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What is life like after an amputation? This question is key to exploring other questions such as: What do people living with limb loss need to live the best possible lives, and how do we meet those needs? The Limb Loss Research and Statistics Program (LLR&SP), in collaboration with the staff of the ACA, conducted a national survey of people with limb loss to answer these and other questions. From the beginning, it was clear that we needed to hear from the people who were the “experts” — those living with the loss of a limb or limbs every day. The purpose of the consumer survey was to determine how well people with limb loss were functioning in their everyday lives and what services they may need, but are not getting. This information is important for healthcare planners, policymakers and service providers to ensure that people with amputations receive what they need to live healthy and productive lives. With this in mind, survey questions were written to look at the following: (1) the overall health and well-being of people with limb loss; (2) the need for services such as medical care and rehabilitation; (3) the use of, and satisfaction with, prosthetic devices and related services; and (4) environmental barriers and attitudes that impact overall well-being. People With Amputation Speak Out summarizes the findings from this research study. Other publications from the LLR&SP are listed below. Darnall B, Ephraim PL, Wegener ST, Dillingham TR, MacKenzie EJ. Depressive symptoms among persons with limb loss: results of a national survey.Arch PhysMed Rehab. 2005 Apr;86(4):650-8. Dillingham T, Pezzin L, MacKenzie E . Limb amputation and limb deficiency: epidemiology and recent trends in the United States.South Med J. 2002;95:875-883. Dillingham T, Pezzin L, MacKenzie E. Racial differences in the incidence of limb loss secondary to peripheral vascular disease: a population-based study.Arch Phys Med Rehab. 2002;83:1252-1257. Ephraim PL, Dillingham TR, Pezzin LE, MacKenzie EJ. Epidemiology of limb loss and congenital limb deficiency: a review of the literature.Arch Phys Med Rehab. 2003 May; 84(5):747-761. Pezzin LE, Dillingham TR, MacKenzie EJ, Ephraim PE, Rossbach P. Use and satisfaction with prosthetic limb devices and related services.Arch Phys Med Rehab. 2004 May; 85(5)723-729. Ephraim PL, Wegener ST, MacKenzie EJ, Dillingham TR, Pezzin EJ. Phantom pain, residual limb pain, and back pain in amputees: results of a national survey. ArchPhys Med Rehab. 2005 Oct;86(10):1910-9. Ephraim PL , MacKenzie EJ, Wegener ST, Dillinghamn TR, Pezzin LE. Environmental barriers experience by amputees: the Craig Hospital inventory of environmental factors-short form. Arch Phys Med Rehab. March; 87(3):328-33. |
The Limb Loss Research and Statistics Program |
Amputee Coalition of America |
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