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- ACA Names New Editor and Senior Editor
Knoxville, TN. -- Rick Bowers and Bill Dupes, employees in the Publications Department of the Amputee Coalition of America (ACA), have been promoted to editor and senior editor, respectively.
- Shark-Attack Survivor Accepts National “Free Spirit” Honor
Bethany Hamilton, a shark-attack survivor who overcame the loss of her left arm to return to the sport of surfing, has been acclaimed as a 2004 Free Spirit honoree.
- ADVOCACY UPDATE: Massachusetts Parity Bill
- ADVOCACY UPDATE: Estimate of Number of Persons Living with Limb Loss in NY State
- “The Best Thing in the World”
Raised in a small, supportive community, Jaymie Kraus didn’t learn about the adversities and opportunities of people with limb differences until she became an adult
- Colorado - Prosthetic and Orthotic Adult Benefit Summary
Providing Medicaid coverage for prosthetics saves money for states
- Massachusetts Financial Impact Statement for Prosthetic Coverage
Review and evaluation of proposed legislation to mandate coverage for certain prosthetic devices: H. 837
- Colorado - Prosthetic and Orthotic Adult Benefit Full Report
Providing Medicaid coverage for prosthetics saves money for states.
- NY Parity Bill introduced to NY Senate & Assembly
If we are to get these bills passed in this and other states we have to make a bigger noise than other groups also looking for mandates!
- APPLL Update: State Parity - May/June 2005 inMotion
- Bidding Demonstration: Setting the Record Straight for Prosthetic Consumers
- Do's and Don'ts of A Legislative Visit
- Steps to Effective Advocacy
- How Can I Get Help From My Congressional Representatives?
- ADVOCACY NEWS: Licensure vs. Certification: How It Can Affect You!
- Computerized Limb Coverage: A Letter to Practitioners and Bibliography
The American Orthotic and Prosthetic Association (AOPA) has joined together with manufacturers of myoelectric and computerized devices, and beneficiary representatives, to work on reversing certain imprudent medical policies regarding coverage of these de
- The Power of Peers
This article looks at the importance of peers in providing guidance and emotional support when faced with an amputation.
- Peer Visitor Support of Recent U.S. Military Amputees
This article takes a look at the peer visitation program in place at the Amputee Center at Walter Reed Army Medical Center.
- Facing Amputation Surgery: The Value of Peer Contact
This article talks about the value of peer support for amputees.
- Funding Raising for Your Support Group
This fact sheet discusses support group member involvement in fundraising. Ideas for different types of fundraisers are included as well.
- Starting a Support Group: The Basics
Starting a support group is a responsibility, a challenge, and a very meaningful experience. This fact sheet offers a listing of some basic steps needed to start a support group. Steps were compiled from successful support groups and organizations all ove
- Understanding ACA's Peer Network
This fact sheet offers an explanation of ACA's national peer network. Details covered include the network's purpose and how it works, as well as the required training for peer visitors.
- Giving Back - Couples Who Peer Visit
This article takes a brief look at couples that do peer visitation as part of the Amputee Coalition of America's National Peer Network.
- When Your Support Group Needs Support
This article takes a brief look at resources for support groups.
- You Don't Have to Deal With Amputation Alone
This article takes a brief look at the Amputee Coalition of America's National Peer Network.
- Peer Contact for Parents of Children with Congenital Amputation
Karen Neimanas discusses the role of peer visitor when parents are confronted with the birth of a child with a congenital limb difference.
- Notes from the medical director: first and foremost, listen!: lessons learned from mentors and peer visitors
Doug Smith, ACA Medical Director, discusses the important role that mentors can play in our lives and how a peer visitor can become a mentor.
- Communicator: Newsletter for amputee support group leaders
This site contains links to both HTML and PDF versions of the Communicator newsletter published for amputee support group leaders.
- On-line communication resources for those with limb loss
Resources for amputees or family members of amputees who would like to communicate with other amputees via Internet bulletin boards or e-mail lists.
- APPLL Executive Summary
Learn about ACA's Action Plan for Persons with Limb Loss (APPLL)
- Advocating For Your Child
- ACA Announces New Publication for Parents
The Amputee Coalition of America (ACA) is proud to announce the release of Expectations: Parenting Children and Teens With Limb Differences. This 36-page resource guide addresses some of the issues parents face after giving birth to a baby with a limb dif
- Cancer Was The Easy Part
- ACA Names New Staff Writer
ACA announces the appointment of Scott McNutt as staff writer.
- A Circle of Friends - The Power of Peer Support
- The Prosthesis and Its Components - Choices, Choices and More Choices
- When to Help Your Child and When to Let Go
- The Road to Change
In 2003, I set out on a journey to reclaim the life that I once had, to gain strength in body, mind, and spirit, and to dedicate my life to serve others in need. This journey began with the support of my family following my accident and continued in June
- Beijing 2008: On a Row Boat to China
The International Paralympic Committee met in April this year to decide on important issues at hand. One of those issues was the inclusion of rowing as a Paralympic sport. I was so happy and excited when I learned that rowing had finally become part of th
- A Winning Attitude: A Young Athlete Benefits From ASPIRE's Adaptive Ski Clinic
ASPIRE's week long ski clinic motivates children with amputations and limb differences.
