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Pain

May 2005

People with limb loss have particular information needs. Topic of the Month is a resource guide of information relevant to amputees. Click on the links below to access articles and Web sites directly. Many of the books and videos can be borrowed through Interlibrary Loan.

Many more resources can be found by searching our online library. Please feel free to share this resource with those who may find this useful. We also welcome your comments and topic suggestions! Contact us via e-mail at library@amputee-coalition.org.

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Books

Atlas of Common Pain Syndromes / Steven D. Waldman with illustrations by David A. Rini and Tim Phelps. Philadelphia: Saunders, 2002. This atlas focuses on specific pain syndromes by examining diagnostic codes, signs and symptoms, physical findings, laboratory and radiographic testing, treatment options, and clinical pearls.

Basics of Anesthesia / Ronald D. Miller and Robert K. Stoelting. 4th ed. New York: Churchill Livingstone, 2000. This book covers all features of anesthesia and includes an entire chapter talking about pain management.

Conquer Pain the Natural Way: A Practical Guide / Leon Chaitow. San Francisco: Chronicle Books, 2002. Dr. Leon Chaitow describes how you can regain control over pain using simple, proactive techniques such as a modified diet, targeted exercise, and careful stretching, as well as how to tap into your own therapeutic powers with visualization, meditation, and stress relief. Treatments such as massage, acupuncture, and hydrotherapy are also discussed.

Handbook of Bereavement Research: Consequences, Coping, and Care / edited by Margaret S. Stroebe et al. Washington, DC: American Psychological Association, 2001. This handbook provides an up-to-date, comprehensive review of scientific knowledge about bereavement.

In the Face of Pain: Pain Management Advocacy Toolkit / Purdue Pharma, L.P. Stamford, CT: Purdue Pharma L.P., [2004]. This toolkit provides information to those who advocate for pain management. Background material, tips for navigating media and government systems, examples of effective advocates, and resources are included.

Pain: The Science of Suffering / Patrick Wall. New York: Columbia University Press, 2000. This book explores what is known about pain and different ways to relieve it. These can include: the power of placebos, drugs and surgery, relaxation techniques, exercise, acupuncture, electrical nerve stimulation, and herbalism.

Pain in Infants, Children, and Adolescents / Charles B. Berde, Neil L. Schechter, and Myron Yaster, eds. 2nd ed. Philadelphia: Lippincott Williams & Wilkins, 2003. This text discusses pain, pain treatment, and unique pain problems that occur in infants, children, and adolescents.

Pain Management in Rehabilitation / Martin Grabois and Trilok N. Monga, eds. New York, NY: Demos Medical Pub., 2002. This book provides information about the diagnosis and management of various pain syndromes in patients with disabling diseases.

Personality Characteristics of Patients With Pain / Robert J. Gatchel and James N. Weisberg, eds. Washington, DC: American Psychological Association, 2000. This book presents a comprehensive review of the personality factors that affect the experience of, and adaptation to, pain. This book describes the newest advances in this up-and-coming area of clinical research and provides practical guidance for clinical interventions.

Recrafting a Life: Solutions for Chronic Pain and Illness / Charlie Johnson and Denise Webster. New York: Brunner-Routledge, 2002. Johnson and Webster look at Solution-Focused Brief Therapy as a way to help those with chronic pain and illness "recraft" their life.

Surgical Management of Pain / edited by Kim Burchiel. New York: Thieme, 2002. This book is a review of the entire field of neurosurgical pain management. Topics covered include: pain neuroanatomy, physiology, pathophysiology, new procedures that minimize invasiveness and postoperative neurological deficiencies, and the entire scope of surgical and medical management of pain.

The Truth About Chronic Pain: Patients and Professionals on How to Face It, Understand It, Overcome It / Arthur Rosenfeld. New York: Basic Books, 2003. This book looks at the factors that prevent pain patients from getting the relief they need. These factors include insurance company limits, misconceptions about “toughing it out,” and fears of painkiller addiction. Thirty-six authorities on pain, including patients, healthcare professionals, ethicists, social commentators, and scientists, all contribute to this book.

