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- Shark-Attack Survivor Accepts National “Free Spirit” Honor
Bethany Hamilton, a shark-attack survivor who overcame the loss of her left arm to return to the sport of surfing, has been acclaimed as a 2004 Free Spirit honoree.
- ADVOCACY UPDATE: Massachusetts Parity Bill
- ADVOCACY UPDATE: Estimate of Number of Persons Living with Limb Loss in NY State
- “The Best Thing in the World”
Raised in a small, supportive community, Jaymie Kraus didn’t learn about the adversities and opportunities of people with limb differences until she became an adult
- Colorado - Prosthetic and Orthotic Adult Benefit Summary
Providing Medicaid coverage for prosthetics saves money for states
- Massachusetts Financial Impact Statement for Prosthetic Coverage
Review and evaluation of proposed legislation to mandate coverage for certain prosthetic devices: H. 837
- Colorado - Prosthetic and Orthotic Adult Benefit Full Report
Providing Medicaid coverage for prosthetics saves money for states.
- NY Parity Bill introduced to NY Senate & Assembly
If we are to get these bills passed in this and other states we have to make a bigger noise than other groups also looking for mandates!
- APPLL Update: State Parity - May/June 2005 inMotion
- Bidding Demonstration: Setting the Record Straight for Prosthetic Consumers
- Do's and Don'ts of A Legislative Visit
- Steps to Effective Advocacy
- How Can I Get Help From My Congressional Representatives?
- ADVOCACY NEWS: Licensure vs. Certification: How It Can Affect You!
- Computerized Limb Coverage: A Letter to Practitioners and Bibliography
The American Orthotic and Prosthetic Association (AOPA) has joined together with manufacturers of myoelectric and computerized devices, and beneficiary representatives, to work on reversing certain imprudent medical policies regarding coverage of these de
- The Power of Peers
This article looks at the importance of peers in providing guidance and emotional support when faced with an amputation.
- Peer Visitor Support of Recent U.S. Military Amputees
This article takes a look at the peer visitation program in place at the Amputee Center at Walter Reed Army Medical Center.
- Facing Amputation Surgery: The Value of Peer Contact
This article talks about the value of peer support for amputees.
- Funding Raising for Your Support Group
This fact sheet discusses support group member involvement in fundraising. Ideas for different types of fundraisers are included as well.
- Starting a Support Group: The Basics
Starting a support group is a responsibility, a challenge, and a very meaningful experience. This fact sheet offers a listing of some basic steps needed to start a support group. Steps were compiled from successful support groups and organizations all ove
- Understanding ACA's Peer Network
This fact sheet offers an explanation of ACA's national peer network. Details covered include the network's purpose and how it works, as well as the required training for peer visitors.
- Giving Back - Couples Who Peer Visit
This article takes a brief look at couples that do peer visitation as part of the Amputee Coalition of America's National Peer Network.
- When Your Support Group Needs Support
This article takes a brief look at resources for support groups.
- You Don't Have to Deal With Amputation Alone
This article takes a brief look at the Amputee Coalition of America's National Peer Network.
- Peer Contact for Parents of Children with Congenital Amputation
Karen Neimanas discusses the role of peer visitor when parents are confronted with the birth of a child with a congenital limb difference.
- Notes from the medical director: first and foremost, listen!: lessons learned from mentors and peer visitors
Doug Smith, ACA Medical Director, discusses the important role that mentors can play in our lives and how a peer visitor can become a mentor.
- Communicator: Newsletter for amputee support group leaders
This site contains links to both HTML and PDF versions of the Communicator newsletter published for amputee support group leaders.
- On-line communication resources for those with limb loss
Resources for amputees or family members of amputees who would like to communicate with other amputees via Internet bulletin boards or e-mail lists.
- APPLL Executive Summary
Learn about ACA's Action Plan for Persons with Limb Loss (APPLL)
- Advocating For Your Child
- Cancer Was The Easy Part
- A Circle of Friends - The Power of Peer Support
- The Prosthesis and Its Components - Choices, Choices and More Choices
- When to Help Your Child and When to Let Go
- A Message From the President & CEO
- ACA Publications Win Two 2006 APEX Awards
The Amputee Coalition of America’s publications inMotion and Expectations – Parenting Children and Teens With Limb Differences have each won 2006 APEX Awards for Publication Excellence.
- New Faces at ACA Headquarters
The Amputee Coalition of America (ACA) is proud to announce three new additions to its staff.
