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StatisticsSeptember 2007 People with limb loss have particular information needs. Topic of the Month is a resource guide of information relevant to amputees. Click on the links below to access articles and Web sites directly. Many of the books and videos can be borrowed through Interlibrary Loan. Many more resources can be found by searching our online library. Please feel free to share this resource with those who may find this useful. We also welcome your comments and topic suggestions! Contact us via e-mail at library@amputee-coalition.org. 1999 Performance on Customer Service Standards: National Survey of Prosthetic Patients: National Summary / National Performance Data Feedback Center and Office of Quality and Performance. [Morrisville, NC]: National Performance Data Feedback Center, 2000. The purpose of this survey was to obtain from veterans valid and reliable evaluations of VHA prosthetics care and service. These evaluations were obtained by using a standardized questionnaire and consistent methodology nationwide. Seven customer service standards were used including: Access, Courtesy, Education/Information, Emotional Support, Device Assistance, Overall Coordination and Preferences. 2000 NOD: Harris Survey of Americans with Disabilities / sponsored by Aetna, Inc. and the JM Foundation; conducted for National Organization on Disability. New York, NY: Harris Interactive, c2000. This book provides results of a national survey of adults with and without disabilities to compare 10 key measures of quality of life. These measures are: employment, income, education, healthcare, access to transportation, entertainment/going out, socializing, attendance at religious services, political participation, and life satisfaction. BRFSS Summary Prevalence Report / National Center for Chronic Disease Prevention and Health Promotion. This report includes information on selected risk factors and preventive health measures from the Behavioral Risk Factor Surveillance System core questionnaire. The Burden of Chronic Diseases and Their Risk Factors: National and State Perspectives. Atlanta, GA: Dept. of Health and Human Services, Centers for Disease Control and Prevention, 2004. This document provides updated information on the burden of chronic diseases and their risk factors in the 50 states and the District of Columbia. Diabetes 4-1-1: Facts, Figures, and Statistics at a Glance: Who's Getting Diagnosed, Why, and What it Means for Society. Alexandria, VA: American Diabetes Association, c2005. ISBN 1-58040-219-4. Diabetes has reached near-epidemic proportions – the proof is in the numbers. This book contains the most relevant and current information and statistics on all classes of diabetes and its complications, including the numbers of people living with pre-diabetes, type 1 or type 2 diabetes, and gestational diabetes mellitus; which populations are most at risk; the dollars spent on diabetes care; and costs to the U.S. healthcare system today. Finding Statistics Online: How to Locate the Elusive Numbers You Need / Paula Berinstein; edited by Susanne Bjørner. Medford, NJ: Information Today, Inc., c1998 (2000 printing). ISBN: 0-910965-25-0. This is a how-to guide to finding statistics on the Internet. It shows where and how to start searching, tells all about important systems ad sources, and how to evaluate data for reliability. It also offers the "Finding Statistics Online" directory of Statistics Sources. Injury Facts / National Safety Council. 2007 ed. Itasca, IL: National Safety Council, 2007. ISBN 0879122692. This is an annual report from the National Safety Council on unintentional injuries and their characteristics and costs. Mobility Device Use in the United States / H. Stephen Kaye ... [et al.]. Washington, D.C.: U.S. Department of Education, National Institute on Disability and Rehabilitation Research, 2000. This report includes and interprets statistical information on mobility device use, such as population estimates and sociodemographic comparisons, health and disability statuses , health conditions and impairments associated with mobility device use, accessibility features and problems, and health insurance. The Orthotic and Prosthetic Profession: A Workforce Demand Study: Demand Study Prepared for the National Commission on Orthotic and Prosthetic Education and American Orthotic and Prosthetic Association, December 2006 / Cathy Corathers and Mark Janczewski. [Alexandria, VA: National Commission on Orthotic and Prosthetic Education, 2006]. There is an expected shortage of orthotists and prosthetists by the year 2030. This report details how changes in the population and technology will affect the future of the profession. Summary Health Statistics for the U.S. Population: National Health Interview Survey, 1997. Hyattsville, MD: Public Health Service, Centers for Disease Control and Prevention, National Center for Health Statistics, [2002]. ISBN: 0-8406-0576-5. This report presents statistics derived from the 1997 National Health Interview Survey on selected health measures for the civilian noninstitutionalized population of the United States, classified by age, gender, race and Hispanic origin, poverty status, income, education, place of residence, region of residence, and, where appropriate, health insurance coverage. Using and Understanding Medical Statistics / David E. Matthews, Vernon T. Farewell. 