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Resources for People With Bilateral Upper Extremity Limb LossJuly 2008 (Revised 2009) People with limb loss have particular information needs. Topic of the Month is a resource guide of information relevant to amputees. Click on the links below to access articles and Web sites directly. Many of the books and videos can be borrowed through Interlibrary Loan. Many more resources can be found by searching our online library. Please feel free to share this resource with those who may find this useful. We also welcome your comments and topic suggestions! Contact us via e-mail at library@amputee-coalition.org. Note: also see this edition on Upper-Extremity Limb Loss for more general resources about upper-extremity prostheses options and rehabilitation. BooksAngels on My Shoulders & Muses at My Side / Harold H. Wilke. Nashville, TN: Abingdon Press, c1999. ISBN: 0-687-07284-0. This book tells the story of Harold H. Wilke, who was born without arms in 1914. He has graduated from the Union Theology Seminary, and, as the founder of the Healing Community, he tells of his experience in his work all over the world. Atlas of Amputations and Limb Deficiencies: Surgical, Prosthetic and Rehabilitation Principles / American Academy of Orthopaedic Surgeons; edited by Douglas G. Smith, John W. Michael, and John H. Bowker. 3rd edition. Rosemont, IL: American Academy of Orthopaedic Surgeons, 2004. ISBN 0-89203-313-4. This atlas is a comprehensive reference on the surgical, prosthetic and rehabilitative management of adults and children who have lost a limb or who have congenital limb loss. This source contains many images and illustrations. Using Everything You've Got / by Harold H. Wilke. Chicago: National Easter Seal Society for Crippled Children and Adults, 1984. Harold Wilke gives insights and ideas for performing daily tasks to those living without hands and arms. Topics covered include: transportation, eating, household activities, caring for children, sports and hobbies, dressing and grooming. What's Your Excuse? Making the Most of What You Have / John Foppe. Nashville, TN: T. Nelson, 2002. ISBN: 0785266372 John Foppe shares his story of conquering the physical and emotional struggles of being born with no arms and teaches how attitude, self-respect, and faith in God can help anyone overcome obstacles. His education in clinical social work and his experience as a professional speaker give him unique insight on overcoming adversity. Here he reveals how to break through negative thinking and allow God to empower you to do great things. Also available in Spanish “Cual es tu excusa? : aprovecha al maximo lo que tienes.” ArticlesFacing Amputation Surgery: Assistive Devices Give Upper-Extremity Amputees a Helping Hand / Rick Bowers. Knoxville, TN: Amputee Coalition, 2001. Article from First Step: A Guide for Adapting to Limb Loss, volume 2, 2001. This article looks at simple and complex products that make life easier for prosthetic and nonprosthetic users. The Future is Now / Élan Young. Knoxville, TN: Amputee Coalition, 2007. Article from inMotion, November / December 2007. This article examines two upper-extremity amputees, Claudia Mitchell and Jessie Sullivan (bilateral), who participate in testing of the experimental nerve transfer procedure called Targeted Muscle Reinnervation (TMR) that can lead to more control in motorized myoelectric prostheses. Notes From the Medical Director: Grasping the Importance of Our Hands / Douglas G. Smith, MD. Knoxville, TN: Amputee Coalition, 2006. Article from inMotion, November / December 2006. This introduction to a series on upper-extremity limb loss tells us that hands perform a variety of intricate functions for a person. Dr. Smith discusses how and why hands help give identity and purpose to life, and introduces the topics of body image, surgery, pain and prosthetics as they relate to people with upper-extremity limb loss and limb difference. Notes From the Medical Director: Introduction to Upper-Limb Prosthetics: Part 1 / Douglas G. Smith, MD. Knoxville, TN: Amputee Coalition, 2007. Article from inMotion, March / April 2007. Part 1 in a series on upper-extremity amputees (UEA), Dr. Smith looks at the function of upper-limb prostheses, the role of the prostheses vs. residual limb and the individual choice that every UEA makes about when or whether to use a prosthesis. Notes From the Medical Director: Upper-Limb Prosthetics: Part 3: