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- ACA Names New Editor and Senior Editor
Knoxville, TN. -- Rick Bowers and Bill Dupes, employees in the Publications Department of the Amputee Coalition of America (ACA), have been promoted to editor and senior editor, respectively.
- Shark-Attack Survivor Accepts National “Free Spirit” Honor
Bethany Hamilton, a shark-attack survivor who overcame the loss of her left arm to return to the sport of surfing, has been acclaimed as a 2004 Free Spirit honoree.
- ADVOCACY UPDATE: Massachusetts Parity Bill
- ADVOCACY UPDATE: Estimate of Number of Persons Living with Limb Loss in NY State
- “The Best Thing in the World”
Raised in a small, supportive community, Jaymie Kraus didn’t learn about the adversities and opportunities of people with limb differences until she became an adult
- Colorado - Prosthetic and Orthotic Adult Benefit Summary
Providing Medicaid coverage for prosthetics saves money for states
- Massachusetts Financial Impact Statement for Prosthetic Coverage
Review and evaluation of proposed legislation to mandate coverage for certain prosthetic devices: H. 837
- Colorado - Prosthetic and Orthotic Adult Benefit Full Report
Providing Medicaid coverage for prosthetics saves money for states.
- NY Parity Bill introduced to NY Senate & Assembly
If we are to get these bills passed in this and other states we have to make a bigger noise than other groups also looking for mandates!
- APPLL Update: State Parity - May/June 2005 inMotion
- Bidding Demonstration: Setting the Record Straight for Prosthetic Consumers
- Do's and Don'ts of A Legislative Visit
- Steps to Effective Advocacy
- How Can I Get Help From My Congressional Representatives?
- ADVOCACY NEWS: Licensure vs. Certification: How It Can Affect You!
- Computerized Limb Coverage: A Letter to Practitioners and Bibliography
The American Orthotic and Prosthetic Association (AOPA) has joined together with manufacturers of myoelectric and computerized devices, and beneficiary representatives, to work on reversing certain imprudent medical policies regarding coverage of these de
- The Power of Peers
This article looks at the importance of peers in providing guidance and emotional support when faced with an amputation.
- Peer Visitor Support of Recent U.S. Military Amputees
This article takes a look at the peer visitation program in place at the Amputee Center at Walter Reed Army Medical Center.
- Facing Amputation Surgery: The Value of Peer Contact
This article talks about the value of peer support for amputees.
- Funding Raising for Your Support Group
This fact sheet discusses support group member involvement in fundraising. Ideas for different types of fundraisers are included as well.
- Starting a Support Group: The Basics
Starting a support group is a responsibility, a challenge, and a very meaningful experience. This fact sheet offers a listing of some basic steps needed to start a support group. Steps were compiled from successful support groups and organizations all ove
- Understanding ACA's Peer Network
This fact sheet offers an explanation of ACA's national peer network. Details covered include the network's purpose and how it works, as well as the required training for peer visitors.
- Giving Back - Couples Who Peer Visit
This article takes a brief look at couples that do peer visitation as part of the Amputee Coalition of America's National Peer Network.
- When Your Support Group Needs Support
This article takes a brief look at resources for support groups.
- You Don't Have to Deal With Amputation Alone
This article takes a brief look at the Amputee Coalition of America's National Peer Network.
- Peer Contact for Parents of Children with Congenital Amputation
Karen Neimanas discusses the role of peer visitor when parents are confronted with the birth of a child with a congenital limb difference.
- Notes from the medical director: first and foremost, listen!: lessons learned from mentors and peer visitors
Doug Smith, ACA Medical Director, discusses the important role that mentors can play in our lives and how a peer visitor can become a mentor.
- Communicator: Newsletter for amputee support group leaders
This site contains links to both HTML and PDF versions of the Communicator newsletter published for amputee support group leaders.
- On-line communication resources for those with limb loss
Resources for amputees or family members of amputees who would like to communicate with other amputees via Internet bulletin boards or e-mail lists.
- APPLL Executive Summary
Learn about ACA's Action Plan for Persons with Limb Loss (APPLL)
- Advocating For Your Child
- ACA Announces New Publication for Parents
The Amputee Coalition of America (ACA) is proud to announce the release of Expectations: Parenting Children and Teens With Limb Differences. This 36-page resource guide addresses some of the issues parents face after giving birth to a baby with a limb dif
- Cancer Was The Easy Part
- ACA Names New Staff Writer
ACA announces the appointment of Scott McNutt as staff writer.
