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- ACA Names New Editor and Senior Editor
Knoxville, TN. -- Rick Bowers and Bill Dupes, employees in the Publications Department of the Amputee Coalition of America (ACA), have been promoted to editor and senior editor, respectively.
- Shark-Attack Survivor Accepts National “Free Spirit” Honor
Bethany Hamilton, a shark-attack survivor who overcame the loss of her left arm to return to the sport of surfing, has been acclaimed as a 2004 Free Spirit honoree.
- “The Best Thing in the World”
Raised in a small, supportive community, Jaymie Kraus didn’t learn about the adversities and opportunities of people with limb differences until she became an adult
- Colorado - Prosthetic and Orthotic Adult Benefit Summary
Providing Medicaid coverage for prosthetics saves money for states
- Massachusetts Financial Impact Statement for Prosthetic Coverage
Review and evaluation of proposed legislation to mandate coverage for certain prosthetic devices: H. 837
- Colorado - Prosthetic and Orthotic Adult Benefit Full Report
Providing Medicaid coverage for prosthetics saves money for states.
- NY Parity Bill introduced to NY Senate & Assembly
If we are to get these bills passed in this and other states we have to make a bigger noise than other groups also looking for mandates!
- APPLL Update: State Parity - May/June 2005 inMotion
- The Power of Peers
This article looks at the importance of peers in providing guidance and emotional support when faced with an amputation.
- Peer Visitor Support of Recent U.S. Military Amputees
This article takes a look at the peer visitation program in place at the Amputee Center at Walter Reed Army Medical Center.
- Facing Amputation Surgery: The Value of Peer Contact
This article talks about the value of peer support for amputees.
- Funding Raising for Your Support Group
This fact sheet discusses support group member involvement in fundraising. Ideas for different types of fundraisers are included as well.
- Starting a Support Group: The Basics
Starting a support group is a responsibility, a challenge, and a very meaningful experience. This fact sheet offers a listing of some basic steps needed to start a support group. Steps were compiled from successful support groups and organizations all ove
- Understanding ACA's Peer Network
This fact sheet offers an explanation of ACA's national peer network. Details covered include the network's purpose and how it works, as well as the required training for peer visitors.
- Giving Back - Couples Who Peer Visit
This article takes a brief look at couples that do peer visitation as part of the Amputee Coalition of America's National Peer Network.
- When Your Support Group Needs Support
This article takes a brief look at resources for support groups.
- You Don't Have to Deal With Amputation Alone
This article takes a brief look at the Amputee Coalition of America's National Peer Network.
- Peer Contact for Parents of Children with Congenital Amputation
Karen Neimanas discusses the role of peer visitor when parents are confronted with the birth of a child with a congenital limb difference.
- Notes from the medical director: first and foremost, listen!: lessons learned from mentors and peer visitors
Doug Smith, ACA Medical Director, discusses the important role that mentors can play in our lives and how a peer visitor can become a mentor.
- Communicator: Newsletter for amputee support group leaders
This site contains links to both HTML and PDF versions of the Communicator newsletter published for amputee support group leaders.
- On-line communication resources for those with limb loss
Resources for amputees or family members of amputees who would like to communicate with other amputees via Internet bulletin boards or e-mail lists.
- APPLL Executive Summary
Learn about ACA's Action Plan for Persons with Limb Loss (APPLL)
- Advocating For Your Child
- ACA Announces New Publication for Parents
The Amputee Coalition of America (ACA) is proud to announce the release of Expectations: Parenting Children and Teens With Limb Differences. This 36-page resource guide addresses some of the issues parents face after giving birth to a baby with a limb dif
- Cancer Was The Easy Part
- ACA Names New Staff Writer
ACA announces the appointment of Scott McNutt as staff writer.
- A Circle of Friends - The Power of Peer Support
- The Prosthesis and Its Components - Choices, Choices and More Choices
- When to Help Your Child and When to Let Go
- A Message From the President & CEO
- Physical Activity Can Reduce Secondary Conditions in Youths With Limb Differences
- Building a Positive Body Image
- Prostheses for Children & Teens With Limb Differences - Issues and Expectations
- Questions to Ask Your Child's Doctor
- Resources
- Help Improve Access to Assistive Devices
Call to action for the "Medicare Independent Living Act of 2006" (S.3677) and to improve Medicare's regulation of assistive devices.