Insights About the Loss of Both Arms / Douglas G. Smith, MD. Knoxville, TN: Amputee Coalition, 2007. Article from inMotion September / October 2007. Part 3 of Dr. Smith’s series on upper-limb prosthetics discusses the impact of bilateral upper-limb loss and how this experience is unique for those who are born with no hands or arms. Children who have congenital bilateral upper-limb loss will benefit from learning to accomplish everyday tasks with their legs and feet as well as using prostheses. Notes From the Medical Director: Upper-Limb Prosthetics: Part 4: Insights About Acquired Loss of Both Arms / Douglas G. Smith, MD. Knoxville, TN: Amputee Coalition, 2008. Article from inMotion, March / April 2008. Dr. Smith uses Homer Parrish, a character from the 1946 film, "The Best Years of Our Lives," to illustrate the adjustment process and challenges of adapting to the amputation of both arms. Overcoming Limitations of the Mind / Christina DiMartino. Knoxville, TN: Amputee Coalition, 2004. Article from inMotion, January / February 2004. Cato Zahl Pedersen overcame arm amputations as a youth to become a Paralympic athlete, winning 13 gold medals in track, cross-country and downhill skiing. This story tells how he and two companions successfully walked across the South Pole. Standing Out in the Crowd / Rick Bowers. Knoxville, TN: Amputee Coalition, 2001. Article from inMotion, November / December 2001. This article looks at the story of college student Jessica Cox. Jessica was born without arms, but hasn't let that keep her from doing the things she wants to do in life. Surviving in a Two Handed World” / Rick Bowers. Knoxville, TN: Amputee Coalition, 2001. Article from inMotion, July / August 2001. This article looks at two bilateral upper-extremity amputees that have learned to take their lives into their own "hands." Swept Off Your Feet / John P. Foppe. Knoxville, TN: Amputee Coalition, 2006. Article from inMotion, January / February 2006. John Foppe is a motivational speaker, a disability coach, and was born without arms. In this article, Foppe discusses how he overcame his own emotional barriers and fear of rejection. He tells the reader how he and his wife met and started their relationship. PubMedThe Activation of the Cortical Hand Area by Toe Tapping in Two Bilateral Upper-Extremities Amputees With Extraordinary Foot Movement Skill / Yu X, Zhang S, Liu H, Chen Y. Citation to Article: Magnetic Resonance Imaging, 2006 Jan; 24(1):45-50. www.ncbi.nlm.nih.gov/pubmed/16410177 Expert Opinions on Success Factors for Upper-Limb Prostheses / Schultz AE, Baade SP, Kuiken TA. Citation to Article: Journal of Rehabilitation Research and Development, 2007; 44(4):483-90. Targeted Reinnervation to Improve Prosthesis Control in Transhumeral Amputees. A Report of Three Cases / O'Shaughnessy KD, Dumanian GA, Lipschutz RD, Miller LA, Stubblefield K, Kuiken TA. Citation to article: Journal of Bone Joint Surgery, American ed., 2008 Feb; 90(2):393-400. Upper-Limb Prosthetics: Critical Factors in Device Abandonment / Biddiss E, Chau T. Citation to Article: American Journal of Physical Medicine & Rehabilitation, 2007 Dec; 86(12):977-87. VideosArmed With Hope / John Foppe. Carrollton, TX: Zig Ziglar Corp., 1993. DVD. Go behind the scenes into the everyday life of this remarkable young man as he shares his hopes, fears and dreams. Discover how an armless man handles tasks that most of us take for granted, like driving a car or cracking an egg. You'll meet John's parents, who share how "tough love" played an important role in shaping John's values and attitude toward life. John's story is an inspirational example of how to turn stumbling blocks into stepping stones for a brighter future. Bilateral Shoulder Disarticulation: Self-Care and Use of Complementary Hybrid Prostheses. Chicago, IL: Rehabilitation Institute of Chicago, c1993. VHS. Demonstrates life skills of one individual who lost both shoulders and arms after an electrical accident. Demonstrates the use of hybrid prostheses to perform basic functions, including hygiene, eating, driving a car, and work. Child Care with Bilateral Transradial Amputations. Chicago, IL: Rehabilitation Institute of Chicago, 1995. VHS. Jeff Gaines, a bilateral below-elbow amputee, demonstrates how he is completely independent in caring for his young children. He uses both body-powered and externally powered prostheses to prepare baby bottles, feed the baby, take off the baby's jacket, change diapers, and