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- ACA Names New Editor and Senior Editor
Knoxville, TN. -- Rick Bowers and Bill Dupes, employees in the Publications Department of the Amputee Coalition of America (ACA), have been promoted to editor and senior editor, respectively.
- Shark-Attack Survivor Accepts National “Free Spirit” Honor
Bethany Hamilton, a shark-attack survivor who overcame the loss of her left arm to return to the sport of surfing, has been acclaimed as a 2004 Free Spirit honoree.
- “The Best Thing in the World”
Raised in a small, supportive community, Jaymie Kraus didn’t learn about the adversities and opportunities of people with limb differences until she became an adult
- Bidding Demonstration: Setting the Record Straight for Prosthetic Consumers
- Do's and Don'ts of A Legislative Visit
- ADVOCACY NEWS: Licensure vs. Certification: How It Can Affect You!
- The Power of Peers
This article looks at the importance of peers in providing guidance and emotional support when faced with an amputation.
- Peer Visitor Support of Recent U.S. Military Amputees
This article takes a look at the peer visitation program in place at the Amputee Center at Walter Reed Army Medical Center.
- Facing Amputation Surgery: The Value of Peer Contact
This article talks about the value of peer support for amputees.
- Funding Raising for Your Support Group
This fact sheet discusses support group member involvement in fundraising. Ideas for different types of fundraisers are included as well.
- Starting a Support Group: The Basics
Starting a support group is a responsibility, a challenge, and a very meaningful experience. This fact sheet offers a listing of some basic steps needed to start a support group. Steps were compiled from successful support groups and organizations all ove
- Understanding ACA's Peer Network
This fact sheet offers an explanation of ACA's national peer network. Details covered include the network's purpose and how it works, as well as the required training for peer visitors.
- Giving Back - Couples Who Peer Visit
This article takes a brief look at couples that do peer visitation as part of the Amputee Coalition of America's National Peer Network.
- When Your Support Group Needs Support
This article takes a brief look at resources for support groups.
- You Don't Have to Deal With Amputation Alone
This article takes a brief look at the Amputee Coalition of America's National Peer Network.
- Peer Contact for Parents of Children with Congenital Amputation
Karen Neimanas discusses the role of peer visitor when parents are confronted with the birth of a child with a congenital limb difference.
- Notes from the medical director: first and foremost, listen!: lessons learned from mentors and peer visitors
Doug Smith, ACA Medical Director, discusses the important role that mentors can play in our lives and how a peer visitor can become a mentor.
- Communicator: Newsletter for amputee support group leaders
This site contains links to both HTML and PDF versions of the Communicator newsletter published for amputee support group leaders.
- On-line communication resources for those with limb loss
Resources for amputees or family members of amputees who would like to communicate with other amputees via Internet bulletin boards or e-mail lists.
- Advocating For Your Child
- ACA Announces New Publication for Parents
The Amputee Coalition of America (ACA) is proud to announce the release of Expectations: Parenting Children and Teens With Limb Differences. This 36-page resource guide addresses some of the issues parents face after giving birth to a baby with a limb dif
- Cancer Was The Easy Part
- ACA Names New Staff Writer
ACA announces the appointment of Scott McNutt as staff writer.
- A Circle of Friends - The Power of Peer Support
- The Prosthesis and Its Components - Choices, Choices and More Choices
- When to Help Your Child and When to Let Go
- A Message From the President & CEO
- Physical Activity Can Reduce Secondary Conditions in Youths With Limb Differences
- Building a Positive Body Image
- Prostheses for Children & Teens With Limb Differences - Issues and Expectations
- Questions to Ask Your Child's Doctor
- Resources
- Follow the Yellow Brick Road - Assistance Sources for Children and Teens With Limb Differences
- Enrichment Beyond Words
- M-STAR Seeks Donations for Operation Compassion
The Michigan Society To Advance Rehabilitation, Inc. (M-STAR) is seeking used lower-limb components and funds to transport prostheses, equipment and a health team to Mexico in September.
- ACA’s LLEAP Curriculum Now Available as Free Download
The Amputee Coalition of America (ACA) is proud to announce the digitization of the Limb Loss Education & Awareness Program (LLEAP) for use as a teaching tool.
- ACA’s LLEAP Curriculum Now Available as Free Download
The Amputee Coalition of America (ACA) is proud to announce the digitization of the Limb Loss Education & Awareness Program (LLEAP) for use as a teaching tool.