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Fact Sheets

Pain Management and the Amputee / by Partners Against Pain and the National Limb Loss Information Center. Revised 2004 edition. Stamford, CT: Partners Against Pain [publisher]; Knoxville, TN: Amputee Coalitionn [distributor], 2003. This fact sheet provides important — and practical — information you can use to get the help you need to manage your pain. In many instances, pain will decrease over time. However, in some cases it may be necessary to take more aggressive steps to control pain. The information contained in this fact sheet is provided to give you information to cover all eventualities.

http://www.amputee-coalition.org/fact_sheets/painmgmt.html

http://www.amputee-coalition.org/fact_sheets/painmgmt.pdf

http://www.amputee-coalition.org/spanish/painmgmt2003.html

http://www.amputee-coalition.org/spanish/painmgmt2003.pdf

http://www.amputee-coalition.org/easyread/fact_sheets/painmgmt-ez.html

http://www.amputee-coalition.org/easyread/fact_sheets/painmgmt-ez-spa.html

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First Step Articles

“Facing Amputation Surgery: Pain: What to Expect” / Amputee Coalition Staff Writers. Knoxville, TN: Amputee Coalition, 2001. First Step: A Guide for Adapting to Limb Loss (2001). This article summarizes the various types of pain associated with amputation.

http://www.amputee-coalition.org/first_step/firststepv2_s1a07.html

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inMotion Articles

“Capturing the Phantom” / Christina DiMartino. Knoxville, TN: Amputee Coalition, 2000. inMotion, September / October 2000. This article discusses the common problem of phantom limb pain from various perspectives and stresses the importance of education about phantom pain for both patients and physicians.

http://www.amputee-coalition.org/inmotion/sep_oct_00/phantom.html

“Chiropractic Medicine and the Amputee” / Abbey Smith. Knoxville, TN: Amputee Coalition, 2003. inMotion, July / August 2003. This article looks at chiropractic medicine as one treatment option for back pain in amputees.

http://www.amputee-coalition.org/inmotion/jul_aug_03/chirop.html

http://www.amputee-coalition.org/inmotion/jul_aug_03/chirop.pdf

“Notes From the Medical Director: Life Without Pain Can Really Hurt You” / Doug Smith. Knoxville, TN: Amputee Coalition, 2002. inMotion, March / April 2002. Doug Smith, Amputee Coalition's medical director, discusses problems associated with chronic pain, and the problems that can arise from not having pain as an indicator that something is wrong.

http://www.amputee-coalition.org/inmotion/mar_apr_02/meddir.html

http://www.amputee-coalition.org/inmotion/mar_apr_02/meddir.pdf

“Notes From the Medical Director: The Phantom Menace, Part I” / Doug Smith. Knoxville, TN: Amputee Coalition, 2002. inMotion, July / August 2002. Doug Smith, the Amputee Coalition medical director, talks about phantom pain.

http://www.amputee-coalition.org/inmotion/jul_aug_02/pain.html

http://www.amputee-coalition.org/inmotion/jul_aug_02/pain.pdf

http://www.amputee-coalition.org/spanish/pain.html

http://www.amputee-coalition.org/spanish/pain.pdf

“Notes From the Medical Director: The Phantom Menace, Part II: Fighting the Phantoms” / Doug Smith. Knoxville, TN: Amputee Coalition, 2002. inMotion, September / October 2002. In this article, Doug Smith, Amputee Coalition medical director, discusses medications, nutritional supplements, and the importance of a positive mental attitude in fighting phantom pain.

http://www.amputee-coalition.org/inmotion/sep_oct_02/phantom.html

http://www.amputee-coalition.org/inmotion/sep_oct_02/phantom.pdf

“Notes From the Medical Director: The Phantom Menace, Part III: Physical Modalities” / Doug Smith. Knoxville, TN: Amputee Coalition, 2002. inMotion, November / December 2002. In this, the third “Phantom Menace” article, Dr. Doug Smith looks at a variety of methods, including alternative techniques, for combating phantom limb pain.

http://www.amputee-coalition.org/inmotion/nov_dec_02/phantl.html

http://www.amputee-coalition.org/inmotion/nov_dec_02/phantl.pdf

“Pain Management” / G. Edward Jeffries. Knoxville, TN: Amputee Coalition, 1998. inMotion May / June 1998. Post-amputation pain is examined, including the ways in which the pain that we experience is actually "felt" by each of us.

http://www.amputee-coalition.org/inmotion/may_jun_98/painmgt.html

“Pain Management: A Discussion of the Various Techniques and Types of Drugs Currently Available for Pain Control With Medicines” / Christina Skoski. Knoxville, TN: Amputee Coalition, 1998. inMotion, September / October 1998. Christina Skoski, MD, discusses the various techniques and types of drugs currently available for pain control with medicines.

http://www.amputee-coalition.org/inmotion/sep_oct_98/painmgt.html

“Pain Management: Perioperative Pain” / G. Edward Jeffries. Knoxville, TN: Amputee Coalition, 1998. inMotion, May / June 1998. Dr. Jeffries discusses pain experienced around the time of an amputation.

