A Publication of the National Limb Loss Information Center [ Table of Contents ]
Senior Step - A Guide for Adapting to Limb Loss
Senior Step - Volume 1, 2004


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Man outside resting his head on arms and staring offOne Step at a Time:
Recovering From Limb Loss


by Patricia Isenberg, MS

Recovery may be defined as a return to a normal condition.

Individuals Recover Differently

Have you ever wondered why some people seem to bounce back from the tragedies in their lives, while others find themselves trapped in a cycle of despair, anger or depression? Most of us will, from time to time, compare ourselves to those around us. It is natural, then, for people with limb loss to compare their recovery process to the experiences of other amputees.

What Is Recovery

Livneh and Antonak in Psychosocial Adaptation to Chronic Illness and Disability (1997) list six signs of recovery:

  • A sense of balance in emotions and relationships
  • Awareness of abilities and limitations
  • Positive self-concept and a sense of accomplishment
  • Ability to get around in the environment
  • Participation in social, vocational and/or recreational activities
  • Setting priorities.

Recovery is a tall order for anyone, with or without limb loss! Whatever recovery means to you:

  • Take time to learn what makes everyone’s recovery different.
  • Determine your personal goals.
  • Ask for help when you need it.

There are many issues that affect recovery from amputation. These can be divided into four categories:

Man reading1. Issues related to the amputation

  • Whether the amputation was sudden or due to a chronic, debilitating illness
  • The level of the amputation
  • Whether the amputation surgery was successful in stabilizing the condition that caused it
  • How the day-to-day ability to function will be affected

2. Individual characteristics

  • Age or health status. Obviously, the older you are, the greater the chance that you have other conditions (known as comorbid conditions) that could impact your recovery.
  • Current stage of life
  • Financial status
  • Ethnic background

3. Personality traits

  • Coping strategies used before the surgery
  • Sense of control over the situation
  • Attitudes toward health and sickness
  • Self-concept and body image
  • Experience coping with other similar losses

4. Characteristics of the physical and social environment

  • Availability of a support system, such as family, friends or a support group
  • Availability of appropriate medical care
  • Accessibility of services in the community
  • Living arrangements
  • How other people view limb loss

The Recovery Process
The Amputee Coalition uses six phases to describe the recovery process of amputation.

PHASE

CHARACTERISTIC

DESCRIPTION

Enduring

Surviving amputation surgery and the pain that follows

Hanging on; focusing on present to get through the pain; blocking out distress about future - it is a conscious choice not to deal with the full meaning of the loss; self-protection

Suffering

Questioning: Why me? How will I…?

Intense feelings about the loss: fear, denial, anger, depression; vulnerable and confused; return to Enduring stage; emotional anguish about the loss of self adds to the pain

Reckoning

Becoming aware of the new reality

Coming to terms with the extent of the loss; accepting what is left after the loss; implications of the loss for future - how will roles change; ongoing process; minimizing own losses in comparison to others’ losses

Reconciling

Putting the loss in perspective

Regaining control; increased awareness of one’s strengths and uniqueness; more assertive; taking control of one’s life; self-management of illness and recovery; changed body image; need for intimacy

Normalizing

Reordering priorities

Bringing balance to one’s life; establishing and maintaining new routines; once again, doing the things that matter; allowing priorities other than the loss to dominate; advocating for self

Thriving

Living life to the fullest

Being more than before; trusting self and others; confidence; being a role model to others; this level of recovery is not attained by everyone

The Recovery Process

Recovery from amputation is an ongoing process.
It is clear that:

  • Not everyone has the same response to amputation.
  • The highest level of recovery is not achieved by everyone.
  • Recovery does not happen in a particular order.

Individuals may experience phases one after another
and then regress to an earlier phase. A person might
skip one or more phases, or one phase could overlap
with another.

  • Each phase of recovery requires different coping patterns.

Resources for Recovery

A variety of resources exist to help you successfully recover from amputation.

  • Peer visitation
  • Amputee support groups
  • Online support groups
  • Amputee Coalition Web site (www.amputee-coalition.org)
  • Individual or group counseling with a social worker or psychologist
  • Vocational Rehabilitation
  • Supportive family and friends

Still not sure how to get the help you need? Call the Amputee Coalition at 888/267-5669 and speak with an information specialist.

 
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