Limb Loss Study Needs Participants

Limb Loss Study Needs Participants
Home ACA Names New Editor and Senior Editor Knoxville, TN. -- Rick Bowers and Bill Dupes, employees in the Publications Department of the Amputee Coalition of America (ACA), have been promoted to editor and senior editor, respectively. Shark-Attack Survivor Accepts National “Free Spirit” Honor Bethany Hamilton, a shark-attack survivor who overcame the loss of her left arm to return to the sport of surfing, has been acclaimed as a 2004 Free Spirit honoree. “The Best Thing in the World” Raised in a small, supportive community, Jaymie Kraus didn’t learn about the adversities and opportunities of people with limb differences until she became an adult Bidding Demonstration: Setting the Record Straight for Prosthetic Consumers Do's and Don'ts of A Legislative Visit ADVOCACY NEWS: Licensure vs. Certification: How It Can Affect You! The Power of Peers This article looks at the importance of peers in providing guidance and emotional support when faced with an amputation. Peer Visitor Support of Recent U.S. Military Amputees This article takes a look at the peer visitation program in place at the Amputee Center at Walter Reed Army Medical Center. Facing Amputation Surgery: The Value of Peer Contact This article talks about the value of peer support for amputees. Funding Raising for Your Support Group This fact sheet discusses support group member involvement in fundraising. Ideas for different types of fundraisers are included as well. Starting a Support Group: The Basics Starting a support group is a responsibility, a challenge, and a very meaningful experience. This fact sheet offers a listing of some basic steps needed to start a support group. Steps were compiled from successful support groups and organizations all ove Understanding ACA's Peer Network This fact sheet offers an explanation of ACA's national peer network. Details covered include the network's purpose and how it works, as well as the required training for peer visitors. Giving Back - Couples Who Peer Visit This article takes a brief look at couples that do peer visitation as part of the Amputee Coalition of America's National Peer Network. When Your Support Group Needs Support This article takes a brief look at resources for support groups. You Don't Have to Deal With Amputation Alone This article takes a brief look at the Amputee Coalition of America's National Peer Network. Peer Contact for Parents of Children with Congenital Amputation Karen Neimanas discusses the role of peer visitor when parents are confronted with the birth of a child with a congenital limb difference. Notes from the medical director: first and foremost, listen!: lessons learned from mentors and peer visitors Doug Smith, ACA Medical Director, discusses the important role that mentors can play in our lives and how a peer visitor can become a mentor. Communicator: Newsletter for amputee support group leaders This site contains links to both HTML and PDF versions of the Communicator newsletter published for amputee support group leaders. On-line communication resources for those with limb loss Resources for amputees or family members of amputees who would like to communicate with other amputees via Internet bulletin boards or e-mail lists. Advocating For Your Child ACA Announces New Publication for Parents The Amputee Coalition of America (ACA) is proud to announce the release of Expectations: Parenting Children and Teens With Limb Differences. This 36-page resource guide addresses some of the issues parents face after giving birth to a baby with a limb dif Cancer Was The Easy Part ACA Names New Staff Writer ACA announces the appointment of Scott McNutt as staff writer. A Circle of Friends - The Power of Peer Support The Prosthesis and Its Components - Choices, Choices and More Choices When to Help Your Child and When to Let Go A Message From the President & CEO Physical Activity Can Reduce Secondary Conditions in Youths With Limb Differences Building a Positive Body Image Prostheses for Children & Teens With Limb Differences - Issues and Expectations Questions to Ask Your Child's Doctor Resources Follow the Yellow Brick Road - Assistance Sources for Children and Teens With Limb Differences Enrichment Beyond Words ACA’s LLEAP Curriculum Now Available as Free Download The Amputee Coalition of America (ACA) is proud to announce the digitization of the Limb Loss Education & Awareness Program (LLEAP) for use as a teaching tool. ACA’s LLEAP Curriculum Now Available as Free Download The Amputee Coalition of America (ACA) is proud to announce the digitization of the Limb Loss Education & Awareness Program (LLEAP) for use as a teaching tool. Lamm Joins BOC Board 10-16-07 Fitzgerald Joins BOC Board 10-16-07 BOC-ABC Trademark Settlement "Shop for a Cause" to Support the ACA "Shop for a Cause" to Support the ACA CAF Extends Grant Deadline First Volley Scores USTA Tennis & Education Foundation Grant Again! First Volley BCRC December Registration Form Other News: Paradox Sports Announces Gimps on Ice Other News: One Hand Clapping – UnLIMB-ited Possibilities: Amputee Film Project Begins Other News: Improving Functional Outcomes for Amputee: A Collaborative Approach Other news: Amputees seek better insurance