self-Management Pain Plan After Limb Loss

Mariana Hinkel, PT, DPT
Conference Room 12

This presentation provides insight on the various pain mechanisms involved in post-amputation pain (PAP), and the best evidence-based interventions recommended to self-manage persistent PAP. The prevalence of persistent PAP, including phantom limb pain and residual limb pain, has been reported as high as 85 percent. Persistent PAP is a very difficult condition to treat. Despite the lack of one specific intervention to successfully eliminate the presence of persistent PAP, there is a growing body of scientific evidence and very specific treatment recommendations that have been shown to be effective to reduce pain levels and medication use, and to improve function, participation and quality of life. The presentation will provide a framework for attendees to develop an individualized self-management plan.


11am-12pm

It’s All About the Butt

Angela Morgan, PT, DPT, GSC; Margaret Wicinski Reynolds, PT, DPT, EdD, OCS, MTC, PCC, FAAOMPT
Conference Room 12

This presentation will focus on the importance of the activation of the gluteal region with gait, mobility and functional activities in the lower- and upper-limb loss/difference community. The gluteal muscles play an important role as an extender of the hip and low back stabilizer. Activation in isolation and in function of this muscle group will assist in daily living. This is important for normalizing and stabilizing gait, as well as socket comfort. Tactile and active techniques will be described and demonstrated for firing of the gluteal muscles for open and closed chain activities of daily living.


Amputee Support Groups: Why Amputees Join and Leave/Can Technology Enhance the Support Group Experience?

Ed Nathan, PhD, CPV
Conference Room 13-14

All support groups are not created equal. This workshop shares the results of a 2018 study that looked at why amputees join support groups, why they leave, why they might return and whether technology like VR can enhance the experience. Support group members and leaders can learn strategies to help improve the amputee support group experience.


Who Can Help Me Navigate This Medical Maze?

Victoria Powell, RN, CCM, LNCC, CNLCP, CLCP, MSCC, CBIS, CEAS
Conference Room 1-2

This presentation focuses on self-advocacy, communicating with providers, and obtaining appropriate resources in order to get the best out of life. Learn to speak up and get what you need and/or to obtain the necessary help in order to do so. This advocacy presentation addresses some common problems with insurance coverage.


How to Get Your Hospital Involved With the Amputee Coalition

Keith Canady, Amputee Coalition Hospital Program Coordinator
Conference Room 3-4


12pm-1pm

Lunch

Exhibit Hall/Salon G-M


1pm-2pm

Lower-Limb Loss and Low Back Pain: Causes, Impact and Treatment

Emma Beisheim, PT, DPT, MS
Conference Room 13-14

Up to 80 percent of adults with lower-limb loss experience low back pain, which can limit performance of daily activities. This presentation will (a) identify potential factors contributing to low back pain development among adults with lower-limb loss to improve awareness of areas for intervention and (b) provide strategies for addressing low back pain using stretching and exercises.


Partnering With Your Prosthetist for the Best Care

Lesleigh Sisson, CFom
Conference Room 3-4

In today’s healthcare environment, it is more important than ever for people with limb loss and limb difference to partner with their prosthetist to ensure a full understanding of payer (health insurance) policies, coverage, and documentation needs. This session will discuss: understanding your insurance policy on prosthetic devices; what to look for in your policy and when shopping for insurance; ensuring your physician and other healthcare providers are documenting what is needed in your medical record so you can access all available insurance coverage.


Osseointegration Patients’ Perspective

Elizabeth Bailey-Smith, Richard Cicero, Nicole Dant, Nikki Grace, Rachael Ulrich
Conference Room 17-18

You heard from the medical experts; now, come and join a panel of five OI recipients from around the world. The panel will include above-knee, below-knee, above-elbow and bilateral lower-limb members of the community, who all underwent osseointegration from multiple centers across the world representing a range of current implant types available.


Protecting Life (and Remaining Limbs)

Victoria Powell, RN, CCM, LNCC, CNLCP, CLCP, MSCC, CBIS, CEAS
Conference Room 1-2

There are common secondary conditions associated with limb loss. We will discuss common symptoms and the appropriate care when symptoms occur. We will also outline tips for good self-care to prevent these secondary complications. The caregiver will be taught signs and symptoms to watch for and the next steps in dealing with recognized or potential safety concerns.


1pm-2:30pm

MPK Merry-Go-Round

Conference Room 12

Learn from major manufacturers about the differences between microprocessor technology available for individuals with an above-knee amputation.

Space for this session is limited, please sign up at the information desk to secure your spot for this session.


1:30pm-4pm

Ӧssur Running and High-Level Performance Clinic

Bob Gailey, PhD, PT
Salon A-F

Train with our team of professional sports and mobility coaches, who will show you how to maximize prosthetic performance for high-level activities. The clinic is designed to promote running and mobility skills for sports and recreational activities to get you back in the game. Be inspired and inspire others while learning practical ways to move better with your prosthesis in a supportive and encouraging environment.

**Participants should be able to stand unassisted for prolonged periods of time.**


2:30pm-3:30pm

Mental Health After Limb Loss: Living and Looking at Yourself

Kristin Reeves, PT, MS
Conference Room 3-4

This session will provide a look into self-perception post limb loss and explore options to assist with coping mentally.


Knowing Your K-Level, and Why It Matters!

Emma Beisheim, PT, DPT, MS
Conference Room 13-14

The K-level system is used to determine eligibility for prosthetic componentry. Each person with lower-limb loss is assigned a K-level based on his/her potential ability to use a prosthesis; however, few individuals with lower-limb loss know their K-level assignment. This presentation will define each of the five K-levels, review how K-levels are assigned, and describe the components covered for each level.


Engaging With the Amputee Coalition on Advocacy Issues

Dan Ignaszewski, Amputee Coalition Chief Policy & Programs Officer
Conference Room 1-2

Making sure our legislators and insurance policymakers are educated about the needs of the community is an important part of our mission. Find out how you can help further that goal. Everything you do makes a difference and turns up the volume of your voice!


3:45pm-4:45pm

Amplify

Dan Ignaszewski, Amputee Coalition Chief Policy & Programs Officer
Conference Room 1-2

Discover more about the tools available to you when being your own advocate in your healthcare. AmplifyYourself.org is a powerful tool that allows you to contact your insurance company’s CEO and medical director. Find out what that can mean for you!


Targeted Muscular Reinnervation.

Dr. Kunj Desai
Conference Room 17-18

TMR is a surgical technique that involves re-routing painful, Neuroma forming, nerves to other functional nerves. It provides often permanent resolution of Neuroma pain. It is also an extremely useful technique to improve myoelectric prosthetic functionality by improving the number of functioning muscle units available to drive prosthetic function.


The Future of Integrating Prosthetic Use Into Everyday Life

Ben O. Saadon
Conference Room 12

This presentation will focus on the ability of prosthetic users to remove the limitation previously in place to having a fully interactive and productive life. A highlight on innovative technology and devices available for those who use upper-limb prosthetics.


Sock It to Me!

Fred Lanier
Conference Room 13-14

This session will be a hands-on discussion of prosthetic socks, shrinkers, sheaths, underliners and donning materials. Ply, as well as different materials and the history of socks, will be discusses. Proper donning and doffing will be demonstrated.


5pm-6pm

Friends of Bill W. Meet Here

Conference Room 8


6pm-8:30pm

Gala Dinner

Grand Ballroom Salon I-J
**Dinner ticket and badge are required.**


8:30pm-11pm

Dance Party

Grand Ballroom Salon I-J
Featuring live music by RAD.
All registered attendees are welcome to dance the night away!
**Badges are required.**