- The Road to Change
In 2003, I set out on a journey to reclaim the life that I once had, to gain strength in body, mind, and spirit, and to dedicate my life to serve others in need. This journey began with the support of my family following my accident and continued in June
- Beijing 2008: On a Row Boat to China
The International Paralympic Committee met in April this year to decide on important issues at hand. One of those issues was the inclusion of rowing as a Paralympic sport. I was so happy and excited when I learned that rowing had finally become part of th
- A Winning Attitude: A Young Athlete Benefits From ASPIRE's Adaptive Ski Clinic
ASPIRE's week long ski clinic motivates children with amputations and limb differences.
- Out of Necessity: Children’s Book Author Overcomes Biggest Challenge of All
Children's book author, Ben Herosian, turns life's most difficult lessons into inspirational and educational stories.
- Kids and Teens Get Boost from 6th Annual ACA Youth Camp
The 2006 ACA Youth Camp is a success. Campers participated in fun activities and made lots of new friends.
- Demonstrating Disability Awareness at a Young Age
Annie Garafolo, a member of Helping Hands Foundation, explains what it's like living with a disability to a 5th grade class.
- Author Emily Rapp Speaks About Growing Up as a Poster Child
Emily Rapp writes about her experiences growing up with limb loss in her recently published memoir, Poster Child, by Bloomsbury Press.
- Want to be Another Tiger Woods or Casey Martin?
The Eastern Amputee Golf Association (EAGA) offers young amputees the opportunity to learn to play golf through the free National Amputee Golf Association (NAGA) "First Swing/Learn to Golf" clinic program.
- A Lifetime of Memories!
Take a quick look at the 2007 ACA Youth Camp!
- A Champion Among Us: Meet Jessica Long
Quitting has never been an option for Jessica Long. Holding 34 U.S. swimming records, 17 Pan-American records, 2 Paralympic records, 14 world records, 3 gold Paralympic medals, and 9 gold world championship medals are only some of the accomplishments of t
- Advice from Other Kids & Teens
Get some advice from other young amputees. Read what they have to say about teasing, being self-conscious, prostheses, sports & recreation and more.
- Teen Writes Newsletter for Young Amputees
Meet Theresa, a 14-year-old from California. Theresa is the creator of an interactive newsletter for young amputees.
- The Making of a Champion
Sean is an inspiring young man. Read about his recent travels and successes.
- Disc Golf for Fun and Fitness
If you’re looking for a way to get
in shape or stay that way while
enjoying the great outdoors,
disc golf may be the sport for
you.
- Camp Brings Joy to Young Amputees!
This was a banner year for the Amputee Coalition of America (ACA) Youth Camp,held July 20-24. Sixty-three campers flew in from 30 different states to have the time of their lives.
- Street Beat Masters Hawaii Dance Experience
Read about Adrienne's Hip Hop Dance experienced in Hawaii.
- A Trip of a Lifetime
In September, Roderick Sewell went on the trip of a lifetime. Learn about Roderick's National Paralympic Academy experience at the Paralympic Games in China.
- Two Amputee Coalition campers attend the Paralympics in China
In September, two of our campers received the opportunity of a lifetime. They were selected to take part in the 2008 Paralympic Academy. This year the academy was held in conjunction with the 2008 Paralympics in Beijing, China.
- Growing Up With Limb Loss
Men and women, young and old, all suffer the effects of
amputation, including its physical and emotional scars.
Adapting successfully to life with limb loss depends
not just on one’s inner resolve or outward physical
strength – sometimes it’s a matter
- Ohio Willow Wood Becomes Amputee Coalition of America’s Paddy Rossbach Youth Camp Sponsor
The Amputee Coalition of America is proud to recognize the longstanding commitment and support of Ohio Willow Wood (OWW) as a Lodestone Sponsor of the Amputee Coalition of America’s Paddy Rossbach Youth Camp for 2010.
- Ohio Willow Wood Becomes Amputee Coalition of America’s Paddy Rossbach Youth Camp Sponsor
The Amputee Coalition of America is proud to recognize the longstanding commitment and support of Ohio Willow Wood (OWW) as a Lodestone Sponsor of the Amputee Coalition of America’s Paddy Rossbach Youth Camp for 2010.
- The Sky’s the Limit for Airborne Amputees, Wounded Warriors and ACA Members
- The Sky’s the Limit for Airborne Amputees, Wounded Warriors and ACA Members
- Bill Could Help Fund Prosthetics
Dan Ignaszewski, of the nonprofit advocacy group Amputee Coalition of America, said most insurance policies cover only the first $2,500 of the cost for prosthetic devices because they are classified as "durable medical equipment," along with canes and whe
- Bill Could Help Fund Prosthetics
Dan Ignaszewski, of the nonprofit advocacy group Amputee Coalition of America, said most insurance policies cover only the first $2,500 of the cost for prosthetic devices because they are classified as "durable medical equipment," along with canes and whe
- Kendra Calhoun, President & CEO of Amputee Coalition of America, Appointed to Medicare Advisory Committee
Calhoun to serve as Patient Advocate.