- Military in-Step Now Available to All on the Amputee Coalition of America Web Site
In partnership with the United States Army Amputee Patient Care Program, the Amputee Coalition of America (ACA) published Military in-Step, a full-color, 100-page publication aimed at meeting the informational needs of returning military personnel with se
- ACA Announces New Youth Activities Program Coordinator
The Amputee Coalition of America (ACA) is proud to announce Derrick Stowell as the new Youth Activities Program (YAP) Coordinator, where he is responsible for the coordination of ACA’s four-day annual residential youth camp for over 60 children with limb
- ACA Announces New Youth Activities Program Coordinator
The Amputee Coalition of America (ACA) is proud to announce Derrick Stowell as the new Youth Activities Program (YAP) Coordinator, where he is responsible for the coordination of ACA’s four-day annual residential youth camp for over 60 children with limb
- Spanish-Speaking Amputees Now Have Access to Information Online
Did you know that Hispanic/Latino Americans are 1.5 times more likely to have diabetes than non-Hispanic/Latino whites of similar age?
- Amputee Coalition of America Releases Research Results
The Amputee Coalition of America (ACA) is proud to offer the results of a consumer survey completed by the Limb Loss Research & Statistics Program (LLR&SP), a collaboration of the ACA and the Johns Hopkins Bloomberg School of Public Health, in its new pub
- Caregivers Needed for Online Survey
The ACA’s online survey for January is designed to determine the impact of providing care for someone with limb loss. Responses to the survey will help the ACA identify caregiver needs and develop articles and fact sheets to address those needs.
- Getting Answers Just Got Easier Through the Amputee Coalition of America’s Online Library
The Amputee Coalition of America (ACA) helps people who are new to limb loss every day. Information specialists at the organization’s National Limb Loss Information Center (NLLIC) will send you information specific to your needs so that your family can st
- Online Registration Now Available
Register online for the 2007 ACA Annual Conference
- Now Accepting Nominations for the 2007 ACA Awards of Excellence!
The ACA Awards of Excellence program recognizes individuals who have worked to improve the lives of people living with limb loss and limb difference throughout the previous year.
- CARF Accepting Comments on Standards of Care of People With Limb Loss
- ACA 2007 Awards of Excellence Nominations Deadline is April 16th!
The ACA Awards of Excellence program recognizes individuals who have worked to improve the lives of people living with limb loss and limb difference throughout the previous year. The ACA wishes to recognize outstanding individuals in the categories of Vol
- Don’t Miss the Early-Bird Discount! Register for the ACA Annual Conference by May 15 and Save $125
Don’t Miss the Early-Bird Discount!
Register for the ACA Annual Conference by May 15 and Save $125
- It's Not Too Late to Register for the ACA Annual Conference!
- New ACA Publication - Free for a Limited Time!
Free Copy of New ACA Publication
SideStep: A Guide to Preventing and Managing Diabetes and Its Complications- no charge if ordered by June 1, 2007
- ACA User Surveys for June
ACA User Surveys for June
- Side Step: A Guide to Preventing and Managing Diabetes and Its Complications Now Available to Order
Information on ordering your own copy of SideStep
- ACA WARNS OF HIGH INCIDENCE AND HEAVY COST OF TYPE II DIABETES
ACA Joins Forces with Other Leading Health Organizations to Alert Americans to Importance of Good Diabetes Management to
Reduce Risks of Serious Health Complications
- AMPUTEE COALITION OF AMERICA EXPANDS ITS AMPUTEE PEER VISITATION PROGRAM FOR US MILITARY PERSONNEL WOUNDED IN IRAQ AND AFGHANISTAN
ACA Annual National Conference This Week in Marietta Will Focus on Rehabilitation Program for Wounded US Troops
and Other Issues Important to Amputees
- DENNY’S DONATES $15,000 TO AMPUTEE COALITION OF AMERICA
Denny’s has contributed $15,000 to the Amputee Coalition of America (ACA) Youth Camp.
- AMPUTEE COALITION SUMMER YOUTH CAMP IN WARM SPRINGS, GA
Young people from 26 states will soon be arriving at the Amputee Coalition of America Youth Camp in Warm Springs, GA
- ACA News: Paddy Rossbach to Retire Next Year as President
- We Need You to Help ACA Find a New President and CEO!