4th, rev. ed. New York: Karger, c2007. ISBN: 3805581890. This is an excellent introduction to medical statistics and a valuable tool in explaining the more complex statistical methods and techniques used today. Violence Against Women with Physical Disabilities: Final Report Submitted to the Centers for Disease Control and Prevention / Center for Research on Women with Disabilities. Houston, TX: Center for Research on Women with Disabilities, Department of Physical Medicine and Rehabilitation, Baylor College of Medicine, 2002. This is the final report from the Center for Research on Women with Disabilities at Baylor College of Medicine to the CDC based on a survey and follow-up survey of women with disabilities and their experiences with abuse. The findings of those surveys are listed in this book. Amputee Coalition Articles & Fact Sheets The Dual Danger of Diabetes and Depression / Bill Dupes. Knoxville, TN: Amputee Coalition of America, 2005. Article from inMotion, July/August 2005. This article explains why people with diabetes are at greater risk for clinical depression. Article reports statistics from a New York study about people with diabetes and depression, and gives advice on detecting and treating depression. NLLIC Amputee Coalition Fact Sheet: Amputation Statistics By Cause: Limb Loss in the United States / NLLIC Staff. Revised 2006 ed. Knoxville, TN: Amputee Coalition, 2004. Statistical information related to amputation and the various reasons that a person would have to undergo an amputation. NLLIC Amputee Coalition Fact Sheet: Diabetes and Lower Extremity Amputations / by NLLIC Staff. Revised 2005 ed. Knoxville, TN: Amputee Coalition, 2004. Statistical information is provided related to lower-extremity amputations due to diabetes. NLLIC Amputee Coalition Fact Sheet: Limb Loss in the United States / NLLIC and the Limb Loss Research and Statistics Program. Revised 2004. Knoxville, TN: Amputee Coalition, 2002. Limb loss affects a variety of people in the United States and around the world and includes people of every race, ethnicity and background without regard to geographic location, occupation or economic level. Please note that in 1996, there were approximately 1.2 million persons living with the absence of a limb in the U.S, however, in 2007, there are approximately 1.7 million persons. Notes From the Medical Director: Congenital Limb Deficiencies and Acquired Amputations in Childhood / Douglas G. Smith, MD. Knoxville, TN: Amputee Coalition, 2005. Article from inMotion, January/February 2006. Limb loss is especially difficult when it involves a child who has congenital limb difference or who has had a traumatic accident or illness. This is the first article of a three-part series that provides insight about congenital limb differences and acquired amputations, and will be helpful to parents, children and pediatric healthcare professionals. This article introduces the different forms of limb loss, causes and relates some statistics. Notes From the Medical Director: Congenital Limb Deficiencies and Acquired Amputations in Childhood, Part 4: Injuries, Amputations and Children: Causes and Prevention / Douglas G. Smith, M.D. Knoxville, TN: Amputee Coalition of America, 2006. Article from inMotion, July/August 2006. Dr. Smith explores traumatic accidents and the main causes of acquired amputation among children. Dr. Smith also explains the surgical reasoning behind limb salvage and amputation surgeries. The most devastating of child injuries often involve riding on lawn mowers and being around lawn mowers when in use. Depressive Symptoms and Mental Health Service Utilization Among Persons with Limb Loss: Results of a National Survey / BD Darnall ... [et al.]. Philadelphia, PA: W.B. Saunders, 2005. Citation to article: Archives of Physical Medicine and Rehabilitation. 2005 Apr;86(4):650-8. Discharge Destination After Dysvascular Lower-Limb Amputations / TR Dillingham ... [et al.]. Philadelphia, PA: W.B. Saunders, 2003. Citation to article: Archives of Physical Medicine and Rehabilitation. 2003 Nov;84(11):1662-8. Global Prevalence of Diabetes: Estimates for the Year 2000 and Projections for 2030 / S. Wild ... [et al.]. Alexandria, VA: American Diabetes Association, 2004. Citation to article: Diabetes Care. 2004 May;27(5):1047-53. Limb Amputation and Limb Deficiency: Epidemiology and Recent Trends in the United States / TR Dillingham ... [et. al]. Birmingham, AL: Southern Medical Association, 2002. Citation to article: Southern Medical Journal. 2002 Aug;95(8):875-83. Racial Differences in the Incidence of Limb Loss Secondary to Peripheral Vascular Disease: a Population-Based Study / TR Dillingham, LE Pessin and EJ Mackenzie. Philadelphia, PA: W.B. Saunders, 2002. Citation to article: Archives of Physical Medicine and Rehabilitation. 