Expectations - Volume 1, Issue 1, 2005

Resources

Expectations - Parenting Children and Teens With Limb Differences

 

ACPOC: The Association of Children's Prosthetic-Orthotic Clinics

www.acpoc.org

 

Beach Center on Disability

www.beachcenter.org

785/864-7600

 

Birth Defect Research for Children, Inc.

www.birthdefects.org/about.htm

407/895-0802

 

Challenged Athletes Foundation

www.challengedathletes.org

858/793-9293

 

Disabled Sports USA

www.dsusa.org

301/217-0960

 

Exceptional Parent

www.eparent.com

 

Family Center on Technology and Disability

www.fctd.info

202/884-8068

 

Family Village

www.familyvillage.wisc.edu/index.htmlx

 

Federation for Children with Special Needs

www.fcsn.org

617/236-7210

 

Generation Hope

www.genhopeusa.org

 

Helping Hands Foundation

www.helpinghandsgroup.org

 

ICDRI: The International Center for Disability Resources on the Internet

www.icdri.org

919/349-6661

 

IHSA Wheelchair Basketball Clinic& Camp

www.ihsa.org/wheelchair/index.htm

 

Insure Kids Now!

www.insurekidsnow.gov

877/543-7669

 

International Child Amputee Network: I-CAN!

www.child-amputee.net

 

Internet Resource for Special Children

www.irsc.org

 

KidsCamps.com

www.kidscamps.com

877/242-9330

 

Kids Together, Inc.

www.kidstogether.org

 

LimbDifferences.org: An Online Resource for Families and Friends of Children with Limb Differences

www.limbdifferences.org

 

National Arts and Disability Center

www.nadc.ucla.edu

310/794-1141

 

National Camp Association, Inc.

www.summercamp.org/index.html

800/966-2267

 

National Center on Secondary Education and Transition: Creating Opportunities for Youth With Disabilities to Achieve Successful Futures

www.ncset.org

612/624-2097

 

National Dissemination Center for Children and Youth with Disabilities

www.nichcy.org/index.html

800/695-0285

 

National Meningitis Association

www.nmaus.org

 

North American Riding for the Handicapped Association, Inc.

www.narha.org

800/369-7433

 

On the Other Hand

www.ontheotherhand.org/index.htm

 

PACER Center: Parent Advocacy Coalition for Educational Rights

www.pacer.org

952/838-9000

 

Amputee Coalition Parent Support Network

888/267-5669, ext. 8130

 

PFFD VSG2

For parents of children with proximal femoralfocaldeficiency. www.pffd.org

 

Shadow Buddies

www.shadowbuddies.com/page1.html

913/642-4646

 

Sibling Support Project

www.thearc.org/siblingsupport

206/297-6368

 

SNAP: Special Needs Advocate for Parents

www.snapinfo.org/home.html

888/310-9889

 

Special Child

www.specialchild.com/index.html

 

The Sports Group, Inc.

www.sportsgroupinc.com

405/974-3144

 

STARBRIGHT Foundation

www.starbright.org

310/479-1212

 

Super Hands

www.superhands.us

 

Unlimbited Possibilities, Inc.

www.unlimbitedpossibilities.org/about.html

 

Voices for America's Children

www.childadvocacy.org

 

VSA arts

www.vsarts.org

 

Wrightslaw

Special education law and advocacy for children with disabilities. www.wrightslaw.com

 

YAP Central Station

Amputee Coalition's Youth Activities Program. www.amputee-coalition.org/youth_camp.html 

 

“Because of You.” D. Shuck. Knoxville, TN: Amputee Coalition. Article from inMotion, May/June 2003.

 

“Bike Riding: Does Limb Difference Make a Difference?” Mary Vander Hoek. Knoxville, TN: Amputee Coalition. Article from inMotion, July/August 1999. www.amputee-coalition.org/inmotion/jul_ aug_99/bike.html

 

“The Child Amputee: An Overview.” http://jacpoc.oandp.com/library/1984_02_023.asp

 

“Children With Limb Loss.” www.survivinglimbloss.org/children_information.html

 

“Coping With a Sibling's Disability.” Linda Lee Ratto. Knoxville, TN: Amputee Coalition. Article from inMotion, June/July 1996. www.amputee-coalition. org/inmotion/jun_jul_96/copsibs.html

 

“Dreams of a Perfect Child.” Rick Bowers. Knoxville, TN: Amputee Coalition. Article from inMotion, January/February 2001. www.amputee-coalition. org/inmotion/jan_feb_01/parenting.html

 

“Early Fitting Is Key to Success.” Diane Atkins. Knoxville, TN: Amputee Coalition. Article fromFirst Step – A Guide for Adapting to Limb Loss, Volume 2, 2001 www.amputee-coalition.org/first_step/first-stepv2_s1a13.html

 

“Encouraging the Dream.” Rick Bowers. Knoxville, TN: Amputee Coalition. Article from inMotion, September/October 2003.

 

“Facing Congenital Limb Differences: A Child Is More Than an Arm or a Leg.”