- Fitzgerald Joins BOC Board 10-16-07
- ACA News: ACA Celebrates New Location, Continued Funding
- Amputee Coalition of America Expands Youth Summer Camp
- Amputee Coalition of America Awarded New Multi-Year Grant by Centers for Disease Control and Prevention
- Amputee Coalition of America and Upper Ex National Outreach Coalition Collaborate to Meet Needs of People With Upper-Extremity Limb Loss
- It’s Time for the 2008 Amputee Coalition of America Awards of Excellence! Submit Your Nomination Today!
- AMPUTEE COALITION OF AMERICA LAUNCHES WEEK OF ACTION TO LIFT RESTRICTIONS ON INSURANCE COVERAGE FOR PROSTHESES
- Bridging the Gap: A charity fundraiser by Sea Kayak
- AMPUTEE COALITION OF AMERICA NAMES KENDRA CALHOUN PRESIDENT AND CEO
Knoxville, TN, August 7, 2008 – Kendra Calhoun has been named President and Chief Executive Officer of the Amputee Coalition of America, the leading national educational organization providing information and support to the more than 1.7 million individua
- MARYLAND PHYSICIAN APPOINTED MEDICAL DIRECTOR FOR AMPUTEE COALITION OF AMERICA
- Amputee Coalition of America Elects Lutz to Board
- Amputee Coalition of America Announces Winners of 2008 Awards of Excellence
- Amputee Coalition of America Announces Winners of 2008 Awards of Excellence
- Kix Brooks of Brooks and Dunn Headlines October 12 Franklin TN Benefit Concert for the Amputee Coalition of America and the Mending Limbs Organization
- Kix Brooks of Brooks and Dunn Headlines October 12 Franklin TN Benefit Concert for the Amputee Coalition of America and the Mending Limbs Organization
- Amputee Coalition of America Announces Christina Skoski, M.D., Scholarship Fund
- Otto Bock HealthCare Commits $60,000 to the Amputee Coalition of America
- Amputee Coalition of America and Orthotic & Prosthetic Assistance Fund Announce First Clinics Partnership
- Amputee Coalition of America and Orthotic & Prosthetic Assistance Fund Announce First Clinics Partnership
- Amputee Coalition of America Decries Furor Over TV Host With Congenital Limb Absence
- Amputee Coalition of America Decries Furor Over TV Host With Congenital Limb Absence
- Ohio Willow Wood Commits $10,000 to Amputee Coalition of America to Become Bronze Sponsor
- Ohio Willow Wood Commits $10,000 to Amputee Coalition of America to Become Bronze Sponsor
- Hanger Orthopedic Group Commits $40,000 to Amputee Coalition of America
- Amputee Coalition of America Names Marshall Cohen, Esq., Development Committee Chair
- Amputee Coalition of America Announces Creation of Upper Limb Loss Advisory Council
Robert D. Doty, Jr., MD, to Serve as Chair
- With Fireworks This July 4, the ACA Warns “The Next Blast Could Be Your Last”
- With Fireworks This July 4, the ACA Warns “The Next Blast Could Be Your Last”
- Purdue Pharma L.P. Donates $5,000 to Amputee Coalition of America
- ADVOCACY NEWS: ACA Working to Ensure that Amputees are Not Left Behind in Health Reform
- ADVOCACY NEWS: ACA Working to Ensure that Amputees are Not Left Behind in Health Reform
- ADVOCACY NEWS: ACA Signs on in Support of the Patient-Centered Outcomes Research Act of 2009
- ADVOCACY NEWS: ACA Signs on in Support of the Patient-Centered Outcomes Research Act of 2009
- OPAF Launches McKeever’s First Ride
- ADVOCACY NEWS: Senate HELP Protects Access to Assistive Devices
- ADVOCACY NEWS: Senate HELP Protects Access to Assistive Devices
- ADVOCACY NEWS: ACA and Partners Applaud the Inclusiveness of the Affordable Health Choices Act
- ADVOCACY NEWS: ACA and Partners Applaud the Inclusiveness of the Affordable Health Choices Act
- Connecticut: Vote on Monday. Take action TODAY!
