ACA Parent Support Network
888/267-5669, ext. 8130
The Parent Support Network, a program of ACA’s National Peer Network, can provide contact with another parent that has experienced raising a child with limb loss or limb difference.
ACPOC: The Association of Children’s Prosthetic-Orthotic Clinics www.acpoc.org
The Association of Children's Prosthetic-Orthotic Clinics is an association of professionals who are involved in clinics providing prosthetic-orthotic care for children with limb loss or orthopaedic disabilities.
Active Amp
http://www.activeamp.org/
Active Amp provides information about sports and activities for Amputees.
American Amputee Hockey Association
http://www.amputeehockey.org/
AAHA provides opportunities for amputees and other disabled athletes to participate in competitive hockey. They have a youth program and offer education events for young amputees interested in hockey.
Athletes Helping Athletes
http://www.roadrunnersports.com/rrs/content/topic.jsp?contentId=1800024
Athletes Helping Athletes provides hand cycles to children with disabilities.
Birth Defect Research for Children, Inc.
www.birthdefects.org/
Birth Defect Research for Children is your resource for free birth defect information, parent networking and birth defect research through the National Birth Defect Registry.
Blaze Sports
www.blazesports.com
BlazeSports America provides sports training, competitions, summer camps and other sports and recreational opportunities for youth and adults who use wheelchairs, have a visual impairment, have an amputation, or who have a neurological disability such as cerebral palsy or spina bifida. Participant ages range, depending on the program, from 6 years through adulthood.
Challenged Athletes Foundation
www.challengedathletes.org
It is the mission of the Challenged Athletes Foundation to provide opportunities and support to people with physical disabilities so they can pursue active lifestyles through physical fitness and competitive athletics. The Challenged Athletes Foundation believes that involvement in sports at any level increases self-esteem, encourages independence and enhances quality of life.
Disabled Sports USA
www.dsusa.org
DS/USA now offers nationwide sports rehabilitation programs to anyone with a permanent disability. Activities include winter skiing, water sports, summer and winter competitions, fitness and special sports events. Participants include those with visual impairments, amputations, spinal cord injury, dwarfism, multiple sclerosis, head injury, cerebral palsy, and other neuromuscular and orthopedic conditions.
Exceptional Parent
www.eparent.com
Provides information, support, ideas, encouragement & outreach for parents
and families of children with disabilities, and the professionals
who work with them
Family Center on Technology and Disability
www.fctd.info
The Family Center is a resource designed to support organizations and programs that work with families of children and youth with disabilities. They offer a range of information and services on the subject of assistive technologies.
Family Village
www.familyvillage.wisc.edu/index.htmlx
Family Village is a global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide services and support.
Federation for Children with Special Needs
www.fcsn.org
The Federation is a center for parents and parent organizations to work together on behalf of children with special needs and their families. We can help! Organized in 1975 as a coalition of parent groups representing children with a variety of disabilities, the Federation operates a Parent Center in Massachusetts which offers a variety of services to parents, parent groups, and others who are concerned with children with special needs.
Generation Hope
www.genhopeusa.org
It is the mission of Generation Hope Fund to inspire and educate people of all ages to overcome adversity and accept diversity, and to live life with “No Excuses…No Limits!”
Helping Hands Foundation
www.helpinghandsgroup.org
Helping Hands Foundation, Inc. is a not-for-profit support group made up of parents who have children with upper limb differences and who are concerned with the challenges facing the child and the entire family.
Inner Wheel USA
http://www.innerwheelusa.com/foundation/
The Inner Wheel U.S.A. Foundation, Inc., provides myoelectric prosthesis to children born without or lost an arm or hand through disease or accident. The clinics work with the children's Myoelectric Limb Project to provide an avenue for children whose insurance or family circumstances do not allow them to benefit from the latest updated technology.
Insure Kids Now!
www.insurekidsnow.gov
Insure Kids Now! is a national campaign to link the nation's 10 million uninsured children--from birth to age 18--to free and low-cost health insurance. Many families simply don't know their children are eligible.
International Child Amputee Network: I-CAN!
www.child-amputee.net
I-CAN is an email support group for adult amputees, parents, and child amputees.
KidsCamps.com
www.kidscamps.com
An online search engine for camp programs.
LimbDifferences.org
www.limbdifferences.org
An online resource for families and friends of children with limb differences.
National Arts and Disability Center
www.nadc.ucla.edu
The National Arts and Disability Center promotes the inclusion of audiences and artists with disabilities into the art community.
National Camp Association, Inc.
www.summercamp.org/index.html
The National Camp Association provides an online camp resource that provides referrals to camp programs that will meet the needs of campers.
National Center on Physical Activity and Disability
http://ncpad.com/
NCPAD is an information center concerned with physical activity and disability.
National Center on Secondary Education and Transition
www.ncset.org
This organization provides resources and information to help create opportunities for youth with disabilities to achieve successful futures.
National Dissemination Center for Children and Youth with Disabilities
www.nichcy.org/index.html
Provides information about disabilities, laws regarding special education, and research on effective educational practices.
National Meningitis Association
www.nmaus.org
NMA’s mission is to educate families, medical professionals and others about bacterial meningitis and prevention approaches to the disease.
North American Riding for the Handicapped Association, Inc.
www.narha.org
NARHA is an organization that promotes equine facilitated therapy and activity programs. Their site also has a search engine to look up therapeutic riding facilities by state, disability, and region.
On the Other Hand
www.ontheotherhand.org/index.htm
This site provides information for individuals with hand anomalies.
Prosthetic Education Project For Parents: PEEP
http://www.myoelectric-prosthetic-fitting-and-funding-for-children.com/
The purpose of the P.E.P.P. program is to help you find answers to the questions and concerns you may have regarding pediatric upper limb prosthetics and your child's future with a congenital limb deficiency or acquired upper extremity amputation.
PFFD VSG2
www.pffd.org
This site if for parents of children with proximal femoral focal deficiency.
Resource Foundation for Children with Challenges
http://www.specialchild.com/RFCC/
This organization provides educational resources and emotional support to parents and caregivers of children, adolescents, and young adults with disabilities.
SNAP: Special Needs Advocate for Parents
www.snapinfo.org/home.html
This organization provides resources to parents who have children with disabilities. They help parents become advocates for their children.
Starlight Starbright Foundation
www.starbright.org
Starlight Starbright helps seriously ill children and their families cope with their pain, fear and isolation through entertainment, education and family activities.
SuperHands
www.superhands.us
SuperHands provides information and resources for children with upper extremity limb differences.
Unlimbited Possibilities, Inc.
www.unlimbitedpossibilities.org/about.html
This organization assists families with children who have upper limb differences. They are located in the Long Island area of New York.
Voices for America’s Children
http://www.voicesforamericaschildren.org/
The mission of Voices for America's Children is to improve the lives of children in the United States by advocating for effective public policies.
VSA arts
www.vsarts.org
At VSA arts people with disabilities can learn through, participate in and enjoy the arts.
Wrightslaw
www.wrightslaw.com
This site provides information on special education law and advocacy for children with disabilities.
Also available in Spanish / También disponible en español
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