- A Circle of Friends - The Power of Peer Support
- Memphis Limb Loss Support Group Reaches Out to Katrina Victims
With the evacuations now taking place along the Gulf Coast and Hurricane Katrina victims being sent throughout the country to Red Cross shelters, one ACA member support group decided to act locally.
- Fourroux O&P's role in relief effort for amputees affected by Hurricane Katrina
Due to the devastating effects of Hurricane Katrina, thousands of people have been forced to leave New Orleans and other affected areas.
- National Council on Disability on Hurricane Katrina Affected Areas
- Katrina PeopleFinder Project
The Katrina PeopleFinder Project, which is compiling records of missing persons from all available online sources, now has a searchable database of over 345,000 records.
- Hurricane Katrina - Vibrio Vulnificus Information
- University of Mississippi offers assistance
The Division of Orthotics and Prosthetics is a fully equipped component of the University of Mississippi Medical Center (UMC).
- FCC's creates emergency information Web site
In the aftermath of Hurricane Katrina, the Federal Communications Commission (FCC) has created this Web site to provide crucial emergency information for consumers, communications industries, and state and local governments in the areas affected by the hu
- Secretary Leavitt Announces Advance of Health Center Funds to Hurry Services to Hurricane-Affected Areas
HHS Secretary Mike Leavitt today announced the federal government will speed up the award of grants to establish 26 new health center sites in areas impacted by Hurricane Katrina.
- AOPA and ABC Connect O&P Community to Katrina Victims
AOPA and ABC have created an O&P Communications Center (OPCC) to bring into contact O&P businesses, practitioners and other staff in need of assistance with those members of the O&P community who are offering some form of non-monetary help or support.
- Web resources on Hurricane Katrina Recovery
U.S. government's offical Web portal for Hurricane Katrina information.
- U.S. Department of Homeland Security (DHS) National Emergency Resource Registry Available for People with Disabilities
The National Emergency Resource Registry (NERR) is an on-line resource launched by the DHS to assist in the coordination efforts between individuals and organizations responding to the needs of people impacted by Hurricane Katrina with those who have reso
- CDC Director's Emergency Operations Center 9/14/ 05 Update
The CDC’s public health response to Hurricane Katrina continues with 216 public health professionals deployed to affected areas.
- DRFOP Hurricane Katrina Resources and Info for O&P
This page was created by the Digital Resource Foundation for the O&P Community (DRFOP) to provide information about relief efforts and other issues related to Hurricane Katrina that impact the orthotics and prosthetics profession.
- All Children 18 and Under Displaced by Hurricane Katrina Will Receive Free Vaccinations
HHS Secretary Mike Leavitt announced today that all children from birth to18 years old displaced by Hurricane Katrina are eligible to receive free vaccines through the federally-run Vaccines for Children program (VFC), regardless of whether they are stayi
- Christopher Reeve Foundation To Provide Grants for Hurricane Katrina Relief Efforts
In response to the devastation wreaked by Hurricane Katrina, the Christopher Reeve Foundation (CRF) announced today that it has earmarked $100,000 of Quality of Life funds for grants to nonprofit agencies that provide direct emergency relief services for
- Delivery of November/December inMotion Magazine Hindered in Some Areas
- Delivery of November/December inMotion Magazine Hindered in Some Areas
- Hurricane Katrina “Help Is on the Line” Poster from U.S. HHS
The U.S. Department of Health and Human Services (HHS) created a PDF poster for agencies assisting Hurricane Katrina evacuees.
- ADVOCACY NEWS: ACA Working to Ensure that Amputees are Not Left Behind in Health Reform
- ADVOCACY NEWS: ACA Working to Ensure that Amputees are Not Left Behind in Health Reform
- ADVOCACY NEWS: ACA Signs on in Support of the Patient-Centered Outcomes Research Act of 2009
- ADVOCACY NEWS: ACA Signs on in Support of the Patient-Centered Outcomes Research Act of 2009
- OPAF Launches McKeever’s First Ride
- ADVOCACY NEWS: Senate HELP Protects Access to Assistive Devices
- ADVOCACY NEWS: Senate HELP Protects Access to Assistive Devices
- ADVOCACY NEWS: ACA and Partners Applaud the Inclusiveness of the Affordable Health Choices Act
- ADVOCACY NEWS: ACA and Partners Applaud the Inclusiveness of the Affordable Health Choices Act
- Connecticut: Vote on Monday. Take action TODAY!