- ADVOCACY NEWS: ACA Celebrates Progress in the Campaign for Hate Crimes Protections for People with Disabilities
- ADVOCACY NEWS: ACA Celebrates Progress in the Campaign for Hate Crimes Protections for People with Disabilities
- Amputee Coalition Youth Camp Shows Young Amputees That They Can Do Anything, Anywhere
Donate now and help support this inspirational program
- ADVOCACY NEWS: ACA Joins Allies in Pushing for Patient Centered Approach to Comparative Effectiveness Research
- ADVOCACY NEWS: ACA Joins Allies in Pushing for Patient Centered Approach to Comparative Effectiveness Research
- ADVOCACY NEWS: Progress in the Efforts to Protect Assistive Devices in Healthcare Reform
- ADVOCACY NEWS: Progress in the Efforts to Protect Assistive Devices in Healthcare Reform
- ADVOCACY NEWS: Progress and Problems in the Campaign for Hate Crimes Protections for People with Disabilities
- ADVOCACY NEWS: Progress and Problems in the Campaign for Hate Crimes Protections for People with Disabilities
- Double amputee loses legs, finds a cause
- HEALTH CARE REFORM: Call your members today!
- HEALTHCARE REFORM: Take action during the August recess!
- ADVOCACY NEWS: ACA Seeks Government Relations Specialist to Help Lead Policy Efforts
- ADVOCACY NEWS: ACA Seeks Government Relations Specialist to Help Lead Policy Efforts
- ADVOCACY NEWS: ACA Partners With AOPA and Hanger to Call for True Healthcare Reform
- ADVOCACY NEWS: ACA Partners With AOPA and Hanger to Call for True Healthcare Reform
- Winslow Therapeutic Riding to Host McKeever’s First Ride
- TAKE ACTION TODAY! Push for true healthcare reform!
- Members of Congress Receive Legislative Awards From National Amputee Organizations
- Ossur Commits $20,000 to Amputee Coalition of America’s Parity Campaign
- Ossur Commits $20,000 to Amputee Coalition of America’s Parity Campaign
- Amputee Coalition of America's Paddy Rossbach Youth Camp Announced
Knoxville, TN, October 9, 2009 – The Amputee Coalition of America announced that it has named its youth camp in honor of the organization’s former president & CEO, Paddy Rossbach.
- Amputee Coalition of America's Paddy Rossbach Youth Camp Announced
Knoxville, TN, October 9, 2009 – The Amputee Coalition of America announced that it has named its youth camp in honor of the organization’s former president & CEO, Paddy Rossbach.
- Get Ready for National Family Caregivers Month in November
November 2009 celebrates National Family Caregivers Month, a time to thank, support, educate and empower family caregivers – those individuals providing care to loved ones living with chronic illness, disability or the frailties of old age.
- Mending Limbs Organization to Hold Second Annual Benefit Concert
Event to raise awareness of need for adequate prosthetic insurance coverage for amputees
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People with limb loss who are in the path of Hurricanes should pay careful attention to local weather reports and emergency personnel. Above all, heed instructions to evacuate and make certain you inform emergency personnel that you have special needs.
Amputee Coalition of America Medical Director, Dr. Terrence Sheehan, cautions: “It's not enough to simply react in times of emergency. Advance preparation is needed to prevent, or at least minimize, damage and casualties. It's also not enough to rely on community services alone; you should also be as self-reliant as possible. Contact organizations such as your local emergency management agency, fire department, emergency medical services, and your local Red Cross for more information on how you can be prepared….Become familiar with your neighborhood, if you're not already, and where to find services you need and how to contact them.”
The Amputee Coalition of America recommends preparing a disaster survival kit. The kit should be based on your specific needs, but should include these basic items:
- battery-powered radio, flashlight and extra batteries
- first-aid supplies, especially those you might need for your residual limb
- prescription and over the counter medications in original containers
- water-purifying tablets
- blanket and sleeping bag
- change of clothing, extra liners and sturdy footwear
- personal hygiene items
- envelope of important documents, including contacts, ID cards, copies of prescriptions, medical records, bank account numbers, and cash
- list of family, friends, physicians and pharmacist, including a back-up contact person living outside the immediate area
- list of the style and serial numbers of your medical devices
For more information about preparing for a natural disaster see the following articles from the Amputee Coalition of America:
When Disaster Strikes - A Pocket Survival Guide http://www.amputee-coalition.org/inmotion/jan_feb_08/pocket_survival_guide.html
What's Your Motto? Be Prepared http://www.amputee-coalition.org/inmotion/sep_oct_06/be_prepared.html
An evacuation preparedness guide for people with disabilities is available from the Center for Disabilty Issues and the Health Professions at:
http://www.cdihp.org/evacuation/toc.html |