coverage for prosthetics House measure seeks benefits parity for prosthetic care House measure seeks benefits parity for prosthetic care By: Colleen McCarthy Business Insurance March 31, 2008 House measure seeks benefits parity for prosthetic care Other news: Operation Confidence's First Annual Disability Empowerment Expo, 2008, New Orleans, Louisiana Other news: 'Grandfather' of Chicago prosthetics still thriving in age of microchips Other news: Challenged Athletes Foundation Announces 2008 Access for Athletes Grants: More than $1 Million Distributed to 625 Physically Challenged Athletes Worldwide Other news: Teens struck by train might have been asleep Other news: Amputees Start Favoring Metal Prostheses To Realistic Artificial Limbs Other News: Coverage cap unfair: Health insurers should cover prosthetics as they do other medical needs Other News: Independence Expo 2008: Sponsored by United Spinal Association Other News: Independence Expo 2008: Sponsored by United Spinal Association Other News: Independence Expo 2008: Sponsored by United Spinal Association Other news: Young amputees put prosthetics to work Other news: Prosthetic limbs no roadblock to amputee's goals, successes Other news: Carlsbad amputee reaches goal of triathlon world champ Other news: Congressional Action On Durable Medical Equipment Could Jeopardize Patient Care For Amputees And Other Disabled Medicare Beneficiaries Other news: A Personal Call to a Prosthetic Invention Other news: Amputee athletes ready for Extremity Games Other news: Group hopes prosthetics foster independence in Sierra Leone Other news: Artistic designs allow amputees to step in style THE 2008 PARALYMPIC WORLD CUP GAMES HIGHLIGHTS ARE COMING TO ESPNU Never Dull Productions Golf and Poker Tournaments to Benefit Wounded Warrior Project Follow the 2008 Beijing Paralympics Online 11th Annual Triumph on the Greens Golf Clinic and Tournament Clinic David Puckett, CPO is in the running for CNN HERO The Social Justice Movement of the 21st Century... Building a Bridge Between Disability and Community Philanthropy Long Overdue, Telecast Isn’t Short on Emotion It is a 90-minute, continuous “Oh my” journey with amputee sprinters and swimmers, wheelchair basketball players and racers, a paralyzed shot-putter, a sailor with Lou Gehrig’s disease, and Marin Morrison, a swimmer devastated by a brain tumor. The Amputee Coalition of America Congratulates Paralympic Athletes Orthotic & Prosthetic Assistance Fund Seeks O&P-Related Art Orthotic & Prosthetic Assistance Fund’s First Bid Offers Amazing Items Queen Latifah, John Mayer Visit Sesame Street to Help Military Families Cope With Change, Including Limb Loss Queen Latifah, John Mayer Visit Sesame Street to Help Military Families Cope With Change, Including Limb Loss Tickets for U.S. Open Golf Championship Up for Auction Get Ready for National Family Caregivers Month in November November 2009 celebrates National Family Caregivers Month, a time to thank, support, educate and empower family caregivers – those individuals providing care to loved ones living with chronic illness, disability or the frailties of old age. Mending Limbs Organization to Hold Second Annual Benefit Concert Event to raise awareness of need for adequate prosthetic insurance coverage for amputees Delaware Legislation Would Require Insurers to Cover Prosthetic Limbs Helen D. Cuyler Elected to Amputee Coalition of America Board Orlando, Florida resident Helen D. Cuyler, retired educator from the Orange County Public School system, has been elected to the Amputee Coalition of America’s Board of Directors. Helen D. Cuyler Elected to Amputee Coalition of America Board Orlando, Florida resident Helen D. Cuyler, retired educator from the Orange County Public School system, has been elected to the Amputee Coalition of America’s Board of Directors. Helen D. Cuyler Elected to Amputee Coalition of America Board Orlando, Florida resident Helen D. Cuyler, retired educator from the Orange County Public School system, has been elected to the Amputee Coalition of America’s Board of Directors Mona Patel Elected to Amputee Coalition of America Board of Directors San Antonio resident and activist Mona Patel has been elected to the Amputee Coalition of America’s Board of Directors at their recent meeting. Mona Patel Elected to Amputee Coalition of America Board of Directors San Antonio resident and activist Mona Patel has been elected to the Amputee Coalition of America’s Board of Directors at their recent meeting. Mona Patel Elected to Amputee Coalition of America Board of Directors San Antonio resident and activist Mona Patel has been elected to the Amputee Coalition of America’s Board of Directors at their recent meeting. Utah Activist Tami Stanley Elected to Amputee Coalition of America Board Orem, Utah resident Tami Stanley was recently elected to Amputee Coalition of America’s Board of Directors. Utah Activist Tami Stanley Elected to Amputee Coalition of America Board Orem, Utah resident Tami Stanley was recently elected to Amputee Coalition of America’s Board of Directors. Utah Activist Tami Stanley Elected to Amputee Coalition of America Board Orem, Utah resident Tami Stanley was recently elected to Amputee Coalition of America’s Board of Directors. Visit the Exhibit