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Pebbles :: You can be the pebble in the pond
September 2009 Volume 1, Issue 3 :: A Quarterly Publication of the Amputee Coalition
Ripples - Spotlight on Donor, Jessica Nesin
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A Young Donor’s Inspiring Example

Jessica NesinMost people don’t expect children and teens to freely part with their allowances or money earned from their jobs if it isn’t for some new gadget, movie or fashionable item of clothing. So when a young person does make a donation to a charitable organization, it stands out.

Meet Jessica Nesin, a 15-year-old tenth grader who gave a gift of $18 toward the Amputee Coalition’s parity campaign. Eighteen is a spiritual number for many Jews, including Nesin, and is connected to the word “Chai,” a Hebrew symbol and word that means “Life.” For this reason, Nesin’s gift takes on new significance.

Nesin has been a member of the Amputee Coalition since meeting Paddy Rossbach, former Amputee Coalition president and CEO, who helped her and her family through some tough times. “I will always be grateful for her help,” says Nesin.

Nesin, born with PFFD (Proximal Femoral Focal Deficiency) and a Symes amputee as of 18 months, acknowledges her good fortune to have been covered by her mother’s insurance, which has never denied her a leg as she has grown up. But Nesin knows that many other children cannot get the prosthetic devices they need to live normal lives. This is why Nesin’s family has donated all of her outgrown prosthetic legs to Limbs for Life, an organization that provides prosthetic limbs to children whose parents do not have insurance or can’t otherwise afford them.

“I have never had to settle for anything. I am very fortunate because I know that this is not true for a lot of people,” says Nesin. “In fact, I finally had a C-leg made a couple of years ago when I finished growing, and the insurance covered everything.”

Being an amputee has not stopped Nesin from enjoying life with her family and friends.
From swimming to snow skiing, to playing violin and piano, Jessica participates in numerous activities. Nesin attends Mannes College in Manhattan every Saturday, where she studies music in the preparatory division, and she recently returned from a month at the Lake Luzerne Music Center in upstate New York, where she participated in chamber music. One day she hopes to become a music educator. “I use the piano pedals with a prosthetic leg, even though it can be a challenge at times,” she says.

“Being an amputee has not stopped me from doing the things I truly want to do,” says Nesin, who attributes her can-do attitude to her parents and their support for her. In February, Nesin had to face the greatest challenge of her life when her father passed away, whom she misses terribly. “He taught me to be sensitive to the needs of others, especially those less fortunate,” says Nesin. “I hope to continue to advocate for the people who need help especially those who are physically challenged.”

 

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Pebbles is partially supported by cooperative agreement #5U59DD000347 from the National Center on Birth Defects and Disabilities, Centers for Disease Control and Prevention (CDC). Its contents are solely the responsibility of the authors and do not necessarily represent the official views of the CDC, the sponsoring organizations, or the Amputee Coalition. It is not the intention of the Amputee Coalition to provide specific medical advice but rather to provide readers with information to better understand their health and healthcare issues. The Amputee Coalition does not endorse any specific treatment, technology, company or device. Consumers are urged to consult with their healthcare providers for specific medical advice or before making any purchasing decisions involving their care. No funding from the CDC is used to support Amputee Coalition advocacy efforts. ©2009 by Amputee Coalition; all rights reserved. This publication may not be reproduced in whole or in part without written permission of the Amputee Coalition.

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The Amputee Coalition never sells member information, including e-mail addresses, to third parties.

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