- Out of Necessity: Children’s Book Author Overcomes Biggest Challenge of All
Children's book author, Ben Herosian, turns life's most difficult lessons into inspirational and educational stories.
- Kids and Teens Get Boost from 6th Annual ACA Youth Camp
The 2006 ACA Youth Camp is a success. Campers participated in fun activities and made lots of new friends.
- Inner Wheel Foundation’s Myoelectric Limb Project Lends a Hand to Those in Need
Andres Alvarez Vasquez of California was born without his right hand, but that hasn’t slowed this active 22-year-old down a bit. At the age of 9, Andres was the first recipient of a myoelectric limb from Inner Wheel Foundation Inc.’s Myoelectric Limb Proj
- Author Emily Rapp Speaks About Growing Up as a Poster Child
Emily Rapp writes about her experiences growing up with limb loss in her recently published memoir, Poster Child, by Bloomsbury Press.
- Want to be Another Tiger Woods or Casey Martin?
The Eastern Amputee Golf Association (EAGA) offers young amputees the opportunity to learn to play golf through the free National Amputee Golf Association (NAGA) "First Swing/Learn to Golf" clinic program.
- A Lifetime of Memories!
Take a quick look at the 2007 ACA Youth Camp!
- A Champion Among Us: Meet Jessica Long
Quitting has never been an option for Jessica Long. Holding 34 U.S. swimming records, 17 Pan-American records, 2 Paralympic records, 14 world records, 3 gold Paralympic medals, and 9 gold world championship medals are only some of the accomplishments of t
- Advice from Other Kids & Teens
Get some advice from other young amputees. Read what they have to say about teasing, being self-conscious, prostheses, sports & recreation and more.
- Teen Writes Newsletter for Young Amputees
Meet Theresa, a 14-year-old from California. Theresa is the creator of an interactive newsletter for young amputees.
- The Making of a Champion
Sean is an inspiring young man. Read about his recent travels and successes.
- Disc Golf for Fun and Fitness
If you’re looking for a way to get
in shape or stay that way while
enjoying the great outdoors,
disc golf may be the sport for
you.
- Camp Brings Joy to Young Amputees!
This was a banner year for the Amputee Coalition of America (ACA) Youth Camp,held July 20-24. Sixty-three campers flew in from 30 different states to have the time of their lives.
- Street Beat Masters Hawaii Dance Experience
Read about Adrienne's Hip Hop Dance experienced in Hawaii.
- A Trip of a Lifetime
In September, Roderick Sewell went on the trip of a lifetime. Learn about Roderick's National Paralympic Academy experience at the Paralympic Games in China.
- Two Amputee Coalition campers attend the Paralympics in China
In September, two of our campers received the opportunity of a lifetime. They were selected to take part in the 2008 Paralympic Academy. This year the academy was held in conjunction with the 2008 Paralympics in Beijing, China.
- Growing Up With Limb Loss
Men and women, young and old, all suffer the effects of
amputation, including its physical and emotional scars.
Adapting successfully to life with limb loss depends
not just on one’s inner resolve or outward physical
strength – sometimes it’s a matter
- Wounded Warrior Project and Amputee Coalition of America Work Together to Train and Certify Military Amputee Peer Visitors
Wounded Warrior Project (WWP) and the Amputee Coalition of America are expanding the Military Amputee Peer Visitor Program by conducting a train-the trainer and peer mentor training seminar at the Wounded Warrior Project’s headquarters in Jacksonville, Fl
- Wounded Warrior Project and Amputee Coalition of America Work Together to Train and Certify Military Amputee Peer Visitors
Wounded Warrior Project (WWP) and the Amputee Coalition of America are expanding the Military Amputee Peer Visitor Program by conducting a train-the trainer and peer mentor training seminar at the Wounded Warrior Project’s headquarters in Jacksonville, Fl
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- Amputee Coalition of America Now Accepting Applications for the Christina Skoski, M.D., Scholarship
The Amputee Coalition of America (ACA) is now accepting applications for the second annual Christina Skoski, M.D., Scholarship until March 15, 2010
- Amputee Coalition of America Now Accepting Applications for the Christina Skoski, M.D., Scholarship
The Amputee Coalition of America (ACA) is now accepting applications for the second annual Christina Skoski, M.D., Scholarship until March 15, 2010.