Hall - 2010 National Conference Ohio Willow Wood Becomes Amputee Coalition of America’s Paddy Rossbach Youth Camp Sponsor The Amputee Coalition of America is proud to recognize the longstanding commitment and support of Ohio Willow Wood (OWW) as a Lodestone Sponsor of the Amputee Coalition of America’s Paddy Rossbach Youth Camp for 2010. Ohio Willow Wood Becomes Amputee Coalition of America’s Paddy Rossbach Youth Camp Sponsor The Amputee Coalition of America is proud to recognize the longstanding commitment and support of Ohio Willow Wood (OWW) as a Lodestone Sponsor of the Amputee Coalition of America’s Paddy Rossbach Youth Camp for 2010. The Sky’s the Limit for Airborne Amputees, Wounded Warriors and ACA Members The Sky’s the Limit for Airborne Amputees, Wounded Warriors and ACA Members Bill Could Help Fund Prosthetics Dan Ignaszewski, of the nonprofit advocacy group Amputee Coalition of America, said most insurance policies cover only the first $2,500 of the cost for prosthetic devices because they are classified as "durable medical equipment," along with canes and whe Bill Could Help Fund Prosthetics Dan Ignaszewski, of the nonprofit advocacy group Amputee Coalition of America, said most insurance policies cover only the first $2,500 of the cost for prosthetic devices because they are classified as "durable medical equipment," along with canes and whe Kendra Calhoun, President & CEO of Amputee Coalition of America, Appointed to Medicare Advisory Committee Calhoun to serve as Patient Advocate. Kendra Calhoun, President & CEO of Amputee Coalition of America, Appointed to Medicare Advisory Committee Calhoun to serve as Patient Advocate. Celebrating 10 Years of Success Celebrating 10 Years of Success TSA Staff Lack Training, Respect in Screening Amputees In an ACA press release today, a survey of 7,300 amputees around the country revealed instances of "inconsistent, unfair, abusive and often embarrassing screenings." Fireworks Accidents Cause Amputations and Third-Degree Burns The Amputee Coalition of America urges families to make sure their children are properly supervised and all instructions followed when using fireworks this Fourth of July. Fireworks Accidents Cause Amputations and Third-Degree Burns The Amputee Coalition of America urges families to make sure their children are properly supervised and all instructions followed when using fireworks this Fourth of July. TSA Airport Security Screeners Disregard Procedures, Safety and Respect for Amputees, According to Amputee Coalition of America Survey Survey Results Show Lack of Awareness for Disability Population TSA Airport Security Screeners Disregard Procedures, Safety and Respect for Amputees, According to Amputee Coalition of America Survey Survey Results Show Lack of Awareness for Disability Population Knoxville-based amputee group questions TSA The Knoxville-based Amputee Coalition of America says amputees are being mistreated at airport security checkpoints across the nation. Convening of Limb Loss Task Force Is a Step Toward Fulfilling the Amputee Coalition’s 2015 Five Year Plan ACA Calls for Improved Screening Procedures for TSA ACA Calls for Improved Screening Procedures for TSA Amputee Coalition of America’s Paddy Rossbach Youth Camp Reaches Goal of 100 Campers Amputee Coalition of America’s Paddy Rossbach Youth Camp Reaches Goal of 100 Campers Amputee Coalition of America’s Paddy Rossbach Youth Camp Reaches Goal of 100 Campers Dumfries Teen's Determination Outweighs Loss of Limb Daniel is one of 100 children from across the United States who will participate in the 11th annual Amputee Coalition of America's Paddy Rossbach Youth Camp. Guest column: After 20 years, ADA still provides for equal access The Amputee Coalition of America's President and CEO, Kendra Calhoun, shares her view of the 20th anniversary of the ADA. What an exciting day this is for all who have worked for equal access and opportunity for people of all abilities!	Limb Loss Study Needs Participants If you are an amputee over 18 years old living in Alabama, Arkansas, Kentucky, Louisiana, Mississippi, Missouri or Tennessee, then the University of Tennessee Health Science Center invites you to participate in a study it is conducting. To participate, all you have to do is answer questions by phone or in person, which should take about an hour. The purpose of this study is to learn more about pain and everyday activities in persons with limb loss, but you do not have to be in pain to participate. The results of the study may help doctors and nurses better treat persons with limb loss. The study is being led by Cecile Evans, RN, family nurse practitioner and PhD student at the University of Tennessee Health Science Center. Ms. Evans has worked with people with limb loss for more than 15 years. She is a professional advisor to Out on a Limb, a limb loss support group based in Memphis, and she often speaks with limb loss support groups on phantom limb pain. If you are interested in participating in this study, please contact Cecile Evans at 901/647-8278 or by e-mail at cevans9@utmem.edu You may also contact her by post at: University of Tennessee Health Sciences Library 877 Madison Avenue Room 616 Memphis, TN 38103
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