- Help Improve Access to Assistive Devices
Call to action for the "Medicare Independent Living Act of 2006" (S.3677) and to improve Medicare's regulation of assistive devices.
- Help Improve Access to Assistive Devices
Call to action for the "Medicare Independent Living Act of 2006" (S.3677) and to improve Medicare's regulation of assistive devices.
- Help Improve Access to Assistive Devices
Call to action for the "Medicare Independent Living Act of 2006" (S.3677) and to improve Medicare's regulation of assistive devices.
- Connecticut
- ADVOCACY UPDATE: Pennsylvania HB 2718 Hearing a Great Success!
October 19, 2006 the Pennsylvania Health and Human Services Committee heard HB 2718, a bill requiring insurance companies to cover prosthetic devices and components.
- ADVOCACY UPDATE: Pennsylvania HB 2718 Hearing a Great Success!
October 19, 2006 the Pennsylvania Health and Human Services Committee heard HB 2718, a bill requiring insurance companies to cover prosthetic devices and components.
- ADVOCACY UPDATE: ACA Activist Advocating Against Job Discrimination
Dave Dunville, one of the leaders of the Michigan campaign for prosthetic coverage, is actively advocating for amputees' right to serve as firefighters.
- Stay informed by reading APPLL Core: Access to Care
- ADVOCACY NEWS: Activists Rally for Prosthetic Coverage
- Oregon Passes Important Amputee Healthcare Legislation
After less than a year, Oregon just became the seventh state to sign parity into law.
- Prosthetic Parity Campaign Making Major Strides
ACA's prosthetic parity campaign gains nationwide attention with 26 states making strides in the battle for coverage and a congressional bill in the beginning stages.
- ADVOCACY UPDATE: ACA Expands Advocacy Department
There are many exciting things on the horizon for the ACA's advocacy department including a federal bill and a new staff person!
- Kicking for Kids Who Can't Event in Washington, D.C.
Kicking For Kids Who Can't is an event taking place on the National Mall in Washington, D.C. on October 7th, 2007. Kids adults of all ages will kick with all of their might to raise money to benefit the Limbs For Life Foundation, a Non-Profit 501(c)(3), w
- Kicking for Kids Who Can't Event in Washington, D.C.
Kicking For Kids Who Can't is an event taking place on the National Mall in Washington, D.C. on October 7th, 2007. Kids adults of all ages will kick with all of their might to raise money to benefit the Limbs For Life Foundation, a Non-Profit 501(c)(3), w
- UPDATE on the vote to override the president's veto of critical programs
Many ACA members made calls andn sent e-mails to help override Bush's Veto of the FY 2008 Labor, Health and Human Services and Education Appropriations bill.
- ADVOCACY UPDATE: California Becomes the Fifth State to Ensure Coverage
- ADVOCACY UPDATE: CA and MA Join the Trend to Protect Access to Prosthetic Coverage
- ADVOCACY UPDATE: Portrait of a Prosthetic Parity Activist
- ADVOCACY UPDATE: Portrait of an Activist
- ADVOCACY UPDATE: New States Join the Fight for Prosthetic Parity
- ADVOCACY UPDATE: Portrait of a Parity Activist
- ADVOCACY UPDATE: Portrait of an Activist
- ADVOCACY UPDATE: Prosthetic Coverage on the Legislative Agenda in Many States
- ADVOCACY UPDATE: New Year and New Energy in the Fight for Prosthetic Coverage
- ADVOCACY UPDATE: Celebrating a Victory in the Fight for Parity
- ADVOCACY UPDATE: ACA Conference Kicks off a Summer of Parity Events
- ADVOCACY UPDATE: Parity Campaign Moving Full Speed Ahead
- ADVOCACY UPDATE: Activists Unite in Support of Parity
- Advocacy Update: Victory in Virginia!
