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CancerOctober 2008 People with limb loss have particular information needs. Topic of the Month is a resource guide of information relevant to amputees. Click on the links below to access articles and Web sites directly. Many of the books and videos can be borrowed through Interlibrary Loan. Many more resources can be found by searching our online library. Please feel free to share this resource with those who may find this useful. We also welcome your comments and topic suggestions! Contact us via e-mail at library@amputee-coalition.org. Atlas of Amputations and Limb Deficiencies: Surgical, Prosthetic and Rehabilitation Principles / American Academy of Orthopaedic Surgeons; edited by Douglas G. Smith, John W. Michael, and John H. Bowker. 3rd edition. Rosemont, IL: American Academy of Orthopaedic Surgeons, 2004. ISBN 0-89203-313-4. This atlas is a comprehensive reference on the surgical, prosthetic and rehabilitative management of adults and children who have lost a limb or who have congenital limb loss. This source contains many images and illustrations. See Chapter 5, “Tumor: Limb Salvage Versus Amputation.” Becoming Whole: The Story of My Complete Recovery From Breast Cancer / Meg Wolff with Tom Monte. Cape Elizabeth, Maine: Flow Books, c2006. ISBN: Being One-Legged Is an Interesting Experience / by J. A. Coffeen. Houston, TX: J.A. & M.H. Coffeen, Grouder Publishing, c2000. ISBN 0-930271-04-1. This is the story of how a 73-year-old man who loses his leg to cancer adapts. Childhood Cancer: A Parent's Guide to Solid Tumor Cancers / Honna Janes-Hodder, Nancy Keene. Beijing; Sebastopol, CA: O'Reilly, c2002. ISBN 0-596-50014-9. Summary: This book provides information and support that parents need when they have a child diagnosed with cancer. It includes information about treatment, resources for medical information, emotional support and financial assistance, advice on coping, personal stories and more. Daniel's Mom/ by Sandi Guida. Illustrations by Fred Schmerling. In this short children’s story, Daniel is telling his class about his mother, who had an amputation due to cancer. She uses crutches but her friend wears a prosthesis. This is only available online: www.amputee-coalition.org/yaz/youth-info.asp Exercise and Cancer Recovery / Carole M. Schneider, Carolyn A. Dennehy, Susan D. Carter. Champaign, Ill.: Human Kinetics Pub., c2003. ISBN 0-7360-3645-8. This text gives specific guidelines for cancer-exercise intervention. Information on how exercise rehabilitation can help cancer patients deal with treatment-related symptoms both during and after treatment is also included. It's Just a Matter of Balance / Kevin S. Garrison. South Euclid, OH: Print Vantage; c2005. ISBN: Our Cancer Year / by Joyce Brabner and Harvey Pekar; illustrations by Frank Stack. New York Thunder's Mouth Pr., c1994. ISBN: 1-56858-011-8. This is the autobiographical graphic novel of Harvey Pekar (author of American Splendor) and his wife, Joyce Brabner. They discovered Harvey had cancer, and he suddenly found himself incapacitated. But he had a chance to beat cancer and he took it ‑ and survives, after much screaming and kicking. Pain Management in Rehabilitation / editors, Trilok N. Monga, Martin Grabois. New York, N.Y.: Demos Medical Pub., c2002. ISBN 1-888799-63-3. This book provides information about the diagnosis and management of various pain syndromes in patients with disabling diseases. Pediatric Oncology Resource Guide: The Resource Guide for Children Living With Cancer and Their Families / Chai Lifeline. New York: Chai Lifeline, 2001. This manual was developed as a community support service of Chai Lifeline, a not-for-profit children's health support organization. It is a tool for information and referrals made by pediatric oncology social workers in the United States. Textbook of Complementary and Alternative Medicine / edited by Chun-Su Yuan and Eric J. Bieber. Boca Raton [Fla.]: Parthenon Pub. Group, c2003. ISBN 1-84214-134-1. This textbook looks at healing therapies, approaches and systems of complementary and alternative medicine. Their relevance to conventional medicine is discussed. In-depth information on specific therapies for common medical conditions is also included. Wounded Healer / by John Gagnon. Norwood, N.J.: Ablex Pub., c1994. ISBN 0-89391-973-X. This autobiographical account focuses on a 10-year span of the author's life, during which time he experiences a painful series of traumatic events: an accident that resulted in the amputation of his left leg and severe injury to his right one; a bout with cancer and subsequent chemotherapy; the death of his mother; and numerous health-related ailments including pulmonary