- ADVOCACY NEWS: ACA Celebrates Progress in the Campaign for Hate Crimes Protections for People with Disabilities
- ADVOCACY NEWS: ACA Celebrates Progress in the Campaign for Hate Crimes Protections for People with Disabilities
- Amputee Coalition Youth Camp Shows Young Amputees That They Can Do Anything, Anywhere
Donate now and help support this inspirational program
- ADVOCACY NEWS: ACA Joins Allies in Pushing for Patient Centered Approach to Comparative Effectiveness Research
- ADVOCACY NEWS: ACA Joins Allies in Pushing for Patient Centered Approach to Comparative Effectiveness Research
- ADVOCACY NEWS: Progress in the Efforts to Protect Assistive Devices in Healthcare Reform
- ADVOCACY NEWS: Progress in the Efforts to Protect Assistive Devices in Healthcare Reform
- ADVOCACY NEWS: Progress and Problems in the Campaign for Hate Crimes Protections for People with Disabilities
- ADVOCACY NEWS: Progress and Problems in the Campaign for Hate Crimes Protections for People with Disabilities
- Double amputee loses legs, finds a cause
- HEALTH CARE REFORM: Call your members today!
- HEALTHCARE REFORM: Take action during the August recess!
- ADVOCACY NEWS: ACA Seeks Government Relations Specialist to Help Lead Policy Efforts
- ADVOCACY NEWS: ACA Seeks Government Relations Specialist to Help Lead Policy Efforts
- ADVOCACY NEWS: ACA Partners With AOPA and Hanger to Call for True Healthcare Reform
- ADVOCACY NEWS: ACA Partners With AOPA and Hanger to Call for True Healthcare Reform
- Winslow Therapeutic Riding to Host McKeever’s First Ride
- TAKE ACTION TODAY! Push for true healthcare reform!
- Members of Congress Receive Legislative Awards From National Amputee Organizations
- Ossur Commits $20,000 to Amputee Coalition of America’s Parity Campaign
- Ossur Commits $20,000 to Amputee Coalition of America’s Parity Campaign
- Amputee Coalition of America's Paddy Rossbach Youth Camp Announced
Knoxville, TN, October 9, 2009 – The Amputee Coalition of America announced that it has named its youth camp in honor of the organization’s former president & CEO, Paddy Rossbach.
- Amputee Coalition of America's Paddy Rossbach Youth Camp Announced
Knoxville, TN, October 9, 2009 – The Amputee Coalition of America announced that it has named its youth camp in honor of the organization’s former president & CEO, Paddy Rossbach.
- Get Ready for National Family Caregivers Month in November
November 2009 celebrates National Family Caregivers Month, a time to thank, support, educate and empower family caregivers – those individuals providing care to loved ones living with chronic illness, disability or the frailties of old age.
- Mending Limbs Organization to Hold Second Annual Benefit Concert
Event to raise awareness of need for adequate prosthetic insurance coverage for amputees
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Maintained by Susan Fitzmaurice, ADA Coordinator for Dearborn, MI, http://www.katrinadisability.info/ is a multipurpose, nationally recognized clearinghouse for information helping people with disabilities cope with the aftermath of hurricane Katrina. This site offers the following information:
- Collaborating - Voices- Forum: A place to share your thoughts and ideas about the what is happening and what must begin to happen in your state
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- Katrina Disability Expert Volunteers - Register your skills to volunteer so people who need you can find you
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- Share your accessible home or find your accessible home
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- Information primarily of use to agencies - fact sheets for those assisting hurricane victims
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- Searching for a Lost Loved One
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- Blogs discussing emergency response and relief efforts specific to people with disabilities.
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- What Next? How do we assure nothing like this ever happens again, and what do we do to help us recover and move on?
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- State specific information - Each state has its own forum to discuss state specific issues
| NOTE: State Moderators for KatrinaDisability.Info Needed
Responsibilities:
| 1. Moderator state /section information to keep up-to-date |
| 2. Confirm accuracy when possible |
| 3. Check links to be sure they work and/ or go where they say they go every 3 days or more |
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4. Provide new state-specfic information on an on needed basis
a.Official state information releases
b. State disability organizations press releases and contact infomation
c. Opportunities to help, monetary and materially to people with disabilities
d. Information survivors with disabilities in state need rebuild their lives |
Rewards:
| 1. A by-line and a link to your webpage if appropriate |
| 2. Satisfaction for a job well-done |
| 3. A great bit to add to your resume |
| 4. Access to toll-free support |
Expectations:
| 1. To keep in touch via email at least once every 3 days, providing updates and changes |
| 2. If this is not something you find you can do well, find help or help find a replacement |
| 3. To make a committment to be a moderator at least until March, 2006 |
Please contact Susan at katrinadisability.ino@gmail.com for further information the state moderators, adding items to the Web site, or for general questions. |