Limb Loss Research & Statistics ProgramPeople With Amputation Speak Out  
What Services & Support Do You Need?
   
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Medical Care
Over 80% of survey participants reported making one or more doctor visits in the past 12 months. One out of 10 reported not receiving medical care when they needed it. One-third of these were due to health insurance costing too much or not covering the cost of medical care.

Rehabilitation Services
One-fourth of survey participants reported receiving medical rehabilitation services, such as physical and occupational therapy, in the past year. The average number of visits per year to a rehabilitation specialist was 25, with more visits made by individuals with more recent amputation. Nearly 20% reported not receiving rehabilitation services when they needed it. Similar to medical care, the majority reported cost as the leading factor in preventing them from receiving rehabilitation services they needed.

Emotional Health Services
Nearly one-fourth (22%) of survey participants reported receiving emotional health services for an emotional problem during the past 12 months; only 9% reported needing it and not getting it. However, among those with depressed symptoms, half reported not receiving emotional health services. Among those receiving help, only 6% reported that they needed more help than they received. Reasons given for not receiving help included wanting to solve their own problems (27%) and not knowing where to go for help (19%).

Assistance in the Home
Nearly half (48%) reported needing help at home with activities such as personal care, meal preparation, and grocery shopping. One-fourth of those receiving help said they needed more help than they were currently receiving. Of those who were not receiving care, only 11% reported needing more help but not receiving it. The majority (66%) received help from a family or friend who lived in the same home with them, while 16% received help from a family member or friend who lived outside their home and 11% reported using a home health aide or a visiting nurse.

Peer Support Group
Current attendance at a peer support group was reported by 20% of the survey participants. Older amputees (age 45+) were more likely than those age 18-44 to report attending a peer support group, after adjusting for cause and time since amputation.

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