2002 Sep;83(9):1252-7. Reamputation, Mortality, and Health Care Costs Among Persons with Dysvascular Lower-Limb Amputations / TR Dillingham, LE Pezzin and AD Shore. Philadelphia, PA: W.B. Saunders, 2005. Citation to article: Archives of Physical Medicine and Rehabilitation. 2005 Mar;86(3):480-6. Return to Driving After Lower-Extremity Amputation / C Boulias... [et al.]. Philadelphia, PA: W.B. Saunders, 2006. Citation to article: Archives of Physical Medicine and Rehabilitation. 2006 Sep;87(9):1183-8. Use and Satisfaction With Prosthetic Limb Devices and Related Services / LE Pezzin ... [et al.]. Philadelphia, PA: W.B. Saunders, 2004. Citation to article: Archives of Physical Medicine and Rehabilitation. 2004 May;85(5):723-9. http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=Retrieve&db=pubmed&dopt=AbstractPlus&list_uids=15129395 Online Resources and Organizations Cancer.gov: Statistics / National Cancer Institute. National Cancer Institute: NCI. [Bethesda, MD]: [199-]. From the National Institutes of Health (NIH), this site includes a variety of data sources, including SEER (Surveillance, Epidemiology, and End Results), a database that provides "information on cancer incidence and survival in the United States. It also includes an alphabetical list of Statistics by Cancer Type, and the section Understanding Cancer Statistics explains cancer prognoses. CDC Data and Statistics / Centers for Disease Control and Prevention. Atlanta, GA: Centers for Disease Control and Prevention, [200-]-. This page contains links to various types of health data and statistics. Topic areas include scientific data, surveillance, health statistics, and laboratory information. CDC Diabetes Public Health Resource / Centers for Disease Control and Prevention; National Center for Chronic Disease. Atlanta, GA: Centers for Disease Control and Prevention, [200u]-. Produced by the Centers for Disease Control, this site has links to frequently asked questions, statistical information, and other informational documents. Center for Research on Women With Disabilities (CROWD). Houston, TX: Baylor College of Medicine, 1999-. The Center for Research on Women with Disabilities (CROWD) is a research center that focuses on issues related to health, aging, civil rights, abuse, and independent living. CROWD's purpose is to promote, develop, and disseminate information to expand the life choices of women with disabilities so that they may fully participate in community life. More specifically, researchers develop and evaluate models for interventions to address specific problems effecting women with disabilities. Data & Trends: Diabetes Surveillance System: Nontraumatic Lower-Extremity Amputation with Diabetes / U.S. Department of Health and Human Services, Centers for Disease Control and Prevention, National Center for Chronic Disease Prevention and Health Promotion, Division of Diabetes Translation. Silver Spring, MD: CDC Division of Diabetes Translation, [200-]-. The Disability Statistics Center. San Francisco, CA: Institute for Health and Aging at the University of California. The Disability Statistics Center produces and disseminates policy-relevant statistical information on the demographics and status of people with disabilities in American society. The Center's work focuses on how that status is changing over time with regard to employment, access to technology, healthcare, community-based services, and other aspects of independent living and participation in society. Healthy People 2010: Understanding and Improving Health. Washington, D.C.: U.S. Dept. of Health and Human Services: [2000-]. Healthy People 2010 presents a comprehensive, nationwide health promotion and disease prevention agenda. It is designed to serve as a roadmap for improving the health of all people in the United States during the first decade of the 21st century. Hospital Discharge Rates for Nontraumatic Lower Extremity Amputation by Diabetes / Centers for Disease Control and Prevention. Atlanta, GA: Centers for Disease Control and Prevention, 2001. This report summarizes the analysis the CDC and the Agency for Healthcare Research and Quality analyzed from the 1997 Nationwide Inpatient Sample (NIS) and the 1997 National Health Interview Survey (NHIS). The findings of this analysis indicate that the age-adjusted rates of hospital discharges among persons with lower-extremity amputations who had diabetes were 28 times that of those without diabetes. ICDRI: The International Center for Disability Resources on the Internet. Raleigh, NC: International Center for Disability Resources on the Internet, 1998-. ICDRI's mission includes the collection of a knowledge base of quality disability resources and best practices and to provide education, outreach and training based on these core resources. ICDRI makes this information available in an accessible format through this Web site. |
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