- The Amputee Coalition of America Reaches Out to Amputee Survivors of the Haiti Earthquake
- The Amputee Coalition of America Reaches Out to Amputee Survivors of the Haiti Earthquake
- The Amputee Coalition of America’s List of Priorities for Helping Haitian Amputees
- The Amputee Coalition of America’s List of Priorities for Helping Haitian Amputees
- How You Can Help
- How You Can Help
- Medical Resources
- Medical Resources
- Haiti Relief Action Center Contacts
- Haiti Relief Action Center Contacts
- Haiti Relief News and Media
- Haiti Relief News and Media
- Hanger Orthopedic Group to Donate $250,000 in Funding and Orthopedic Devices to Haiti Earthquake Relief Efforts
- Hanger Orthopedic Group to Donate $250,000 in Funding and Orthopedic Devices to Haiti Earthquake Relief Efforts
- Prosthetics Outreach Foundation Haiti Fund Aids Quake Victims
- Prosthetics Outreach Foundation Haiti Fund Aids Quake Victims
- Physicians for Peace and Old Dominion University to Sponsor Collection Drive for Haiti’s Injured and Disabled
- Physicians for Peace and Old Dominion University to Sponsor Collection Drive for Haiti’s Injured and Disabled
- Amputee Coalition Board Member Pat Chelf Interviewed by MSNBC
“From initial fittings and supply of prosthetics to ongoing adjustments, repairs and replacements, the demand for artificial limbs will be intense, expensive – and long-lasting, said Chelf.”
- Amputee Coalition Board Member Pat Chelf Interviewed by MSNBC
“From initial fittings and supply of prosthetics to ongoing adjustments, repairs and replacements, the demand for artificial limbs will be intense, expensive – and long-lasting, said Chelf.”
- Haiti Relief Action Fund
- Hanger Announces Nationwide Limb Drive to Benefit Haiti Earthquake Survivors
- Hanger Announces Nationwide Limb Drive to Benefit Haiti Earthquake Survivors
- Help For Haitian Amputees
- Help For Haitian Amputees
- NH High-Tech, Prosthetics Companies Help Haitians
- NH High-Tech, Prosthetics Companies Help Haitians
- Rep. John J. Duncan, Jr. Introduces National Limb Loss Awareness Month Resolution
Representative John J. Duncan, Jr. (R-TN) has introduced a resolution to designate April as National Limb Loss Awareness Month.
- Rep. John J. Duncan, Jr. Introduces National Limb Loss Awareness Month Resolution
Representative John J. Duncan, Jr. (R-TN) has introduced a resolution to designate April as National Limb Loss Awareness Month.
- Rep. John J. Duncan, Jr. Introduces National Limb Loss Awareness Month Resolution
Representative John J. Duncan, Jr. (R-TN) has introduced a resolution to designate April as National Limb Loss Awareness Month.
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Annie Garofalo, a 13-year-old Helping Hands member, was asked to present to a 5th grade class at Ten Acre School inWellesley, MA earlier this year. The co-chair for the school’s Understanding Disabilities program, Kindra Nelson, located our group through the Helping Hands website and contacted us to help her find a teen to speak to their 5th grade class about upper limb differences. Since she lived nearby, Annie accepted the challenge and took to the stage a couple of weeks later.
She began her presentation by playing “Fur Elise” on the piano which silenced the class as they watched on. She then introduced herself and told them a little bit about herself as a typical 13-year-old girl. Then she proceeded to explain her difference and how she feels about being born without her left hand.
Many of the students asked if it’s difficult to make friends. Annie explained to them, “I have not experienced any problem with meeting or making friends. Friends are very important to me, and I have lots of them. Most of the time, they just forget that I have one hand, because they like me for who I am (happy and friendly). No one treats me any differently than any other 13 year old, even teachers. I think it would make me uncomfortable to be treated special.”
She continued by saying, “However, when I meet new people or go to a public place where people don’t know me, they will sometimes stare at my arm and whisper or point at me
. I understand that they are curious, and my arm is something they may not have seen before. Most of the time, I’ll just ignore it or try to hide my arm, but sometimes I’ll ask them if they have a question about my arm. It doesn’t make me uncomfortable to answer any questions. Actually, I would MUCH rather have someone ask me about my arm than stare at me! When they ask me what happened to my arm, I tell them “that’s how I was born or that’s how God made me”. They might ask me if I find it hard to do things. I’ll tell them “no” and give them examples like playing the piano, typing on the computer, playing tennis and softball, knitting, painting my nails and all sorts of other things. This usually shocks them, but it’s true. I might do some things differently than a two-handed person, but I never let that stop me.”
The students asked if she ever had a prosthesis and she answered, “When I was 5 months old, my mom and dad got me a small prosthesis to try. I seemed to like it. So as I grew, they got different ones to fit me. But, when I was about 4 1/2 years old, I decided that I didn’t want it anymore. I am very happy with that decision still. Some people with one hand need to use a prothesis, but I’m not one of them.” She then showed them a couple of her old prosthetic devices which they enjoyed playing with and holding.
She finished her presentation by telling the kids, “Even though I might look different, I truly don’t think of myself as disabled. This probably helps other people accept me for who I am…I hope I helped you to see that even though someone might look a little different, they really aren’t. They still have great friends and the same interests as anyone else.” |