- Top 10 Tips for Growing Up as an Amputee & Advice from Kids & Teens Who’ve Been There
Read what other young amputees are dealing with and see what advice they have.
- ADVOCACY NEWS: New Jersey Passes Parity Bill
- ADVOCACY NEWS: Rally Protests Insurers' Refusal To Cover Prosthetic Costs
- ADVOCACY NEWS: To Promote Bills, Amputees Describe Insurance Travails
- ADVOCACY NEWS: ACA Calls for Meaningful Health Insurance Coverage for Prosthetic Care
- ADVOCACY NEWS: Federal Prosthetic Coverage Bill Introduced
- ADVOCACY NEWS: Summer Internships Available in the National Advocacy Office
- ADVOCACY NEWS: Position Open in the National Advocacy Office
- ADVOCACY NEWS: Governor Douglas to Sign Important Amputee Healthcare Legislation
- ADVOCACY NEWS: Vermont prosthetic parity bill signed
- ADVOCACY NEWS: ACA Launches Ground Breaking Event Series to Call Attention to the Restrictions on Insurance Coverage for Prostheses
- Maryland Bill Could Make Prosthetics More Affordable: View Report and Video by ABC NEWS CHANNEL 8
- ADVOCACY NEWS: Rep. Andrews Seeks Support for the Federal Parity Act
- ADVOCACY NEWS: ACA Welcomes New Member to the National Advocacy Team
- Advocacy News: Advocates Seek Better Insurance Coverage for Amputees Needing Limb Prostheses
- ADVOCACY NEWS: ACA Featured in the Journal of the American Medical Association
JAMA recently featured an article on the parity initiative.
- ADVOCACY NEWS: Prosthetics Parity Bill Mandates Better Compensation for Amputees
- ADVOCACY NEWS: Parity Bill Draws Interest in House
- ADVOCACY NEWS: Legislators Becoming Aware of Insurance Inadequacies for Amputees
- ADVOCACY NEWS: Summer Interns Join the Team
- ADVOCACY NEWS: Amputees Attend Lobby Day in Washington, DC to Push for Meaningful Insurance Coverage for Prostheses
- ADVOCACY NEWS: House Bill Represents Important Step Forward in Battle to Maintain Orthotic and Prosthetic Medicare Benefits During Federal Competitive Bidding Delay and Debate
- Advocacy news: Amputees Gather in Washington, DC, to Lobby for Insurance Parity
- PROPOSED FEDERAL PROSTHETIC PARITY LAW AND OTHER MAJOR ISSUES PUSH ATTENDANCE AT 2008 AMPUTEE COALITION OF AMERICA NATIONAL ANNUAL CONFERENCE TO RECORD LEVELS
- ADVOCACY NEWS: U.S. Congress overrides Bush's Medicare veto
- ADVOCACY NEWS: ACA Participates in Groundbreaking National Forum on Disability Issues
- ADVOCACY NEWS: ACA Names Casey as 2008 “Advocate of the Year”
- ADVOCACY NEWS: Senate passes bill protecting disabled people
- ADVOCACY NEWS: Senate passes bill protecting disabled people
- My state has parity, now what?