fibrosis, tinnitus, and Raynaud's disease. Throughout all of these emotional and physical trials, he continued to work as a psychotherapist, counseling others in crisis. The Strength to Carry On: Amputees Share Their Secrets of Success / Rick Bowers. Knoxville, TN: Amputee Coalition, 2006. Article from inMotion, September / October 2006. This article highlights people who share their experiences as new amputees. Jessica shares her secret to getting back on her “feet” after losing both legs above the knee in a car accident. Manuel says that it took him two years to get over the anger after losing all four limbs in an electrical accident at work. Mike, who had bone cancer, found that writing letters about his condition was therapeutic. Before Your Amputation: Questions to Ask Your Surgeon (Fact Sheet) / Patricia J. Isenberg. Knoxville, TN: Amputee Coalition of America. Talking with your surgeon prior to amputation is important. You should meet your surgeon, feel confident in his/her abilities, and have all your concerns addressed before surgery is scheduled. Listed on this fact sheet are some critical questions. You may want answers to all of them or you might choose those which are most important to you. Your surgeon should be willing to take the time to answer any questions you have. Cancer and Amputation / Bill Dupes. Knoxville, TN: Amputee Coalition, 2004. Article from inMotion, September / October 2004. This article contains a listing of resources and organizations that provide information on cancer. Know Your Options: An Explanation of the Rotationplasty and Tibia Turn-Up Procedures / Kevin Carroll. Knoxville, TN: Amputee Coalition, 2005. Article from inMotion, March / April 2005. This article examines the Van Nes rotationplasty and tibia turn-up procedures. How these procedures work and how prostheses function with such amputations are discussed. Look Into Chase's Eyes / Barbara Gref. Knoxville, TN: Amputee Coalition, 2001. Article from inMotion, May / June 2001. Reprinted by permission of The Times Herald-Record, Newburgh, NY. This is the story of Chase Molinari, a child who was diagnosed with Ewing's Sarcoma at the age of one. It discusses his amputation and his parent's struggle to get their insurance company to provide adequate coverage for Chase's prosthetic legs. Obliterating the Odds / Dan Johnson. Knoxville, TN: Amputee Coalition, 2000. Article from inMotion, March / April 2002. A profile of Brandon Kline, who lost his right leg in fourth grade because of cancer. He hasn't let his limb loss slow him down. One Step Ahead: Preventing Secondary Complications in Long-Term Prosthesis Users / Robert Gailey. Knoxville, TN: Amputee Coalition, 2004. Article from inMotion, July / August 2004. As a group, people who have lost a limb as the result of trauma, a tumor or a congenital limb difference tend to do so earlier in life than those who have an amputation related to diabetes or vascular disease. Because they are younger, more active, and prosthesis-wearers for greater lengths of time, many of these people experience secondary medical problems, mostly in the joints of the lower limbs and the spine. In this article, Dr. Gailey looks at ways to avoid these complications. Pain Management and the Amputee (Fact Sheet) / Partners Against Pain and the National Limb Loss Information Center. Knoxville, TN: Amputee Coalition. This fact sheet provides important practical information that you can use to get help managing your pain. In many instances, pain will decrease over time. Other times it may be necessary to take aggressive steps to control pain. This fact sheet provides information about handling a range of outcomes. Points to Know and Consider When Preparing for and Undergoing an Amputation (Fact Sheet) / Paddy Rossbach, RN. Knoxville, TN: Amputee Coalition. This fact sheet provides some points to know about and consider when an amputation becomes necessary. These include aspects of presurgery, postsurgery, prosthetic fitting, physical therapy with the prosthesis and emotional needs. Towards Reaching "Normalcy" ‑ Does It Really Matter? / Donna R. Walton, EdD. Knoxville, TN: Amputee Coalition of America, 2006. Article from inMotion, July / August 2006. Dr. Walton describes her own quest to be "normal" and walk without a limp, despite her high-level, above-knee amputation that was a result of cancer when she was 18. *The abstracts to these articles are available via PubMed®, a service of the United States National Library of Medicine®. Barriers to Rehabilitation of Patients with Extremity Sarcomas / Custodio CM. Characteristics and Outcome of Infections Associated With Tumor Endoprostheses / Hardes J, Gebert C, Schwappach A, Ahrens H, Streitburger A, Winkelmann W, Gosheger G.