place the baby in stroller and car seat. Although Jeff learned to take care of his baby with the body-powered prosthesis and split hooks he was initially fitted with, he prefers his myoelectric prosthesis for these activities and now uses his myoelectrics full time. No Arms Needed: A Hero Among Us / Advanced Medical Production, Inc. Cicero, NY: Program Development Associates, 2003. DVD. This documentary follows Marty Ravellette, who was born without arms. He has spent his life using his feet to perform tasks that most of us accomplish with our hands. He eats and drinks, lights and smokes his cigarettes, drives a van, dresses himself, shoots pool, and fishes. Marty’s story is about self-determination, discrimination, advocacy and inclusion. Patti's Paradigm. San Jose, CA: Simcoe Communications, 1990. VHS. Having lived most of her adult life as a bilateral upper-extremity amputee, Patti Starr offers a superb comparison of her functional abilities and cosmetic appearance with and without a prosthesis. Choosing to live her life independently without a prosthesis, she demonstrates activities such as dressing, grooming, cooking and many other personal and household activities. Prosthetic Fitting and Self-Care Skills in Bilateral Above-Elbow Traumatic Amputee / Chicago, IL: Rehabilitation Institute of Chicago 1992. VHS. Jack Uellendahl discusses the details of a patient’s arm prosthetics, including how the amputee takes a shower, uses the restroom, shaves and gets dressed. The Use of Upper-Extremity Prostheses/ Art Heinze. Thief River Falls, MN: Dynamic Rehab Videos, [19--].VHS and DVD. Art Heinze has both above- and below-elbow amputations and is the Director of Occupational Therapy at Northwest Medical Center in Thief River Falls, Minnesota. In this video, Art discusses psychosocial adjustment to amputation and levels of amputation and demonstrates types and parts of body-powered prostheses, how the prosthesis works, and activities of daily living. This video shows Art functioning in a variety of real-life situations. He talks about shaking hands, attending to personal hygiene, getting dressed, eating, holding a dancing partner, bathing without prostheses, and putting other people at ease. This is not a video for bilateral amputees only; it's also useful for either above- or below-elbow amputees because he uses and demonstrates both kinds of body-powered prostheses. It's instructional for families, therapists, nurses, doctors, counselors, and prosthetists. It's also a video for those who simply want to see a real person, dealing with real-life situations with a good sense of humor ‑ without arms. Web sitesArm-Amp.com / Bill Baughn. 1996-. Use this Web site’s electronic mailing list to find information and support for adults with congenital or acquired upper-limb difference or chat online with other arm amputees. Association of Children's Prosthetic-Orthotic Clinics (ACPOC). Rosemont, IL: ACPOC, 2001. ACPOC is an association of professionals who are involved in clinics that provide prosthetic-orthotic care for children with limb loss or orthopaedic disabilities. Farming With an Arm Amputation / AgrAbility. West Lafayette, IN: Purdue University, 2001. This AgrAbility Tip Sheet on reducing potential for secondary injuries, has many tips for UEA farmers. Helping Hands Foundation. Medfield, MA: Helping Hands Foundation, 2002-. Helping Hands Foundation, Inc. is a nonprofit support group made up of parents who have children with upper-limb differences and who are concerned with the challenges facing the child and the entire family. International Child Amputee Network I-CAN! / Bill Baughn. 1996-. This Web site contains information about an Internet mailing list that provides information and support contacts to children with absent or underdeveloped limbs and their parents. LimbDifferences.org: an online resource for families and friends of children with limb differences. [ United States]: LimbDifferences.org, 2002-. This site is a continuation of the super-kids.org Web site and newsletter. The site aims to provide practical information as well as emotional support for families and friends of children with limb differences. Superhands: For Kids and Adults With Hand and Upper-Limb Differences / developed by Steve Geigle. [ United States: s.n., 199-]-. Superhands is a forum for anyone to learn about and network with adults and youth who have hand or upper-limb differences. |
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