- ADVOCACY NEWS: Congress Passes Bill With Protections for Disabled
- ADVOCACY NEWS: Congress Passes Bill With Protections for Disabled
- ADVOCACY NEWS: Snowe, Harkin Seek Equal Coverage for Prosthetics
- ADVOCACY NEWS: Snowe's Floor Speech Regarding S. 3517
- ADVOCACY NEWS: Historic Bipartisan Bill Introduced in U.S. Senate Requires Meaningful Health Insurance Coverage for Amputees
- ADVOCACY NEWS: Historic Bipartisan Bill Introduced in U.S. Senate Requires Meaningful Health Insurance Coverage for Amputees
- ADVOCACY NEWS: Historic Bipartisan Bill Introduced in U.S. Senate Requires Meaningful Health Insurance Coverage for Amputees
- ADVOCACY NEWS: Kix Brooks of Brooks and Dunn Headlines October 12 Franklin TN Benefit Concert For the Amputee Coalition of America and the Mending Limbs Organization
- ADVOCACY NEWS: Kix Brooks of Brooks and Dunn Headlines October 12 Franklin TN Benefit Concert For the Amputee Coalition of America and the Mending Limbs Organization
- ADVOCACY NEWS: Historic Bipartisan Bill Introduced in U.S. Senate Requires Meaningful Health Insurance Coverage for Amputees
- ADVOCACY NEWS: Historic Bipartisan Bill Introduced in U.S. Senate Requires Meaningful Health Insurance Coverage for Amputees
- ADVOCACY NEWS: Amputee Coalition of America Calls for Elimination of Two-Year Waiting Period for Medicare Benefits for the Disabled
- ADVOCACY NEWS: ACA's Letter to the Obama Transition Team
- ADVOCACY NEWS: ACA Working to Ensure that Amputees are Not Left Behind in Health Reform
- ADVOCACY NEWS: ACA Working to Ensure that Amputees are Not Left Behind in Health Reform
- ADVOCACY NEWS: ACA Signs on in Support of the Patient-Centered Outcomes Research Act of 2009
- ADVOCACY NEWS: ACA Signs on in Support of the Patient-Centered Outcomes Research Act of 2009
- OPAF Launches McKeever’s First Ride
- ADVOCACY NEWS: Senate HELP Protects Access to Assistive Devices
- ADVOCACY NEWS: Senate HELP Protects Access to Assistive Devices
- ADVOCACY NEWS: ACA and Partners Applaud the Inclusiveness of the Affordable Health Choices Act
- ADVOCACY NEWS: ACA and Partners Applaud the Inclusiveness of the Affordable Health Choices Act
- Connecticut: Vote on Monday. Take action TODAY!
- ADVOCACY NEWS: ACA Celebrates Progress in the Campaign for Hate Crimes Protections for People with Disabilities
- ADVOCACY NEWS: ACA Celebrates Progress in the Campaign for Hate Crimes Protections for People with Disabilities
- Amputee Coalition Youth Camp Shows Young Amputees That They Can Do Anything, Anywhere
Donate now and help support this inspirational program
- ADVOCACY NEWS: ACA Joins Allies in Pushing for Patient Centered Approach to Comparative Effectiveness Research
- ADVOCACY NEWS: ACA Joins Allies in Pushing for Patient Centered Approach to Comparative Effectiveness Research
- ADVOCACY NEWS: Progress in the Efforts to Protect Assistive Devices in Healthcare Reform
- ADVOCACY NEWS: Progress in the Efforts to Protect Assistive Devices in Healthcare Reform
- ADVOCACY NEWS: Progress and Problems in the Campaign for Hate Crimes Protections for People with Disabilities
- ADVOCACY NEWS: Progress and Problems in the Campaign for Hate Crimes Protections for People with Disabilities
- Double amputee loses legs, finds a cause
- HEALTH CARE REFORM: Call your members today!
- HEALTHCARE REFORM: Take action during the August recess!
- ADVOCACY NEWS: ACA Seeks Government Relations Specialist to Help Lead Policy Efforts
- ADVOCACY NEWS: ACA Seeks Government Relations Specialist to Help Lead Policy Efforts
- ADVOCACY NEWS: ACA Partners With AOPA and Hanger to Call for True Healthcare Reform
- ADVOCACY NEWS: ACA Partners With AOPA and Hanger to Call for True Healthcare Reform
- Winslow Therapeutic Riding to Host McKeever’s First Ride
- TAKE ACTION TODAY! Push for true healthcare reform!
- Members of Congress Receive Legislative Awards From National Amputee Organizations
- Ossur Commits $20,000 to Amputee Coalition of America’s Parity Campaign
- Ossur Commits $20,000 to Amputee Coalition of America’s Parity Campaign
- Amputee Coalition of America's Paddy Rossbach Youth Camp Announced
Knoxville, TN, October 9, 2009 – The Amputee Coalition of America announced that it has named its youth camp in honor of the organization’s former president & CEO, Paddy Rossbach.
- Amputee Coalition of America's Paddy Rossbach Youth Camp Announced
Knoxville, TN, October 9, 2009 – The Amputee Coalition of America announced that it has named its youth camp in honor of the organization’s former president & CEO, Paddy Rossbach.
