Expectations - Volume 1, Issue 1, 2005

Follow the Yellow Brick Road
Assistance Sources for Children and Teens With Limb Differences

by Bill Dupes

Expectations - Parenting Children and Teens With Limb Differences

image: dollar sign and yellow brick roadWith the constant progress of technology, more and more options are becoming available to help children with disabilities take care of themselves, interact comfortably with their peers, go to school, and learn to live independently. But where do you begin if, like most people, you need to find financial assistance to afford the equipment or services that you and your child need? The following resources represent only the tip of the iceberg in terms of the information and help that are out there: recycled assistive devices, emergency medical transportation, healthcare assistance, and home and vehicle modifications. Even when you find your direction, you may have to navigate your way through a maze of paperwork, rules, regulations, requirements and restrictions. But you can do it. All it takes is a little brains, some courage, and a steadfast heart.

Adapting Motor Vehicles for People With Disabilities

888/327-4236

www.nhtsa.dot.gov/cars/rules/adaptive/brochure/index.html

 

Administration for Children & Families

866/674-6327

www.acf.hhs.gov/acf_services.html#energy

 

Alliance for Technology Access

707/778-3011

www.ataccess.org

 

American Amputee Foundation

501/666-2523

www.americanamputee.org

 

American Association of People with Disabilities

800/840-8844

www.aapd.com/links/linkscholarshipawards.html

 

Amputee Resource Foundation of America

612/812-7875

www.amputeeresource.org

 

Barr/United Amputee Assistance Fund

561/394-6514

www.oandp.com/resources/organizations/ barr/index2.htm

 

Care Entrée

972/522-2000

www.careentree.com

 

Disabled Children’s Relief Fund

www.dcrf.com

 

Disabled Dealer Magazine

888/521-8778

www.disableddealer.com

 

eBay – Disability Resources

pages.ebay.com/disability-resources

 

Elks of the USA

773/755-4700

www.elks.org/lodges/default.cfm

 

FinAid

www.finaid.org/otheraid/disabled.phtml

 

Georgetown Univ. Health Policy Inst.

www.healthinsuranceinfo.net

 

GovBenefits.gov

800/333-4636

www.govbenefits.gov/govbenefits

 

Habitat for Humanity

229/924-6935, ext. 2552

www.habitat.org/local

 

HealthCove

800/796-5558

www.healthcove.com

 

Higher Education & Adult Training for People with Handicaps

800/544-3284

www.heath-resource-center.org

 

Limbs for Life Foundation

888/235-5462

www.limbsforlife.org

 

Lions Clubs International

630/571-5466

www.lionsclubs.org

 

The Medicine Program

866/694-3893

www.themedicineprogram.com

 

NationalMobility Equipment Dealers Association

800/833-0427

www.nmeda.org

 

NationalPatient Air Transport Helpline

800/296-1217

www.npath.org

 

NationalRehabilitation Information Ctr.

800/346-2742

www.naric.com

 

New Beginnings Prosthetic Ministries

949/230-1999

www.newbeginnings2000.org

 

Partnership for Prescription Assistance

888/477-2669

https://www.pparx.org/Intro.php

 

Prosthetic Education Project for Parents

866/696-2767

www.myoelectric-prostheticfitting-and-funding-for-children.com

 

Rotary International

847/866-3000

www.rotary.org/services/clubs/index.html

 

St. Jude Children’s Research Hospital

866/2STJUDE

www2.stjude.org/contact_us

 

Shriners

800/237-5055

www.shrinershq.org/hospit.html

 

SSI Benefits for Children With Disabilities

800/772-1213

www.ssa.gov/pubs/10026.html

 

TechnicalAssistance Project

703/524-6686

www.resna.org/taproject

 

Variety Clubs International

888/852-1300

www.usvariety.org

For more information, contact the Amputee Coalition of America (www. amputee-coalition.org, 888/267-5669).


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