http://www.amputee-coalition.org/inmotion/jul_aug_98/pain.html

“Pain Management: Post-Amputation Pain” / G. Edward Jeffries. Knoxville, TN: Amputee Coalition, 1998. inMotion, March / April 1998. Dr. Jeffries discusses pain experienced following an amputation.

http://www.amputee-coalition.org/inmotion/mar_apr_98/pain_mgt/page1.html

“Prevention: The Next Chapter on Phantom Limb Pain” / Thom Bloomquist. Knoxville, TN: Amputee Coalition, 2001. inMotion, November / December 2001. Thom Bloomquist, a certified registered nurse anesthetist, discusses phantom pain. He looks at different sources of the pain and options for combating it.

http://www.amputee-coalition.org/inmotion/nov_dec_01/prevention.html

http://www.amputee-coalition.org/inmotion/nov_dec_01/prevention.pdf

“Prosthetic Primer: Pain and Inactive Residual Extremity Syndrome” / Jan Ertl. Knoxville, TN: Amputee Coalition, 2000. inMotion, September / October 2000. Through his clinical observations and using his regenerative surgical principles, Dr. Janos Ertl, Sr., sought to reestablish a pain-free residual extremity that would actively participate in ambulation. The problems he wished to combat continue to exist today and we have termed this complex set of symptoms as "Inactive Residual Extremity Syndrome (IRES)."

http://www.amputee-coalition.org/inmotion/sep_oct_00/prosth.html

“What Makes Reflex Sympathetic Dystrophy So Complicated?” / Alfie Burns. Knoxville, TN: Amputee Coalition, 2004. inMotion, September / October 2004. This article discusses Reflex Sympathetic Dystrophy (RSD). Causes, signs and symptoms, diagnosis, treatment options and coping techniques are examined.

http://www.amputee-coalition.org/inmotion/sep_oct_04/rsd.html

http://www.amputee-coalition.org/inmotion/sep_oct_04/rsd.pdf

http://www.amputee-coalition.org/spanish/sep_oct_04/rsd.html

http://www.amputee-coalition.org/spanish/sep_oct_04/rsd.pdf

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PubMed® Abstracts

“A Placebo-Controlled Randomized Crossover Trial of the N-Methyl-D-Aspartic Acid Receptor Antagonist, Memantine, in Patients with Chronic Phantom Limb Pain” / K. Wiech et al. Anesthesia and Analgesia 98(2):408-13. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=14742379&dopt=Abstract

“Association of Pain With Employment Status and Satisfaction Among Amputees in Japan” / M. Ide et al. Archives of Physical Medicine and Rehabilitation 83(10):1394-8.

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=12370875&dopt=Abstract

“Chronic Low Back Pain in Traumatic Lower Limb Amputees” / J. Kulkarni et al. Clinical Rehabilitation 19(1):81-6. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_uids=15704512

“Chronic Pain in Land Mine Accident Survivors in Cambodia and Kurdistan” / H. Husum et al. Social Science & Medicine 55(10):1813-6.
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=12383465&dopt=Abstract

“Chronic Pain Secondary to Disability: A Review” / D.M. Ehde et al. The Clinical Journal of Pain 19(1):3-17. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=12514452&dopt=Abstract

“Describing Pain with Physical Disability: Narrative Interviews and the McGill Pain Questionnaire” / B.J. Dudgeon et al. Archives of Physical Medicine and Rehabilitation 86(1):109-15. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_uids=15641000

“Effects of Botulinum Toxin Type B on Stump Pain and Involuntary Movements of the Stump” / U. Kern et al. American Journal of Physical Medicine & Rehabilitation 83(5):396-9. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_uids=15100632

“EMDR in the Treatment of Chronic Pain” / M. Grant and C. Threlfo. Journal of Clinical Psychology 58(12):1505-20. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_uids=12455018

“Five Early Accounts of Phantom Limb in Context: Pare, Descartes, Lemos, Bell, and Mitchell” / S. Finger and M.P. Hustwit. Neurosurgery 52(3):675-86. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=12590694&dopt=Abstract

“Joint Stiffness in a Phantom Limb: Evidence of Central Nervous System Involvement in Rheumatoid Arthritis” / R.C. Haigh et al. Rheumatology 42(7):888-92.
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=12730550&dopt=Abstract

“Psychosocial Predictors of Physical Performance in Disabled Individuals With Chronic Pain” / T.E. Rudy et al. The Clinical Journal of Pain 19(1):18-30. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=12514453&dopt=Abstract

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Video Recordings

Controlling Pain: Nonpharmacologic Approaches to Pain Management / presented by Debra Wertheimer. Baltimore, MD: VideoPress, University of Maryland School of Medicine, 2002. Dr. Wertheimer works with nursing staff and residents to stress the importance of addressing pain. To emphasize this message, residents clearly communicate the debilitating impact of pain and how it destroys quality of life. This video focuses on approaches to pain management that do not require medication.