- Get Ready for National Family Caregivers Month in November
November 2009 celebrates National Family Caregivers Month, a time to thank, support, educate and empower family caregivers – those individuals providing care to loved ones living with chronic illness, disability or the frailties of old age.
- Mending Limbs Organization to Hold Second Annual Benefit Concert
Event to raise awareness of need for adequate prosthetic insurance coverage for amputees
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WASHINGTON—Legislation that would require group health plans to cover prosthetic care at the same level as other medical and surgical care has been introduced in Congress, but its prospect of passage is unclear, experts say.
Under the Prosthetic Parity Act introduced in the House of Representatives earlier this month by Rep. Robert Andrews, D-N.J., with bipartisan support, group health plans also could not "impose any annual or lifetime dollar limitation on benefits for prosthetic devices and components unless such limitation applies in the aggregate to all medical and surgical benefits."
While the legislation says health insurers have started limiting prosthetic costs that they will cover at "unrealistic levels," health insurers and employers say the extra costs of a prosthetic coverage mandate likely would be passed down to employers in higher premiums.
"It's worrisome because the employer loses control over what they are paying for," said Steve Wojcik, vp of public policy at the Washington-based National Business Group on Health.
The federal push for parity for prosthetic coverage gained momentum after achieving some success at the state level in which nine states have passed such laws. Colorado was the first state to pass a prosthetic parity measure in 2000, with New Jersey and Indiana becoming the latest states to pass similar measures this year. Similar proposals are being considered in 30 other states. However, because of a pre-emption provision in the Employee Retirement Income Security Act, state laws do not apply to health care plans that are self-funded. The federal legislation would apply to both self-funded and fully-insured plans.
"The main goal is to create a nationwide standard of coverage that is consistent and appropriate so we can secure protection for the thousands of amputees who are facing enormous obstacles," said Morgan Sheets, director of the Amputee Coalition of America, the Knoxville, Tenn.-based advocacy group that has championed the legislation.
Coverage for prostheses varies widely, and a growing number of insurers are limiting coverage by imposing low dollar caps and restrictions, the ACA says.
Many private health plans cap coverage at $2,500 or $5,000 a year or limit a patient to one device per lifetime, according to a 2006 ACA survey of its members' health plans. In addition, 29% of amputees with private health insurance had prosthetic coverage reduced during the past three years while 8% had coverage eliminated completely, according to 2007 ACA data.
The cost of prosthetics ranges from less than $100 to $15,000 for basic devices while mechanical and computer-assisted models can cost as much as $30,000, according to the ACA.
While proponents say providing parity of prosthetic coverage would boost health insurance premiums by less than $1 per month, employer groups warn that any benefit mandate impacts health insurance affordability and puts additional financial pressure on employers.
"Companies will lose the ability to cover what their resources will allow," Mr. Wojcik said.
While the success at the state level may increase pressure to pass the federal bill, health care experts say it is difficult to predict how the bill will fare in Congress.
"It is very difficult to pass mandatory health care legislation. There is a lot of resistance in Congress to do it," said Tom Billet, a senior consultant with Watson Wyatt Worldwide in Stamford, Conn.
Parity for prosthetic coverage may face hurdles similar to those experienced by mental health parity legislation, he said.
The House earlier this month cleared its version of the mental health parity legislation on a 268-148 vote (BI, March 10). That action, following last year's Senate passage of a more limited parity measure, sets the stage for a conference committee to try to work out the differences between the two bills. Congress first passed mental health care parity legislation in 1996 and the latest bills would expand that law.
"Look how long it has taken to produce bills on mental health parity legislation. This can be an arduous process," Mr. Billet said.
Aside from the mental health care parity measure, other health care benefit mandates that Congress has approved include a 1978 law that requires group health care plans to provide the same coverage for pregnancy and childbirth; a 1986 law that requires employers to extend group health coverage to former employees and dependents in termination of employment, death and divorce situations; and another 1996 law that requires health plans to offer at least 48 hours of inpatient coverage after a vaginal birth and 96 hours of coverage after a Caesarean.
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