- Kendra Calhoun, President & CEO of Amputee Coalition of America, Appointed to Medicare Advisory Committee
Calhoun to serve as Patient Advocate.
- Celebrating 10 Years of Success
- Celebrating 10 Years of Success
- TSA Staff Lack Training, Respect in Screening Amputees
In an ACA press release today, a survey of 7,300 amputees around the country revealed instances of "inconsistent, unfair, abusive and often embarrassing screenings."
- Fireworks Accidents Cause Amputations and Third-Degree Burns
The Amputee Coalition of America urges families to make sure their children are properly supervised and all instructions followed when using fireworks this Fourth of July.
- Fireworks Accidents Cause Amputations and Third-Degree Burns
The Amputee Coalition of America urges families to make sure their children are properly supervised and all instructions followed when using fireworks this Fourth of July.
- TSA Airport Security Screeners Disregard Procedures, Safety and Respect for Amputees, According to Amputee Coalition of America Survey
Survey Results Show Lack of Awareness for Disability Population
- TSA Airport Security Screeners Disregard Procedures, Safety and Respect for Amputees, According to Amputee Coalition of America Survey
Survey Results Show Lack of Awareness for Disability Population
- Knoxville-based amputee group questions TSA
The Knoxville-based Amputee Coalition of America says amputees are being mistreated at airport security checkpoints across the nation.
- Convening of Limb Loss Task Force Is a Step Toward Fulfilling the Amputee Coalition’s 2015 Five Year Plan
- ACA Calls for Improved Screening Procedures for TSA
- ACA Calls for Improved Screening Procedures for TSA
- Amputee Coalition of America’s Paddy Rossbach Youth Camp Reaches Goal of 100 Campers
- Amputee Coalition of America’s Paddy Rossbach Youth Camp Reaches Goal of 100 Campers
- Amputee Coalition of America’s Paddy Rossbach Youth Camp Reaches Goal of 100 Campers
- Dumfries Teen's Determination Outweighs Loss of Limb
Daniel is one of 100 children from across the United States who will participate in the 11th annual Amputee Coalition of America's Paddy Rossbach Youth Camp.
- Guest column: After 20 years, ADA still provides for equal access
The Amputee Coalition of America's President and CEO, Kendra Calhoun, shares her view of the 20th anniversary of the ADA. What an exciting day this is for all who have worked for equal access and opportunity for people of all abilities!
- Amputee Coalition of America Announces Scholarship Recipient
The Amputee Coalition of America (ACA) has announced Cady Tescher, 18, of Glendora, California, as the recipient of the $1,000 Christina Skoski, M.D., Scholarship.
- Amputee Coalition of America Announces Scholarship Recipient
The Amputee Coalition of America (ACA) has announced Cady Tescher, 18, of Glendora, California, as the recipient of the $1,000 Christina Skoski, M.D., Scholarship.
- World Land Speed Record-Holder Mike Roman is Keynote Speaker at Amputee Coalition of America National Conference in Irvine, California
“Dreams come true if you have the courage to dream them,” is race car driver and world land speed record-holder Mike Roman’s motto. As an amputee, Roman is dedicated to spreading his message of hope, and he will do just that at the Amputee Coalition of Am
- World Land Speed Record-Holder Mike Roman is Keynote Speaker at Amputee Coalition of America National Conference in Irvine, California
“Dreams come true if you have the courage to dream them,” is race car driver and world land speed record-holder Mike Roman’s motto. As an amputee, Roman is dedicated to spreading his message of hope, and he will do just that at the Amputee Coalition of Am
- Advertisements - Amputee Coalition of America
Please help the ACA by clicking on advertisers’ links. By visiting their websites, you are helping the ACA support the various programs that provide help and assistance to amputees, their families, and caregivers.
- Amputee Coalition of America Holds Successful Meeting with Top Transportation Security Administration Officials in Washington
Agency pledges better training, cooperation and sensitivity when screening air travelers with limb loss
- Amputee Coalition of America Holds Successful Meeting with Top Transportation Security Administration Officials in Washington
Agency pledges better training, cooperation and sensitivity when screening air travelers with limb loss
- In Memoriam: Todd Anderson (1960-2010)
- In Memoriam: Todd Anderson (1960-2010)
- Kim Duckett Named Finalist for National Award
- Kim Duckett Named Finalist for National Award
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Among his many activities, Andres enjoys skateboarding. | Andres Alvarez Vasquez of California was born without his right hand, but that hasn’t slowed this active 22-year-old down a bit. At the age of 9, Andres was the first recipient of a myoelectric limb from Inner Wheel Foundation Inc.’s Myoelectric Limb Project — a project that provides both new and recycled prosthetic limbs for use by children during their growing years.