Citation to article: Archives of Orthopaedic and Trauma Surgery. 2006 Jul;126(5):289-96. www.ncbi.nlm.nih.gov/entrez/query.fcgi? db=pubmed&cmd=Retrieve&dopt=AbstractPlus&list_uids=16628430 &itool=pubmed_DocSum Complications and Risk Factors for Failure of Rotationplasty: Review of 25 Patients / Sawamura C, Hornicek FJ, Gebhardt MC. Citation to article: Clinical Orthopaedics Related Research. 2008 Jun; 466(6):1302-8. Incidence and Management of Phantom Limb Pain According to World Health Organization Analgesic Ladder in Amputees of Malignant Origin. American Journal of Hospice & Palliative Care. 2007, Sep 21. Isolated Limb Perfusion With Tumor Necrosis Factor Alpha and Melphalan for Locally Advanced Soft Tissue Sarcoma: Three Time Periods at Risk for Amputation / van Ginkel RJ, Thijssens KM, Pras E, van der Graaf WT, Suurmeijer AJ, Hoekstra HJ.
Citation to article: Annals of Surgical Oncology. 2007 Jan 26. Prosthetic Rehabilitation of Persons With Lower Limb Amputations Due to Tumour / Kauzlaric N, Kauzlaric KS, Kolundzic R. Citation to article: European Journal of Cancer Care (Engl). 2007 May;16(3):238-43. www.ncbi.nlm.nih.gov/sites/entrez? db=pubmed&cmd=Retrieve&dopt=AbstractPlus&list_uids=17508943&itool=pubmed_DocSum Rotationplasty in the Elderly / Hardes J, Exner GU, Rosenbaum D, Streitbuerger A, Gebert C, Gosheger G, Ahrens H. Citation to article: Sarcoma. 2008; 402378. Treatment Results of Pediatric Osteosarcoma: Twenty-Year Experience / Varan A, Yazc N, Aksoy C, Gedikoglu G, Yalcn B, Akyuz C, Kutluk T, Buyukpamukcu M. Citation to article: Journal of Pediatric Orthopedics. 2007 Mar;27(2):241-246.www.ncbi.nlm.nih.gov/entrez/query.fcgi? db=pubmed&cmd=Retrieve&dopt=AbstractPlus&list_uids=17314654&itool=pubmed_DocSum Jeff Keith's Run Across America / presented by Johnson & Johnson and the American Cancer Society. New York, NY: Bradley-Kriegeskotte Associates, [1985]. This documentary follows Jeff Keith in his run across the United States, proving to millions of Americans the feat can be accomplished in spite of a severe disability. Jeff lost a leg to cancer when he was 12 years old. Phoenix Dance / produced and directed by Karina Epperlein; Transit 2100. Standard format. Boston, Mass.: Fanlight Productions, 2006. DVD. ISBN: 1-57295-862-6. In March, 2001, renowned dancer Homer Avila discovered that the pain in his hip was cancer. A month later, his right leg and most of his hip were amputated. Through interviews, studio rehearsals, and performances, [the film] follows the evolution of a "pas de deux" created for Avila by choreographer Alonzo King. In a deeply moving and intimate collaboration with dancer Andrea Flores, Avila creates a new unity - a beautiful creature with three legs and four arms - in which traditional roles are reversed: the man's vulnerability and the woman's strength sweetly complement each other, and their solo outbursts develop themes of interdependence, trust, and strength. Amputee Coalition. Knoxville, TN. This Web site provides a wealth of information to all amputees. From the National Limb Loss Information Center (NLLIC) page, search the library for more resources, call the toll-free hotline for information or submit a question online. American Cancer Society. Atlanta, GA. The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer through research, education, advocacy and service. CancerAndCareers.org. New York, NY: Cosmetic Executive Women, Inc. Cancer Facts: The National Cancer Institute Cancer Centers Program. Bethesda, MD. The National Cancer Institute Cancer Centers Program comprises more than 50 NCI-designated cancer centers engaged in multidisciplinary research to reduce cancer incidence, morbidity and mortality. This site has a listing of designated cancer centers by state with contact information included. cis.nci.nih.gov/fact/1_2.htm Health Disparities: Minority Cancer Awareness / United States Department of Health and Human Services, Centers for Disease Control and Prevention, National Center for Chronic Disease Prevention and Health Promotion, Division of Cancer Prevention and Control. Atlanta, GA: Centers for Disease Control, [200-]-. This fact sheet focuses on cancer in minorities. Statistical information, health indicators and research findings are all included. www.cdc.gov/cancer/minorityawareness/index.htm National Cancer Institute / Bethesda, MD. The National Cancer Institute (NCI), part of the National Institutes of Health in Bethesda, Maryland, coordinates the Nation’s research program on cancer prevention, detection, diagnosis, treatment, rehabilitation and control. |
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