Rick Bowers. Knoxville, TN: Amputee Coalition. Article fromFirst Step – A Guide for Adapting to Limb Loss, Volume 2, 2001. www.amputee-coalition. org/first_step/firststepv2_s1a12.html

 

“Farm-Related Limb Amputations in Children.” S. K. McClure and W. J. Shaughnessy. New York: Raven Press, 2005. www.ncbi. nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_ uids=15718888

 

“Giving Your Child the Gift of Self-Esteem.” Char Greer. Knoxville, TN: Amputee Coalition. Article from inMotion, July/August 1999. www.amputee-coalition.org/inmotion/ jul_aug_99/esteem.html

 

“Iron Will, Golden Dream.” Knoxville, TN: Amputee Coalition. Article from inMotion, November/December 2004.

 

“It Is Not What's Gone – But What's Given.” Jim Abbott. Knoxville, TN: Amputee Coalition. Article from inMotion, November/December 2003.

 

“Know Your Options: An Explanation of the Rotationplasty and Tibia Turn-Up Procedures.” Kevin Carroll. Knoxville, TN: Amputee Coalition. Article from inMotion, March/April2005. www.amputee-coalition.org/inmotion/mar_apr_05/rotationplasty.html

 

“A Miniature Hero.” Emily Remmert. Knoxville, TN: Amputee Coalition. Article frominMotion, May/June 2003.

 

“My Little Miracle.” Isabel Pereiras. Knoxville, TN: Amputee Coalition. Article from inMotion, September/October 2001. www.amputee-coalition.org/inmotion/sep_oct_01/miracle.html

 

“No Thanks, Grandma – I Can Do It Myself.” Christina DiMartino. Knoxville, TN: Amputee Coalition. Article from inMotion, March/April2004.

 

“On the Rocks – Using the Great Outdoors for Therapy.” Melanie Bland and Mary Carter. Knoxville, TN: Amputee Coalition. Article from inMotion, January/February 2003. www.amputee-coalition. org/inmotion/jan_feb_03/rocks.html

 

“Overcoming Limitations of the Mind.”

Christina DiMartino. Knoxville, TN: Amputee Coalition. Article from inMotion, January/February 2004. www.amputee-coalition.org/inmotion/ jan_feb_04/limitations.html

 

“The Parent-Child Caregiver Experience.” Jennifer Hesselschwerdt with Zahra Meghani. Knoxville, TN: Amputee Coalition. Article from inMotion, January/February 2000. www.amputee-coalition.org/inmotion/jan_feb_ 00/parentchild.html

 

“Parenting Primer: For Parents of Children with Disabilities.” Jenifer Simpson. Knoxville, TN: Amputee Coalition. Article from inMotion, July/August 1999. www.amputee-coalition.org/inmotion/ jul_aug_99/parent.html

 

“Pediatric Prosthetic Care Requires Special Considerations.” Chris Perry. Knoxville, TN: Amputee Coalition. Article from inMotion, May/June 2001. www.amputee-coalition.org/inmotion/may_ jun_01/primer.html

 

“Promote a Positive School Experience for a Child With Limb Loss.” Mary Vander Hoek. Knoxville, TN: Amputee Coalition. Article from inMotion, Summer 1995. www.amputee-coalition.org/inmotion/summer_95/school.html

 

“Psychosocial Considerations in Pediatrics: Use of Amputee Dolls.” www.oandp.org/jpo/library/1992_04_207.asp

 

“Rehabilitation Goalsfor Children With Multiple Amputations: A Holistic Approach.” S. Lisac and C. Olson. Knoxville, TN: Amputee Coalition. Articlefrom inMotion, May/June 2003.

 

“Summer Campsfor Children With Physical Disabilities.” Amputee Coalition Fact Sheet, 2005. www.amputee-coalition.org/fact_sheets/kidscamps.html

 

“SurgicalOptionsfor Children With Osteosarcoma.” R.J. Grimer. London: Lancet Publishing Group, 2005. www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_ uids=15683817

 

“Taking Charge: How to Become Your Child's Best Advocate.” Jenifer Simpson and Helen Rader. Knoxville, TN: Amputee Coalition ofAmerica. Article from inMotion, May/June 2001. www.amputee-coalition.org/inmotion/may_jun_01/childs.html

 

“Use Your Head – And Your Toes!” Julie Wiest. Knoxville, TN: Amputee Coalition. Article from inMotion, May/June 2003.

 

“A Voice of Her Own.” Zahra Meghani. Knoxville, TN: Amputee Coalition. Article from inMotion, September/October 1999. www.amputee-coalition.org/inmotion/sep_oct_99/voice.html

 

youthinMotion. (Publishedfrom 2002 through 2004). Knoxville, TN: Amputee Coalition. This publication is now an electronic magazine only (www.amputee-coalition.org)

 

 

For information on sources of funding for such things as prostheses, assistive devices, education, and housing and vehicle modifications, see page 26.


Back to Top Last updated: 01/01/2017
 
 Amputee Coalition Copyrighted by the Amputee Coalition. Local reproduction for use by Amputee Coalition constituents is permitted as long as this copyright information is included. Organizations or individuals wishing to reprint this article in other publications, including other World Wide Web sites must contact the Amputee Coalition for permission to do so.