As a 9-year-old child with a congenital limb difference who had worn both passive and body-powered prostheses since he was 4 months old, Andres was considered by Inner Wheel to be a good candidate for using myoelectric limbs, which can be challenging for children to operate. These devices work by using electrodes to transmit a small electrical emission that is generated by normal muscle contraction. Although children as young as 2 can wear and use a myoelectric limb, many families opt for a less expensive prostheses or none at all. With Andres’ experience using prostheses, he successfully used myoelectric limbs while growing up, and in fact still uses one today.
Though Inner Wheel USA has been involved in service projects since the 1950s, the Inner Wheel USA Foundation, Inc., was established in 1984 to outfit children with myoelectric limbs. As a child outgrows his or her prosthesis, it gets returned to the organization for a younger or smaller child to use. In this way, the organization is able to save families thousands of dollars while their child is growing up and growing out of limbs yearly. A myoelectric prosthesis for a child can cost approximately $10,000-$15,000, plus another $5,000 for clinical evaluation, training and follow-up visits. This is money that average families simply would not be able to afford.
Furthermore, research has shown that children are more likely to continue to use prostheses if they are fitted early, rather than at an older age. Today, with the advancement of technology, batteries and electrodes are being fitted right into the myoelectric arm rather than on the outside of the arm, making the prosthesis easier to wear and lighter in weight. New materials, such as silicon, make the prosthesis look just like a real arm and hand.
Joan Ferarri-Cotton, chairwoman of Inner Wheel USA Foundation, Inc., considers the greatest value of this to be intangible. She is routinely rewarded in her work when she sees a child accomplish a simple task, such as tying a shoe or simply holding his or her mother’s hand.
Christina Reitz, parent to 3-year-old Zozen Reitz, learned about Inner Wheel Foundation’s Myoelectric Limb Project from her son’s prosthetist and has also noticed the confidence that her son gains from wearing a myoelectric limb. Zozen, who is missing his left hand, has been using a myoelectric limb through the project on and off for the past year and half. After learning how to operate both the body-powered limb that the family had purchased and the myoelectric limb loaned to them through Inner Wheel, Christina now asks her son which arm he’d like to wear for the day.
“It has really given him confidence to know that he can accomplish something like picking up a book and handing it to his dad,” Christina says. “He takes such great pride in accomplishing little tasks.”
Ferarri-Cotton describes the myoelectric prosthesis as “a tool and a help to children trying to cope within a world not always friendly toward those who are different.”
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Inner Wheel USA Foundation's Myoelectric Limb Project loans new and used limbs to children with upper extremity limb deficiency. |
The organization relies upon individual donations to grow its investments and fund the clinics that supply the limbs. This year, it provided a little over $100,000 to the clinics to assist the children, though Ferrari-Cotton wants to do even more. When she’s not speaking about the Myoelectric Limb Project at various public and private events, she’s applying for grant money and beating a path to television media outlets like The Oprah Winfrey Show hoping to raise awareness for the project and fund more clinics.
“My goal is to reach investments of $1.5 million by the time my term is up in June 2007,” she says.
Andres loves myoelectric limbs because they kept him active and healthy during his childhood. The body-powered harnesses of other upper-extremity prostheses gave him scoliosis, so he was delighted to be able to wear a more comfortable myoelectric device. In high school, Andres was co-captain of his wrestling team and went on to the national championships in Junior Lifeguard six years in a row.
Now an energetic college student, Andres is happy to be a mentor to young kids with physical differences because he understands how difficult it can be to find accepting friends.
He advises others with visible physical differences to always “think of yourself as normal, because if you don’t, then you won’t be. If you show confidence, others will follow.”
Although Andres speaks like a mature young man who has learned from his hardship, he also certainly knows how to have fun. He admits to telling tall tales about a shark attack to curious onlookers who asked him about his arm when he was in high school.
“It’s more interesting than saying, ‘I was born this way,’” he says with a laugh.
It’s clear that the people involved in Inner Wheel USA Foundation, Inc., believe in helping upper-extremity amputees and children with limb differences enjoy a higher quality of life. It is also clear from Andres’ experience that their work is paying off.
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