Life Without a Limb: Amputees Speak Out . Louisville, KY: Frazier Rehab Center, [199-]. Amputees talk about how a positive attitude helps them lead active, independent, fulfilling lives. Phantom pain and emotional issues are also discussed.

Pain Management / a production of Dartmouth-Hitchcock Medical Center. Sherborn, MA: Aquarius Health Care Videos, 1999. The program shows what the viewer can expect when recovering from surgery, dealing with cancer, or coping with chronic pain from back or nerve injuries.

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Web Resources

ACPA Medications & Chronic Pain Supplement 2004 / American Chronic Pain Association. Rocklin, CA: American Chronic Pain Association, 2004. This document contains information on various medications used to treat pain. Web links for certain medications and relevant Web sites of interest are also included. http://www.theacpa.org/documents/ACPA%20Meds%202004%20SDSF%20Final.pdf

American Academy of Pain Management. Sonora, CA: American Academy of Pain Management, 1997-. This site contains information about the American Academy of Pain Management and its activities, as well as information for pain patients and professionals. http://www.aapainmanage.org

American Chronic Pain Association. Rocklin , CA : American Chronic Pain Association, [199-]-. The American Chronic Pain Association (ACPA) is a nonprofit, tax-exempt organization with more than 400 chapters in the United States, Canada, Australia, New Zealand, Mexico, England, Ireland, Wales, Scotland, India, Jordan, and Russia. ACPA provides a support system for people with chronic pain through education in pain management skills and self-help group activities.

http://www.theacpa.org

American Pain Foundation. [ Baltimore, MD]: American Pain Foundation, [200-]-. The American Pain Foundation (APF) is an independent, nonprofit 501(c)3 organization serving people with pain through information, education and advocacy. The APF mission is to improve the quality of life for people with pain by raising public awareness, providing practical information, promoting research, and advocating to remove barriers and increase access to effective pain management.

http://www.painfoundation.org

EMDR: Eye Movement Desensitization and Reprocessing / EMDR Institute, Inc. Watsonville, CA: EMDR Institute, Inc., [199-]-. Originally used by some in the treatment of Post-Traumatic Stress Disorder, Eye Movement Desensitization and Reprocessing, a type of psychotherapy treatment, is now being used for other disorders such as chronic pain. http://www.emdr.com

Pain Advocacy Community . Stamford, CT: Purdue Pharma L.P., 2004-. This site includes resource guides, a pain management advocacy toolkit, and archived copies of the e-newsletter, “Pain Advocacy Community.” http://www.partnersagainstpain.com/painadvocacycommunity

Pain after Amputation: A Lifelong Problem? / Richard A. Sherman. [ Port Angeles, Washington]: Behavioral Medicine Research and Training Foundation, 1997. This article gives an overview of probable causes of pain after amputation. http://www.behavmedfoundation.org/pdf/painamputation1.pdf

Pain and the Problem Causing It Aren't Always in the Same Place / Richard A. Sherman and Douglas E. Hemler. [ Port Angeles, Washington]: Behavioral Medicine Research and Training Foundation, 1993. This article looks at pain and how it can be caused by problems in areas of the body distant from the actual location of the pain. http://www.behavmedfoundation.org/pdf/paincauses.pdf

Pain.com: A World of Information on Pain. [ Texas]: Dannemiller Memorial Educational Foundation, 1997-. This site provides information for both the professional and the consumer on pain and pain management.

http://www.pain.com

Prosthesis Use Tied to less 'Phantom' Limb Pain . Pleasanton, CA: PersonalMD, 1999. German researchers have reported that extensive use of a myoelectric prosthetic limb may help prevent phantom limb pain.

http://www.personalmd.com/news/a1999051710.shtml

Reflex Sympathetic Dystrophy Syndrome Association . Milford, CT: Reflex Sympathetic Dystrophy Syndrome Association, [19--]-. This site provides information to those affected by Reflex Sympathetic Dystrophy Syndrome (RSD or RSDS), which is also known as Complex Regional Pain Syndrome. This Web site gives patients, family members, healthcare professionals, and others information on treatment, legislation, support groups, research, fundraising and patient stories.

http://www.rsds.org